Top Tweets for #NotAboutMeWithoutMe
The rise of data translators could bring transparency to healthcare https://t.co/2TEKigkGnd via @DHBusTech #notaboutmewithoutme @Oracle
Hope DSWs all recovering from energetic away day yesterday?! #BCUHBdementia Thanks amazing Ceryl Davies & Louise Prendergast @BangorUni for superb indep eval which will lead to many actions 🙌🤩 Fab working with you. So impt to share with DSWs first. #NotAboutMeWithoutMe

Seven Insights on How Data Analytics Is Transforming Healthcare https://t.co/9XNJILAUSG via @baylor #notaboutmewithoutme @marxtango
Today’s first session kicks off with @bycLIVE session on #Votes@16. Packed space with many interested this vital issue. #NotAboutMeWithoutMe #BeHeard @natyouthagency

Looking forward to another day of learning @CWPT_NHS
This time with the one and only @BILD_tweets, building on Positive Behaviour Support skills!
@LDChangingCare
#helpingpeoplestaywell #cwptadultneuroteam #adhd
#treatmewell #notaboutmewithoutme #MentalHealthAwarenessWeek

#notaboutmewithoutme we need to listen to the self advocates, they are the expects. @Yloves1 @WIHDCmtySuptNet @GetWIHDit @NY_NYCASE @connCASE @casecec @pineprogram1 @rethinkfirst @ProjectSEARCHHQ
Parent and staff together learning about supported decision making for their children @WIHDCmtySuptNet @NaomiBrickel #transitionplanning #notaboutmewithoutme #dignityofdecisions @NY_NYCASE

A unique time in history. #changethetrajectory #assumecompetence #notaboutmewithoutme @casecec @NY_NYCASE @WIHDCmtySuptNet @connCASE @SquarePegLabs @NaomiBrickel
Now is a crucial time in education as the work we do now will shape the future. We need to take advantage of ESSER funding and build educator expertise so we can see the benefits of our efforts for many years to come! Together, we can shape the future!

It is vitally important the true scale of this tragedy is reported accurately by those who were there #NotAboutMeWithoutMe @HaemoSocUK_PI @HaemophiliaNI @HaemophiliaScot @bloodinquiry @Beno_esq @samstein @BirchgroveGroup @CampaignTB @Factor8W @APPG_HIV_AIDS @HealthAPPG @UNAIDS
@THTorguk @bloodinquiry The contaminated blood products used in the 70’s & 80’s infected almost every haemophiliac in the UK approx 5000 with #Hepatitis viruses & includes 1249 with #HIV #AIDS This disaster destroyed an entire community if you had been truly interested over the past 40 years you’d know
@FDAPatientinfo @US_FDA Patients who are dying of diseases affected by those medical products should be given a seat at the table & all those meetings must be transparent
#NotaboutMeWithoutMe
#MorrisPrinciples
@sandymorris333 @iamalsorg @als_now @stevens_nation @bsw5020 @nicolecimbura @petenajarian
If FDA employees attend May 25 #ALS mtg in their official capacity, the Open Meeting Law applies. #ALSA can't "schedule" a meeting & pretend it's not an FDA meeting as they are discussing issues over which @Us_FDA has jurisdiction. 5 USC 552b(b)
#NotAboutMeWithoutMe
@SecBecerra

NOPE! @FDACBER @US_FDA @DrWoodcockFDA ALSA does NOT represent the "ALS community". By Federal LAW, the FDA must allow public observation of ALL meetings. It took less than 48 HOURS for CEO Balas to break her own promise! It is time for Balas to resign or be removed by the BOT!

NOPE! @FDACBER @US_FDA @DrWoodcockFDA ALSA does NOT represent the "ALS community". By Federal LAW, the FDA must allow public observation of ALL meetings. It took less than 48 HOURS for CEO Balas to break her own promise! It is time for Balas to resign or be removed by the BOT!

Here is an amazing way to use @thoughtxchng right now. Asking for parent input on spending new stimulus funds. #notaboutmewithoutme
https://t.co/j4yWC76L3r
#notaboutmewithoutme Expert: Houston has a role to play at the dawn of health care consumerization https://t.co/l0V1qjgp26
@marxtango So is the patient. The most underutilized member of the healthcare delivery team, and the only constant in the delivery of care. Why dont we ask them to help? #notaboutmewithoutme
@Stephabee_ @intersexfacts You have #blm in your bio.
Have you heard of the rather basic advocacy concept of #notaboutmewithoutme?
You should desist from tying 'intersex' to transgender, when they have absolutely nothing to do with each other.
You're making an embarrassment of yourself.
It Starts with the Patient - Jen Horonjeff - Spencer Health Solutions #Podcast https://t.co/QpryjHdOsX by @jhoronjeff @savvy_coop #NotAboutMeWithoutMe

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