Top Tweets for #NNConference16
There was laughter,& there were tears,& hopefully even some laughter through tears.#NNconference16 https://t.co/S7JIZzKHpt
Did you miss me at #NNConference16 last weekend? You're in luck! The video is COMING SOON! #dietfornarcolepsy https://t.co/HQYxPeMeaB
Thank you to everyone who attended my session Diet for Narcolepsy. It was an honor to share my family's story w/you. #NNConference16
Fellow PWN - help me hit our $1K fundraising goal for @NarcolepsyNtwrk in the NYC Marathon on Nov 6! https://t.co/lqVEoLHcRT #NNConference16
Thank you to Narcolepsy Network for having me at the #NNConference16! Fantastic sessions and great connections! #careaboutRARE!
If you have a child with narcolepsy, definitely check out @ClaireCrisp1′s blog at https://t.co/rqD0J0VoMi #NNConference16
.@ClaireCrisp1 on the inevitability of haters: “My job isn’t to make everyone happy, it’s to tell my story” #NNConference16
.@ClaireCrisp1 “Write like no one but yourself is going to read it – certainly not your mother.” #NNConference16
.@ClaireCrisp1 recommends getting started as a write by reading “The Essential Guide to Getting Your Book Published” #NNConference16
.@ClaireCrisp1, narcolepsy author extraordinaire, says she didn’t have very many books at home as a child #NNConference16
We would love to hear how @NarcolepsyNtwrk has made an impact in your life: https://t.co/7KoBn6olNa #NNConference16
#NNConference16 @EndangeredSpec9 we cannot continue to ignore dehumanization, decimation and unfair discrimination against PWN in Africa
.@GlobalGenes isn’t an expert in any one rare disease – they help each community raise awareness, build toolkits, and more #NNConference16
On average it takes 8 years and over 10 specialists to be diagnosed with a rare disease. #NNConference16
#NNConference16 @endangeredspec9. SOS. STOP the ongoing genocide, democide, xenocide of PWN in South Africa. RT
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