#NFXF - Twitter Hashtag

over 2 years ago

The @Harmonybio & RECONNECT study team is committed to creating & deepening ties within the Fragile X community. Read more about the message from the Harmony team & the RECONNECT study here: https://t.co/Aqktwabwxy #fragilex #nfxf #nonprofit #research #fxsresearch

NFXFoundation's tweet photo. The @Harmonybio & RECONNECT study team is committed to creating & deepening ties within the Fragile X community.

Read more about the message from the Harmony team & the RECONNECT study here: https://t.co/Aqktwabwxy

#fragilex #nfxf #nonprofit #research #fxsresearch https://t.co/XbRdJk0zcP

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NFXF @NFXFoundation

over 2 years ago

Big win for #FragileX! Fragile X is in FY24 PRMRP Funding Opportunities thanks to your DC advocacy. Learn how this impacts research in our webinar, Apr 10. Register: https://t.co/syULSPeH26 #FragileXResearch #NFXF

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Dr. Rebecca Shaffer @BeccaCShaffer

over 4 years ago

Incredibly blessed to join this amazing group of people serving on the Board of the National Fragile X Foundation! It is truly an honor and it was lovely to share some time with them in San Diego this past week! @NFXFoundation #fragilex #nfxf

BeccaCShaffer's tweet photo. Incredibly blessed to join this amazing group of people serving on the Board of the National Fragile X Foundation! It is truly an honor and it was lovely to share some time with them in San Diego this past week! @NFXFoundation #fragilex #nfxf https://t.co/5w3bZ75Pj5

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Fragile X Society-India @FragileXIndia

almost 6 years ago

This is a heart touching story of Vimal and Dhruv. #fragilex #humansofmadras #nfxf #fragilexawareness #iamwithfragilex

Humans Of Madras @HumanssofMadras

almost 6 years ago · Chennai

Each and every human being in this world is unique and put on this earth to achieve their own unique purpose. Tap to read about this special kid’s unique abilities! Full Story >> https://t.co/kjDMJUd42E #FragileXIndia #fragilexsyndrome #fxs #differentnotless #fragilexawareness

HumanssofMadras's tweet photo. Each and every human being in this world is unique and put on this earth to achieve their own unique purpose. Tap to read about this special kid’s unique abilities!

Full Story >> https://t.co/kjDMJUd42E

#FragileXIndia #fragilexsyndrome #fxs #differentnotless #fragilexawareness https://t.co/e6an35pJVm

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NFXF @NFXFoundation

about 6 years ago

Missy Zolecki is Xtraordinary, and lucky for us (and everyone we serve) she's part of the NFXF team! If you haven't had the chance to meet her yet, check out our team bios ... though her daughter Paige said it best 😍! https://t.co/xyN8O41MfM #NFXF #FragileX

NFXFoundation's tweet photo. Missy Zolecki is Xtraordinary, and lucky for us (and everyone we serve) she's part of the NFXF team! If you haven't had the chance to meet her yet, check out our team bios ... though her daughter Paige said it best 😍! https://t.co/xyN8O41MfM #NFXF #FragileX https://t.co/39SxxgCTxu

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Zynerba Pharma @ZynerbaPharma

over 6 years ago

Team Z is proud to be on the Hill with the @NFXFoundation on #NFXF advocacy day to discuss federal funding and policies that support the needs of #FragileX families!

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Zynerba Pharma @ZynerbaPharma

almost 7 years ago

Everyone has a gene called FMR1 on their X chromosome. #DYK that a mutation in that gene is responsible for #FragileX? It's a genetic disease so it can be passed on by either parent from generation to generation. Learn more facts here: https://t.co/8tovID71Nw #NFXF

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Lisa MacKechnie @lisamcpa

about 7 years ago

Day 4: Given the possibility of a link, it is recommended that all children with autism, both male and female, be referred for genetic evaluation and testing for FXS and any other genetic cause of autism. #ThisIsFragileX #disabilityawareness #nfxf #idd #autism #taxnerd

lisamcpa's tweet photo. Day 4: Given the possibility of a link, it is recommended that all children with autism, both male and female, be referred for genetic evaluation and testing for FXS and any other genetic cause of autism. #ThisIsFragileX #disabilityawareness #nfxf #idd #autism #taxnerd https://t.co/jStGAGFe11

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Fragile X Society-India @FragileXIndia

over 7 years ago

History is in black and white, but the future holds every colour. These guidelines will change the future. https://t.co/mCg1lLwbTy #fragilexindia #fragilexsyndrome #dreamscometrue #fragilexawareness #iap #nfxf #fraxa #indianpediatrics

FragileXIndia's tweet photo. History is in black and white, but the future holds every colour. These guidelines will change the future. https://t.co/mCg1lLwbTy
#fragilexindia #fragilexsyndrome #dreamscometrue #fragilexawareness #iap #nfxf #fraxa #indianpediatrics https://t.co/u70bT2qBQU

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Zynerba Pharma @ZynerbaPharma

almost 8 years ago

On behalf of all of us on Team Z, congratulations to the Southeast PA chapter of the @NFXFoundation for their successful X Strides 5K event this weekend. We are proud to be part of your efforts to raise awareness of #FragileX. #FXS #NFXF

ZynerbaPharma's tweet photo. On behalf of all of us on Team Z, congratulations to the Southeast PA chapter of the @NFXFoundation for their successful X Strides 5K event this weekend. We are proud to be part of your efforts to raise awareness of #FragileX. #FXS #NFXF https://t.co/pxo3YnwRnD

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Fragile X Society-India @FragileXIndia

about 8 years ago

In 2006 I attended my first International Conference on Fragile X in Atlanta. On 22nd July we participated in the awareness walk and here is a picture from that day... #fragilexawareness #fragilexindia #fragilenotbroken #togetherwecan #purposeoflife #NFXF #autismawareness

FragileXIndia's tweet photo. In 2006 I attended my first International Conference on Fragile X in Atlanta. On 22nd July we participated in the awareness walk and here is a picture from that day...
#fragilexawareness #fragilexindia #fragilenotbroken #togetherwecan #purposeoflife #NFXF #autismawareness https://t.co/Ut9Hz1RISK

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AK Shop 4 The Kids @AKShop4Kids

about 8 years ago

Today is National Fragile X Awareness day. Give a fraggle a smile ☺ , hug 🤗 , high five 🙏, some #inclusion and #acceptance. Or, consider supporting great organizations like the #NFXF (below) who do this 24/7/365. Say a prayer for #SeraGirl today, FX'r extraordinaire!

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Zynerba Pharma @ZynerbaPharma

about 8 years ago

July is #FragileX Awareness Month. #DYK that the 16th @NFXFoundation conference starts on July 11? There are many ways to support the #NFXF. Learn more at https://t.co/Uy7K9ewv6L. Together, we are stronger!