Top Tweets for #NETpatients
I didnโt take photos but absolutely loved meeting with #NETpatients and all my favorite #NETcolleagues ๐ฆ. Thank you @NANETS1 @NIH and @LACNETS for an amazing weekend with these gals and @OncoThor @FlavioRochaMD ! Amazing job @JaydiDelRivero!!
Zebras in a herd are called a โdazzle.โ These zebra fashion queens dazzled our NET community today at our in-person patient education conference hosted by @JaydiDelRivero @theNCI in collaboration w @PheoPara ๐ฆ๐ฆ@AGangiMD @HalletJulie @helops79 @DrCNClarke @helops79 @lisayentwin

Great to see the #CONTROLNETs trial presented at this years #ENETS2023 annual conference,this trial was made possible by donations from @tourdecure_aus and #netpatients around Australia ๐๐#letstalkboutnets @GICancer @dkwyld
#ENETS2023 - Damien Wild addresses the hot topic of combo PRRT, whether combining PRRT + another drug enhances the effectiveness of PRRTโฆ

Did you know #bathroom cards are available to download? Go to https://t.co/noxuf3CSqp to see what other helpful resources we provide to #NETpatients . Need a plastic card version for your wallet? Email [email protected], and we will post one.
#LetsTalkAboutNETs #NETs
โ
So important to raise awareness for the #netnationalactionplan and provide equitable funding. Terrible statistics of misdiagnosis and delay and lack of resources resulting in poor health outcomes & stress on ED. Letโs do better for #NETpatients #auspol
Many thanks to @zalisteggall for meeting with @NECancerAus today to discuss the #NETNationalActionPlan, equitable funding, patient advocacy, additional NET Nurse support, National Awareness & how important the 8 key asks of the National Action Plan are for #NETpatients

Many thanks to @zalisteggall for meeting with @NECancerAus today to discuss the #NETNationalActionPlan, equitable funding, patient advocacy, additional NET Nurse support, National Awareness & how important the 8 key asks of the National Action Plan are for #NETpatients

Did you know that #clinicaltrials are not always used as the "last resort?" There's a range of clinical trials that #NETpatients might be eligible for during different parts of their journey. Join Dr. Chauhan for our upcoming webinar on May 15th! Register: https://t.co/q0rTfpEnHb

#Insurance issues are a common issue in the #cancer community. Weโve compiled a list of helpful #resources for #NETpatients including: Insurance finances, open enrollment, #copayassistance, financial assistance programs, #disability, & more. https://t.co/6FzzINbaAF

We're dedicated to supportive care and improving the quality of life for #NETpatients, and a large part of that care is peer support. Sometimes the most comforting feeling is that you are not alone. #cancerawareness #NETawareness #NetCancerDay #NETpatientsupport #NETsupportgroup


As the day closes, #LetsTalkAboutNETs and let's keep talking about #NeuroendocrineTumors- today and everyday. Each effort to raise awareness matters!
Thanks to the Global NET community and @netcancerday for their untiring efforts for #NETpatients and physicians. #NETCancerDay

Our vision: #NETpatients need ACCESS to earlier diagnosis! Working together with @netcancerday to raise #NETcancerawareness #NETCancerDay #LetsTalkAboutNETs #NETcancer #NETkreft #neuroendocrinecancer #nevroendokrinkreft @Kreftforeningen

Dr. Eric Liu #RockyMountainCancerCenters uses pancreatic enzymes to help #NETpatients manage GI problems with bloating, gas, and diarrhea. https://t.co/Blsuz8VYf5

#Netpatients should know that you must be your own self advocate, seek out a specialist, and assemble the best team to support you! #netcancer #pnet #neuroendocrinecancer @netcanceraware
No two zebras look exactly alike. #NETcancer.
The zebra is used to describe #NETpatients as, like the animal... https://t.co/Tr4D7zWa9X
Another setback for #NETpatients - 'magic bullet' PRRT delisted from #cancerdrugsfund http://t.co/lpCoPIqHxe
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