Little Sad Monster

An Animation and NFT Project Benefiting NF1

[Genetics in Medicine @GIMJournal]

New research reveals that people with #NF1 face higher mortality from nervous system diseases in addition to cancer, with nearly half of years lost due to non-neoplastic causes. https://t.co/YHBeybN1LS #causeofdeath #neurofibromatosis

[Marcos Arrut @MarcosArrut]

Refusing to edit an embryo to save it from a serious disease is not an act of morality, it is an act of negligence and is being complicit in its future suffering.

That's all.

[Cure NF2 Foundation @NF2BioSolutions]

Research is crucial for finding a cure for NF2, as current options are limited to invasive procedures and symptom management. The Antibody Project at Yale offers promising treatment possibilities. Help us bring hope to NF2 patients by donating today: https://t.co/CQFUQdSIWE

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

*** AVASTIN DIARIES ***
Artwork at childrens oncology & decorated tiles
Greeted by a nurse with basic BSL knowledge, always makes my day
Anyway grab a cuppa and read all about this lovely nurse and more!
https://t.co/iSAjIPHFaB
#endNF2 #NF2awareness #neurofibromatosis type2
#NF2

[Children's Tumor Fdn @ChildrensTumor]

And they're off! Team Ohana 2023 will row almost 3,000 nautical miles across the Pacific Ocean to End NF!

https://t.co/1i04f9dC1F

[Little Sad Monster @lsadmonster]

Can you find me ???
#kids #Children #cute #cuteboys
#NF1 #NFResearch #Neurofibromatosis
#NFSupport #endnf #makenfvisible #nfhero #NFAwarenessDay
@Mia425Mia

[Little Sad Monster @lsadmonster]

Why do butterflies only love flowers? I want to be a flower...
#kids #Children #cute #cuteboys
#NF1 #NFResearch #Neurofibromatosis
#NFSupport #endnf #makenfvisible #nfhero #NFAwarenessDay
@Mia425Mia

[Children's Tumor Fdn @ChildrensTumor]

The exclusive interview 2023 NF Ambassador @4nfcure did @people is now out!

"It's not about me — it's about the younger generation. I never want a child to go through what I've gone through."

https://t.co/AsJk2nbDqc

[Little Sad Monster @lsadmonster]

They said I’ll have …
#kids #Children #cute #cuteboys
#NF1 #NFResearch #Neurofibromatosis
#NFSupport #endnf #makenfvisible #nfhero #NFAwarenessDay
@Mia425Mia

[Little Sad Monster @lsadmonster]

Sometimes I think about my parents... they are so CUTE.
#kids #Children #cute #cuteboys
#NF1 #NFResearch #Neurofibromatosis
#NFSupport #endnf #makenfvisible #nfhero #NFAwarenessDay
@Mia425Mia

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Reading real life stories about how NF2 affects people help others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness
#endNF2 #NF2awareness #neurofibromatosis type2 #NF2SWN
#NF2support

[Gilbert Family Foundation @GilbertFamilyFd]

Kalyan Vinnakota, Ph.D., leads the Vision Restoration Initiative, comprised of a "dream team" of experts who are focused on developing viable therapies for NF patients

Learn more about his work in this post: https://t.co/1b6eSIMrVt
#CureNF #EndNF #NFAwareness

[Prof. Toshi Yokota PhD FCAHS @MD_Canada Res Chair @ToshifumiYokota]

Connolly et al report the effectiveness of pamrevlumab, an antibody that targets connective tissue growth factor, for #DMD. Slower declines in muscle and respiratory capacity were observed though they acknowledge the need for trials with control groups. https://t.co/vf1uBj5oEi

[NF Forward @NFForward]

On May 17, 2023, landmarks across the world lit up in blue and green for the Shine a Light Campaign promoting NF awareness. Many buildings across Detroit showed their support for National NF Awareness Day. Thank you to all the participating buildings💙💚
#EndNF #ShineALightonNF

[NF Patients United @NfPatients]

Join #NF ACADEMY in Lisbon, Portugal this summer 💙💚! Learn about 🧬NF🧬, #advocacy, and facing challenges. Open to NF patients aged 18-30, siblings, and parents. Apply by May 29th. More information here: https://t.co/dMdU6GFe5Y

[NF Patients United @NfPatients]

Support our future NF Ambassadors 💙💚
Donate now: https://t.co/nmWCXU33Qt

#NFAcademy #NF

[Little Sad Monster @lsadmonster]

Cute & 可爱 & Đáng yêu & Maganda & Manis & schattig & liebenswert & Carino & fofo & Adorable & Милый & Encantador & 可愛い & 귀엽다
#kids #Children #cute #cuteboys
#NF1 #NFResearch #Neurofibromatosis
#NFSupport #endnf #makenfvisible #nfhero #NFAwarenessDay
@Mia425Mia

[NF Bot @NFBot2]

Machine learning in rare disease - https://t.co/d2rwlDZykD
https://t.co/wJxCQyH1n1