Top Tweets for #PPMSAwareness
Realities of living with PPMS. Out at Lana Del Rey last night, home late and up early for an appointment. My body is now extremely sore and depleted of all energy stores.
Trying to live a semi-normal life is impossible.
#LivingwithPPMS #ppmsawareness
The struggle is real. Everyday activities like going to the cinema or shopping can leave me utterly drained. I wish I could be the normal mammy I dream of, free from the chains of PPMS. If you relate, know you’re not alone. 💔 #LivingwithPPMS #PPMSAwareness #shiftms @shiftms
Saturday mornings are my mornings to get the hair done and a training session in.
The afternoon comprises of my body, punishing me for such acts of self-care
#thisisppms #ppmsiswhatihave #primaryprogressivems #ppmsawareness #ppmsjourney #livingwithppms
Sunday "Hike" Training.
Just under half the goal distance tackled. Foot-drop is not as bad when using the navigait device helping me to keep control of my foot.
#livingwithppms #ppmsawareness #ppmsandme #Hike #hiketraining
Hoovering the car is the worst form of cardio, 20 mins, & I'm dead. I will be snoozing on the sofa for the day. PPMS is a bitch, fatigue can set in so quickly, I hate how something so small can take the life out of me.
#livingwithppms #ppmsandme #ppmsawareness #ppms
Last year, i attended my first work eveny in my wheelchair. This year, I was able to go using just the crutches. Been amazing to see the progress.
ppms can get fucked, i won't let it beat me no matter what.
#livingwithppms #ppmsawareness #ppms #ppmsandme
Living with a chronic illness is tough. There is a lot I don't share
#livingwithppms #ppmsawareness #ppmsandme #primaryprogressivemultiplesclerosis #unashamedlychelle
Hack Squat and RDLs... building leg strength. Hopefully, I will help with the balance and walking.
The gym is my happy place. The place I'm not disabled and push myself to do more.
#livingwithppms #ppmsandme #ppmsawareness #strengthsession #workout
Sure what else would I do on my day off...
Living with Primary Progressive Multiple Sclerosis is tough. So I need to keep the strength up for the battles I have
#livingwithppms #ppmsiswhatihave #ppmsawareness
September is chronic pain awareness month. I live in chronic pain, and I'm in bad pain with my legs and back atm.
But chronic pain is invisible, and unless I mention it (which I dont), you wouldn't know.
#livingwithppms #chronicpain #ppmsawareness #ppms
Getting the walks in as per the physio's instructions. It is tough as hell, and the weather makes the symptoms worse. After that, it's an ice-pack on the knee to ease the pain.
#livingwithppms #primaryprogressivems #ppmsandme #ppmsiswhatihave #ppmsawareness #ppmsdiagnosis
Self-Care Saturday..
It's the same schedule as every saturday, gym session, then hairdressers.
Self-care is so important, especially when living with a chronic illness such as #PPMS. Gotta keep up the exercise for the head just as much as the body
#PPMSAWARENESS #PPMSFIGHTER
MS is known as an invisible illness for a reason.
All but one of my symptoms are invisible. As someone said to me "if you didn't know you have MS you would think you are the picture of health"
#ppmsjourney #ppmsawareness #livingwithppms #whatyousee #invisibleillness
Today is brought to me by pain, fatigue, and brain fog.
All combining to hand me my punishment for attempting to live my life on my terms.
We fuck PPMS, these tough symptoms can go to hell
#livingwithppms #ppmsawareness #primaryprogressivems
What my monthly med box looks like. This is just my medications. The normal family first aid box is half the size of this.
#livingwithppms #ppmsiswhatihave #ppmsawareness #shiftdotms #fuckppms
There is nothing like a trip to the hairdressers to cheer me up. After a stressful day and the post infusion hangover, it's nice to feel human
#livingwithppms #ppmsawareness #ppmsandme #ppmsjourney #ppmsiswhatihave
Some good news from the physio.. they reckon with some work I can get back to single crutch/walking stick walking..
Really thought it was going to be bad news
#livingwithppms #ppmsawareness #ppmsjourney #ppmsandme
2 hours, I spent just 2 hours out with my family, and I'm spent.
I am struggling to stay awake for the match. My body is shutting down again.
I fucking hate MS, I hate how it is robbing me of normal family life
#livingwithppms #livingwithadisability #ppmsawareness
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