Top Tweets for #NuOwn
You're not alone. People in an #ALS stem cell trial have extended survival by YEARS beyond ALS natural history. #NuOwn has slowed/halted lethal paralysis since 2011 in Israel and since 2015 in US.
The survival data (OS PFS TFS) beats the survival data used to support cancer therapies' accelerated approval.
• 5 yr survival rate: 100% EAP vs 20% natural history (p=0.0006)
• 7+ yr trach-free survival vs 2.5 yr natural history
• Up to 17 months progression-free survival
• Up to 85% L/T slowing in lethal ALS progression
• 23 objective biomarkers that show target engagement & statistically significant changes in neuroinflammation neurodegeneration & neuroprotection. And 15/23 (p≤0.001)
#LivingProof #NurOwnWorks #ALS #EndALS #patientvoice #Neurology #Neuroscience
Story deserves attention: Totality of Ph 3 data demands @US_FDA discusion of whether #NuOwn can advance understanding of #ALS disease mechanisms. Implications for #MultipleSclerosis #RareDisease Talk to: @nicolecimbura @pjgreen @bsw5020 @aVoice4ALS
@VPResearch_ALS Q: 1) will you and/or @ALSMNDAlliance chair Balas (from @alsassociation) also ask @Biogen to unblind VALOR asap- like #NuOwn? 2) ask @US_FDA approve BOTH drugs immediately 3) #NurOwn EAP successes will speak w/you both. Will you speak with them? Great opportunity!
This is the sort of optimism we need to get #DrugsinBodies for #ALS. The chair of the International Alliance of ALS/MND promoting #Tofersen. But why was it among the first to rush to declare #NuOwn's Ph.3 data a failure? Now, in proper light we see the bias. Correction? #ALSBIAS
Anyway, this was just one of a few points for anyone who might be wrestling with the apparent contradiction between the headlines that say "failed trial" & some language to the opposite. /5
@alsassociation won’t ask @realDonaldTrump for a @ExectiveOrder We fight for all #pALS who will die before #NuOwn Ph III trial done. #SAVE ADY & all #pALS! This is a #bipartisan PLEA! @VP @FDACommissioner @SenRonJohnson @SenTedCruz @DNC @GOP
Two years ago, I shared my story with Jeff Flake. And each and every day since, I've shared my story again.
And now — long after I'm gone — others will still be able to share it too.
Eyes to the Wind. On sale today. Get yours: https://t.co/dW6aVyXMkJ
"One of the many reasons #WhyIFight my daughter."
"We need #NuOwn now!"
@potus @VP @SenRonJohnson @SecAzar @cylebo @marykayturner1 @FDACommissioner @FDACBER @LauraCaliguiri @RepBrianFitz @KenCalvert @RepJasonCrow @RepTerriSewell @JimLangevin @RepHuffman @SenTedCruz @jennifersks
C25D1 Radicava✅ One of the many reasons #WhyIFight my daughter @FordKeriann came over today to be with Dad. Her Special Day is next July! 💍#1Goal @US_FDA @BrainstormCell we need #NuOwn now! Let’s #EndALS #IAMALS #EverySecondCounts https://t.co/yORQ1uffH8
This is my Aunt Chrissy. She has worked hard her whole life and now needs your help. Please help her! Allow her to just TRY #NUOWN #als #nomorexcuses @realDonaldTrump @SpeakerPelosi @SenateGOP @SenateDems @als_now @FoxNews @CNN @MSNBC @WRCB @wdefnews12
C25D1 Radicava✅ One of the many reasons #WhyIFight my daughter @FordKeriann came over today to be with Dad. Her Special Day is next July! 💍#1Goal @US_FDA @BrainstormCell we need #NuOwn now! Let’s #EndALS #IAMALS #EverySecondCounts https://t.co/yORQ1uffH8
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