Top Tweets for #primaryprogressivems
Almost new tattoo time. A new addition to the left arm sleeve.. πͺ men hit 40 and look to buy a new, more powerful car. I hit 40 and decided it was time to get not 1 but 2 full arm tattoo sleeves.
#tattoos #sleeves #ilovetattoos #primaryprogressivems #Limerick #allstarink
Saturday mornings are my mornings to get the hair done and a training session in.
The afternoon comprises of my body, punishing me for such acts of self-care
#thisisppms #ppmsiswhatihave #primaryprogressivems #ppmsawareness #ppmsjourney #livingwithppms
Thanks to @MSIRELAND for this fab children's activity book. Helping to explain MS to our 8 year old
#livingwithppms #primaryprogressivems #ppms
And I'm off.. thanks to @cllr_ginokenny for the help in getting an OT to do the assessment. Andrew not only did the assessment he constantly chased them and I recieved the kit today
@AccessForAll7 @CMDIRL @MSIRELAND
#livingwithppms #primaryprogressivems #ppms #wheelchairuser
Woohoo, I just got word that my ne adapted technology for my wheelchair had been approved and is being fitted next week
#livingwithppms #primaryprogressivems #wheelchairuser #adaptivetechnology
2 sides of my life.
Pornstar Martini is my cocktail of choice...
Monster to get me through an Irish wedding.
#livingwithppms #primaryprogressivems #livinglifeonmyterms
And the session is done. I can't make the gym in the morning, so a day early it is.
Upper body session and 3km on the bike. Both coach and physio have me on the bike for cardio and to help the legs.
#livingwithppms #primaryprogressivems #ppmsandme
Getting the walks in as per the physio's instructions. It is tough as hell, and the weather makes the symptoms worse. After that, it's an ice-pack on the knee to ease the pain.
#livingwithppms #primaryprogressivems #ppmsandme #ppmsiswhatihave #ppmsawareness #ppmsdiagnosis
Any of my MS buddies ever try Fampyra? It was recommended to me to possibly help my walking?
I've never heard of it so not sure π
#livingwithppms #ppmssucks #msireland #shiftms #primaryprogressivems
If you didn't know id Primary Progressive Multiple Sclerosis, you would think I looked well..
Not only am I not well I am in excruciating pain
#livingwithppms #primaryprogressivems #ppmsandme #ppmsjourney
MS is known as an invisible illness for a reason.
All but one of my symptoms are invisible. As someone said to me "if you didn't know you have MS you would think you are the picture of health"
#ppmsjourney #ppmsawareness #livingwithppms #whatyousee #invisibleillness
Self-care Saturday always means a gym sessions, hair appointment and some weeks the nails get done.
What do you do for self-care. For your mental health
#livingwithppms #livingwithms #ppmsandme #ppmsdiagnosis #primaryprogressivems #ppmsiswhatihave #unashamedlychelle
Fatigue is kicking my ass.. think a nap is in order before I head out to meet family.
Ive a full-on weekend, so I will need lots of coffee and monster to get through.
It's by far the worst #multiplesclerosis symptom
#livingwithppms #primaryprogressivems #livinglifeonmyterms
Self care is so important. Even more so when you are living with a chronic illness. I love having hair done and the staff all look after me so much when I'm on the salon.
#livingwithppms #livinglifeonmyterms #primaryprogressivems
When the insomnia hits with the PPMS, the only thing for it is to hit the gym.
#livingwithppms #livinglifeonmyterms #primaryprogressivems
Today is brought to me by pain, fatigue, and brain fog.
All combining to hand me my punishment for attempting to live my life on my terms.
We fuck PPMS, these tough symptoms can go to hell
#livingwithppms #ppmsawareness #primaryprogressivems
The difference 24 hours makes.
Day 4 post infusion and I feel so much more human.
I'm still struggling with the neuropathic knee pain but I've energy so that's a plus
#livingwithppms #livingwithadisability #primaryprogressivems #msireland
I swear if the doctors tell me I need more medications I will rattle as I walk.. These aren't even including the other pain meds that I take.
Living with MS is no joke. I live in pain all day, every day. I just don't mention it.
#livingwithppms #primaryprogressivems #shiftms
Some days just call for comfort. having new symptoms and struggling with them and their effects.
Fake a smile, pretend to everyone bar those close to me that everything is okay
#livingwithppms #primaryprogressivems
#shiftms
Some heat therapy on the legs after a short training session IYKYK. I'm fightin against the effects that ppms has on my legs by refusing to give up & to keep training. 30mins 3x a week plus a tredmill walk every day to build back up.
#livingwithadisability #primaryprogressivems
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