Top Tweets for #OneRBWorld2017
CRRAB members presented on the importance of #PatientEngagement in #retinoblastoma research and the development of CRRAB and its governance structure at the 2017 One #RB World Conference in Washington, DC.
#CRRABHighlights #OneRbWorld2017 #EyeCancer #KnowTheGlow #LookSharpForRB
No one knows #retinoblastoma like the parents and survivors who live this journey every day. Their #ThroughOurEyes insights at #OneRbWorld2017 are powerful education about the reality of living with childhood eye cancer and its lifelong effects... https://t.co/i0oGc1Kzlx
#OneRbWorld2017 Chair, WE C Hope USA President & #retinoblastoma survivor, Marissa Gonzalez shared her reflections from the innovative Washington D.C. event. She’s excited to co-host #OneRbWorld2020, a virtual event due to COVID19. Watch out for updates! https://t.co/IKWr7cwFhT
#OneRbWorld2017 included all who are impacted by #retinoblastoma, parents, survivors, medical professionals & scientists. Find out what they thought of this #collaborative event & watch for details of #OneRbWorld2020, a virtual event to be held this Fall! https://t.co/ZrcGgv2jjJ
#OneRbWorld2017 included all who are impacted by #retinoblastoma, parents, survivors, medical professionals & scientists. Find out what they thought of this #collaborative event, & watch for details of #OneRbWorld2020, a virtual event to be held this Fall! https://t.co/ZrcGgv2jjJ
No one knows #retinoblastoma better than parents & survivors who live it daily. They shared powerful insights on the “Through Our Eyes” wall at #OneRbWorld2017. They highlight realities of #ChildhoodCancer & priority #research & care needs. https://t.co/ui7HUllkFx #FridayRead
“#Doctors from #Ghana, #Canada & #Australia working together at #OneRbWorld2017, and sharing their expertise with each other truly defines ‘global #collaboration’.” Marissa Gonzalez, #retinoblastoma survivor & WE C Hope USA President. #HealthTalk #PedOnc https://t.co/PBExpSw7m4
"#OneRbWorld2017 #LiveStream to the world. I recognised 1 of my families listening [middle of the night for them] & home didn’t feel so far away." Sandra Staffieri, #Retinoblastoma Care Coordinator @RCHMelbourne. https://t.co/QTVn8KAZxH
#OneRBWorld2017 included all impacted by #retinoblastoma. #Survivors have vital knowledge and experience that helps improve diagnosis, care & support for children and throughout life. Hear from some of our participants: https://t.co/AYYWf1SGsE
Parent & survivor #retinoblastoma FAQ #inspired #OneRbWorld2017 program. Advancing care #EyeCancer care for children and throughout life. Hear from some of the parents who participated in #WashingtonDC: https://t.co/9oo9j8aspG
#Collaboration saves lives and sight for kids with #EyeCancer. Replace I with WE & even illness becomes wellness! #OneRbWorld2017 participants share what this means to them: https://t.co/fwAln58b9H
#EngagedParents #WorkingTogether with #survivors and the medical community help create a bright future #overcoming #ChildEyeCancer. Hear from parents united with hope at #OneRbWorld2017: https://t.co/9oo9j8s3he
#ThankYou #OneRbWorld2017 participants, helping to build the future of #EvidenceBasedCare for children with #EyeCancer. Some of our participants share their thoughts on the event. https://t.co/fwAln58b9H #ChildhoodCancer #retinoblastoma #CancerResearch #Collaboration
#OneRbWorld2017, innovating parent, survivor, physician & researcher #collaboration for best #retinoblastoma care. Hear from some of the participants: https://t.co/fwAln58b9H #ChildhoodCancer #CancerResearch #Momcology #PedOnc #OcularOncology #Ophthalmology
#ChildhoodCancer #Survivors at #OneRbWorld2017 reflect on #WorkingTogether with medical professionals and parents to advance best #retinoblastoma treatment and life-long care: https://t.co/AYYWf1SGsE
#Retinoblastoma #CancerSurvivors deserve best care possible. #EngagedPatients are strong self-advocates and help advance care for all. Survivors participating in #OneRbWorld2017 explain why #collaboration is important to them. https://t.co/AYYWf1SGsE #ChildhoodCancer
No one knows #ChildhoodCancer like the parents who care for their affected children. Parents can contribute so much to improve #retinoblastoma diagnosis, treatment & care. Hear from some who participated in #OneRbWorld2017, https://t.co/9oo9j8aspG #Momcology #CancerResearch
#OneRbWorld2017 included all who are impacted by #retinoblastoma, parents, survivors, medical professionals & researchers. Find out what they thought of this #innovative #collaborative event: https://t.co/ZrcGgv2jjJ #ChildhoodCancer #CancerSurvivors #CancerResearch
“Doctors who take time to get to know their patients make everything so much less painful. It helps us feel more comfortable asking questions. Please take that time.” https://t.co/i0oGc1Kzlx #ThroughOurEyes #OneRbWorld2017
“We get the immediate of #EyeExams & MRIs but what about things we should be doing or monitoring to protect our child's future health, people to talk to about integrating our child in a school environment and all of that.” https://t.co/i0oGc1Kzlx #ThroughOurEyes #OneRbWorld2017
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