Top Tweets for #NF2SWN
“Round Table: Enhancing Research Collaborations at MGB” Presented by James Gusella, PhD; Judith Kempfle, MD; Rick Lewis, MD; Andi McClatchey, PhD; Brad Welling, MD, PhD; and Lei Xu, PhD. Moderated by Linda Bi, MD, PhD and Scott Plotkin, MD, PhD #NF2SWN #ResearchCollaboration
“Vestibular Function and Balance in NF2-SWN” Presented by Rick Lewis, MD, Otolaryngology, MEEI at the Retreat for NF2-Related Schwannomatosis presented by CTNS #CTNS #NF2SWN #VestibularFunction #Balance
“Decoding Hearing Loss in NF2-SWN: Integrating Animal Models and Human Phenotypes” Presented by Judith Kempfle, MD, Otolaryngology, MEEI at the Retreat for NF2-Related Schwannomatosis presented by CTNS #CTNS #NF2SWN #HearingLoss #TranslationalResearch
“Preclinical Selection of Drugs for NF2-SWN Clinical Trial” Presented by Lei Xu, PhD, Radiation Oncology, MGH at the Retreat for NF2-Related Schwannomatosis presented by CTNS #CTNS #NF2SWN #ClinicalTrials
“Managing Laryngeal Pathology in Patients with NF2-SWN” Presented by Phillip Song, MD, Otolaryngology, MEEI at the Retreat for NF2-Related Schwannomatosis presented by CTNS #CTNS #NF2SWN #LaryngealPathology
“Goals and Challenges of Hearing Rehabilitation in NF2-SWN: Brainstem and Cochlear Implants” Presented by Daniel Lee, MD, Otolaryngology, MEEI at the Retreat for NF2-Related Schwannomatosis presented by CTNS #CTNS #NF2SWN #HearingRehabilitation #CochlearImplants
Today we celebrate our fundraisers of 2025, you have all been brilliant sharing photos and details of your fundraising. So much fun was had.
We thank you all for raising vital funds to help us change the lives of those with NF2 through our research.
#endNF2 #NF2awareness #NF2SWN
Have you ever wondered: What is NF2-related schwannomatosis? You’re not alone — and we’re here to help.
Click here for the answer to a Big Question ➡️ https://t.co/aTAH40de1u
#EndNF #NF2 #NF2SWN #MakeNFVisible
Every single person that talks about NF2 helps to raise awareness.
Your story not only raises awareness but helps others on their journey too.
RAISE YOUR VOICE, TELL YOUR STORY & RAISE AWARENESS
#endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN
#NF2support #nf2 #nf2family
Today is your last chance to make twice the difference for the NF community.
When you donate $100+ you'll receive our limited-edition CTF keychain—a symbol of the hope you’re unlocking.
💙 Give now: https://t.co/5LgF7xQGtq
#EndNF #MakeNFVisible #DoubleTheImpact #NF2 #NF2SWN
Today is NF2-SWN Awareness Day!
We recognize the strength of the NF2-SWN community and raise our voices for greater awareness, research, and support. Visit https://t.co/nmJuZ2yKET and spread the word.
#EndNF #MakeNFVisible #NF2 #NF2SWN
What exactly is NF2-related schwannomatosis (NF2-SWN)?
🎥 Watch this episode of Big Questions about NF: https://t.co/iGnKsqYrhG
#NF2SWN #Neurofibromatosis #BigQuestionsAboutNF #RareDisease #ChildrensTumorFoundation #EndNF #NF2
AVAILABLE TO OXFORD NF2 PATIENTS ONLY
NF2 related Schwannomatosis support & Information Day run by the Oxford NF2 Clinic.
Location: Leonardo Hotel Oxford
Date: 10th may 2025 10am to 4pm
Come and visit our stand, hear all about our research.
#NF2 #ENDNF2 #NF2SWN #nf2awareness
Big congratulations to @AdamPJones98 on this exciting publication - amazing work by everyone involved, and great to see the progress in #NF2SWN research! 🧬🧬👏
@SNOMAN_Lab
Proud to announce my paper investigating the #SpatialBiology of vestibular schwannomas in #NF2SWN is out at @NatureComms! Thank you to everyone involved and @nf2biosolution1 for funding this work to support the use of #Immunotherapy for NF2 SWN! 🧑🏻🔬
https://t.co/KYGGnUgjTc
Proud to announce my paper investigating the #SpatialBiology of vestibular schwannomas in #NF2SWN is out at @NatureComms! Thank you to everyone involved and @nf2biosolution1 for funding this work to support the use of #Immunotherapy for NF2 SWN! 🧑🏻🔬
https://t.co/KYGGnUgjTc
Meet the individuals living with NF2. A rare disorder affecting around 1 in 35000 people across the world.
Today we meet Hannah, her NF2 journey started aged 14. Hannah has suffered severe, life changing side effects from Avastin infusions.
#endNF2 #NF2awareness #NF2SWN
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