Top Tweets for #NFhero
"I had so much anxiety and felt so guilty because I gave him NF."
Read about how an NF1 diagnosis for her son led to a discovery of her own: https://t.co/JE4Wrq92Zy
Submit your own story of NF at https://t.co/iriaBibT8e
#EndNF #MakeNFVisible #NFHero #NFAwareness
Peyton, a young NF Hero, "was very, very scared of the machines for my scans and the blood tests" at first after her NF1 diagnosis.
"Now that I'm used to them I'm not scared. I know that I am brave and strong."
https://t.co/4DB6n6EAfa
#EndNF #MakeNFVisible #NFHero #NFAwareness
Why do butterflies only love flowers? I want to be a flower...
#kids #Children #cute #cuteboys
#NF1 #NFResearch #Neurofibromatosis
#NFSupport #endnf #makenfvisible #nfhero #NFAwarenessDay
@Mia425Mia
Cute & 可爱 & Đáng yêu & Maganda & Manis & schattig & liebenswert & Carino & fofo & Adorable & Милый & Encantador & 可愛い & 귀엽다
#kids #Children #cute #cuteboys
#NF1 #NFResearch #Neurofibromatosis
#NFSupport #endnf #makenfvisible #nfhero #NFAwarenessDay
@Mia425Mia
Who Am I?…
As adult, do you know how to reply to this question??? 🧐 🧐 🧐
#kids #Children #cute #cuteboys
#NF1 #NFResearch #Neurofibromatosis
#NFSupport #endnf #makenfvisible #nfhero #NFAwarenessDay
@Mia425Mia
Making funny faces is my daily routine~
No one is born better than me at making funny faces!
#kids #Children #cute #cuteboys
#NF1 #NFResearch #Neurofibromatosis
#NFSupport #endnf #makenfvisible #nfhero #NFAwarenessDay
@Mia425Mia
Thank you @huntsmancancer
for the support!!! Tonight through this weekend the #BeaconofHope will be blue & green for T and the thousands of other patients living with NF.
@ChildrensTumor
#HuntsmanCancerInstitute #EndNF #makeNFvisible #imwithTravis #ikNowaFighter
Hello world! How are you today?
My name is Kiyan a NF1 super-powered boy.
#kids #Children #cute #cuteboys
#NF1 #NFResearch #Neurofibromatosis
#NFSupport #endnf #makenfvisible #nfhero #NFAwarenessDay
@Mia425Mia
Watch the world premiere of our two-part short documentary featuring the incredible Cataleya Castanon #NFHero #MakeNFVisible #EndNF
My 8 year old is the sunniest guy around, and has come so far from all the challenges he faced when diagnosed with NF just over 7 years ago. @ChildrensTumor #MakeNFVisible #endnf #WorldNFAwarenessDay
Fernando H. first learned about his neurofibromatosis type 1 (NF1) diagnosis at seven years old. He speaks about living with NF1, but "not letting it define who he is."
https://t.co/ysbOGIvs42
Share your own Story of NF at https://t.co/iriaBibT8e.
#endnf #makenfvisible #nfhero
I am honored to be selected as the 2023 Ambassador for the Children's Tumor Foundation and my work is just beginning! Thank you for helping making NF visible, and for every dollar you gave! #makenfvisible #endnf #raredisease #nfhero #nfawareness #nfresearch
Madelaine was diagnosed with NF when she was four months old. Her mom wants what we all want: to make NF visible and see advancements in NF research.
https://t.co/Kimg396A9O
#endnf #nf1 #makenfvisible #nfhero #NFawareness
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