Top Tweets for #PELHS
So proud of #PELHS research coordinator Natasha Basma for her outstanding presentation at #AES2022 #Epidemiology SIG! This study of Mortality in Pediatric Epilepsy suggests #SUDEP counseling, rescue meds, and support for #PrimaryCare could help decrease the risk for death.
.@DrZachGrinspan of #WCMpeds led the annual Pediatric Epilepsy Learning Healthcare System #PELHS virtual meeting on Friday to brainstorm new projects, develop strategies to reduce epilepsy mortality, and advance quality improvement initiatives.
@Child_Neurology Lots of #NeuroHero friends met yesterday for the #PELHS annual meeting - working together to improve care for children with #Epilepsy! What a great team! @DrZachGrinspan @PedsEpilepsyDoc @AmyZampi @ErinFedakDO @alisonkukla
3/3
...this means that the Information Content (IC) is U-shaped.
...we can examine this in our #PELHS/#ELHS dataset of >32,000 individuals.
...having absence seizures before 2y is >2x informative as during the typical age.
@EpilepsyFdn @IlaeWeb @RareEpilepsy @RareDiseases
A new study by @DrZachGrinspan of #WCMPeds, #WCM student Rachel Arnesen & recent graduates, Drs. Pooja Shah & Michelle Yun, describes and validates new quality of life questions for children with epilepsy and seizures. https://t.co/MyH1Bh4C7s #PELHS #PELHS-QOL-2
#AES2021 Presidential Symposium | @Go3than Ethan Goldberg on how to generate large-scale, reliable clinical epilepsy data: use Standardized Data Elements (SDE) in the EMR @AmEpilepsySoc @epilepsyfdn | #ELHS #PELHS
https://t.co/k59V0m9kWb
Great talk with @DrZachGrinspan, Maria Cilio, & Tristan Sands. Merging advanced data analytics, expert medical skill and intuition to drive innovation and improved outcomes. #pelhs #epilespy @AmEpilepsySoc #AES2021
Y la #PELHS porque lleva todavía los dedos pintados de henna🤔 que no se lava las manos o qué?
#ZaferBizimdir
@charidiazbernal @missevasiones El como últimamente en plan déspota 😡
#PELHS🤮#LasChicasDelSable
#BamsiBey
Just finished our pediatric epilepsy learning healthcare system #PELHS leadership meeting. Love this group which is led by @DrZachGrinspan
Also, @Child_Neurology has great information to use for #SUDEP education. Was developed by multiple stakeholders including @DannyDidOrg, @youngsally and others. Literally having r #PELHS leadership meeting of what intermediate outcomes can be measured for when #SUDEP ed given.
@AmyGDalaMD @PedsEpilepsyDoc @AANMember There is! Is it included in a #quality guideline for #epilepsy care? I ask because I honestly don’t know and, if it isn’t, we probably should look to include it! If it is, then thanks to Twitter for learning me something new!
📢 GROUP ANNOUNCEMENT 📢
Here are the 32 teams that are joining us tomorrow for the Mixed PL Primary Stars Tournament! ⚽️
@PLCommunities @sportinherts @HertfordshireFA @HertsLearning #WatfordFC
Congratulations to the Year 4 boys' football team on their 3-2 win against Oxhey Wood yesterday. The boys came from 2-0 down to clench victory! MOTM: Hadi. #resilience
@MissTobieLHS @HeadLHS @PSTLHS @MissBanksLHS #peLHS
Thank you for joining us at this year's Pediatric Epilepsy Learning Healthcare System! We are grateful to engage with this incredible network of patients, families, clinicians and researchers who are committed to continuous improvement in #epilepsy care.
#PELHS @WeillCornell
Sarah Hueneke, Manager of the National Coordinating Center, is thrilled to be invited to @WeillCornell for the annual Pediatric Epilepsy Learning Healthcare System where they focused on PDSA cycles and tests of change to improve quality of care in kids with #epilepsy. #PELHS
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