Top Tweets for #PACEgate
Of course @TheLancet did:
"The Lancet applauded the decision with an editorial titled “Paolo Macchiarini Is Not Guilty of Scientific Misconduct.”
#pacetrial #pacegate
https://t.co/0LGUQjwSAz
Very pleased to see the paper has over 7500 reads in 1st week. It has also been accessed over 4000 times since it was posted on ResearchGate.
Not sure the #PACEtrial investigators will be so pleased to see these figures. 😀
Please keep sharing it around
https://t.co/JGnLCSXH2C
I approached 1 internationally respected British epidemiologist: ‘look, what a disaster the #PACEgate re-analyses show!” He only would concede problems on both side of the debate, but indisputably ‘one RCT should not set medical and social policy.’
Thank you, Sten. That is the issue. By the usual standards, the claims being made are unjustified by the evidence. It’s also insane one clinical trial has been given so much importance in defining what is effective for patients with too sick to get into the trail. This is nuts.
#MEcfs patients have a strong case to make that they are being bullied by medical institutions worldwide.
I feel @CoyneoftheRealm, @TomKindlon & @DavidTuller1 have pissed away the moral & scientific high ground that #pwme had.
But ultimately; the patients are responsible here.
3/ I wrote 50+ blog posts in real time about topics like my assisting patients to get the data for reanalysis that are now only accessible thru patient sites. The posts bust a lot of myths. Ex: PACE investigators successfully blocked me from writing commentary for #PACEgate.
UK psychologists who treat functional disorders or medically unexplained symptoms (MUMs) have a well-deserved bad reputation. Did you ever hear of #PACEgate?
– The final part in David J Black’s forensic examination of the ME/CFS scandal looks at alleged scientific misconduct and a possible cover-up.
#PACEgate
#PACEtrial
5/6
David J Black: Fact, law, and a spoonful of jurisprudence https://t.co/qNWSlKwt8r
– claimed a “cabal of activists” insisted that “the real cause of ME/CFS was an as yet undiscovered virus, and anyone who demurred was involved in an elaborate conspiracy”. the SMC nominated him for a 2012 Science Journalist of the Year Award, which he duly won.
#PACEgate
4/6
David J Black: Welcome to the machine https://t.co/pc1UQyHrXU
– If ME/CFS could be classed as an ‘all in the head’ condition, then benefit payments and insurance claims would be massively reduced.
#PACEtrial
#PACEgate
3/6
David J Black: PACE-gate. Have we been Waddelled? https://t.co/mBTaVbOfGh
An article by @julierehmeyer (from 2016) which deserves to be brought into the light again
#PACEtrial
#BadScience
#FlawedResearch
#PACEgate
"By contrast, in the American research community, no serious researchers were expressing doubts about the organic basis for the illness."
I've been waiting five years to write this story: Bad science misled millions with #mecfs. We fought back and won. https://t.co/07bCK5xidh…
The #PACEtrial
Psychiatrists + some ‘researchers’ + friends (incl a certain public relations body?) showing a reaction of fear when starting to see their funding and careers are threatened?
💰💰💰💰💰💰💰
#PACEgate
The journal then ran a special edition on the PACE trial & most authors agreed with my observations about the flawed PACE trial: so if the 18 PACE authors now have some new names to add to their list, it wont change my analysis of their biased RCT evidence https://t.co/Fh5q5zCNVM
Original thread in German: https://t.co/F0Idaj187N
#StopTheHarm
#flawedScience
#MyalgicE
#MEcfs
#LongCovid
#PACEgate
#PACEtrial
#IQWIG
#MEawarenesshour
@TomKindlon
@ME_Intl
🧵Die Empfehlung des IQWiG zu GET bei milder und moderater ME wird viele Patient:innen in die Bettlägerigkeit bringen. Sie bezieht sich auf das diskreditierte PACE Trial. Statistikprofessor Bruce Levin bezeichnete PACE als «Höhepunkt des Amateurismus bei klinischen Studien».
1/22
En Reino Unido se va Boris por el #Partygate y en Colombia a pesar del #PaceGate nos toca aguantarnos a Porky y sus secuaces hasta el último momento.
I would like to ask George Davey Smith now that NICE guidelines are changed: Are you comfortable with the viciousness with which you tried to keep the #PACEgate issue of Journal of health psychology from being published?
The problem is that, to an outsider, it all looks the same. However, the fact that something looks the same, does not necessarily mean that it is the same.
#ClimateGate and #PaceGate are very different beasts - because one is true scandal and the other was not.
@ClagueNjc36 @PhysiosForME actually there was a RSM conference meeting on this issue by some CFS researchers and the minutes of that meeting show they specifically decided to put out stories into the media via the SMC, that they were being attacked, and to link ME patients with climate or animal activists.
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