Top Tweets for #PatientFocusedResearch
#HNF has been conducting #patientfocusedresearch dating back to 2007 when HNF launched its first funded research study titled, What It’s Like To Live with #CharcotMarieTooth (CMT): The Stories of Those Who Know it Best. #cmtwegotthis https://t.co/55LbVNgOHd
More good news from @CancerTrialCork @CUH_Cork! It's great to see so many trials moving forward across @UCCCancerTrials oncology #clinicaltrials units in our region. @BonsCancerCork @CancerTrialsUHW @CRF_CORK @hrbireland @UCCMedHealth #PatientFocusedResearch
Amazing News! Last week, we randomized our first patient to the DESTINY-05 trial in @CUH_Cork and patient has commenced treatment 🙌 This study compares T-DXd VS T-DM1 in patients with high-risk HER2+ BC. Well done team! @UCCCancerTrials @RoisinMConnolly @CanResUCC #CancerTrials
Mbayene and Ngaye villages in Louga, Senegal really embody La Téranga. We engaged the communities to better understand from their perspective how #Mycetoma affects them as a society and how they would want R&D to work for them.
#NTDs #PatientFocusedResearch
Brilliant work Siobhan and team! Driving research priorities and methodologies that align with the needs and experiences of the patients themselves. 👏👏
#patientfocusedresearch #clinicaltrials
Enormous and hearty 👏💪👊 to @SiobhanGaynor whose Metastatic Breast Cancer study - a real, living example of patient-led research - has received ethical approval from @RCSI_Irl!
Congrats to Siobhan, her PCC colleagues, to @McLoughlinSarah & Emer in CTI @Seamusoreilly18 for all the hard work!
Poster session done ✅
#AirwayStenosis #SwallowAware2023 #PatientFocusedResearch
@justinroe @CMarthaAlex @DrGuriSandhu @ClinicLvs @ImperialSandC @ImperialNHS
#DRS2023
Had a very insightful discussion with members of Breast Cancer now on the use of routinely collected data for research, and I was reminded how important it is to conduct #patientdriven and #patientfocusedresearch #PPI
We're delighted to have been awarded this @hrbireland Knowledge Translation Award and very excited about working with @MTU_Crawford Art Therapy Department and @CancerTrialCork @UCCCancerTrials!
#arttherapy #patientfocusedresearch #knowledgetranslation
Congratulations to Professor Roisin Connolly @RoisinMConnolly @UCCCancerTrials @UCC who received @hrbireland KTA award for her #research project 'Art4Knowledge - Art Therapy for Knowledge Exchange between UCC CTG patients with #cancer, their families and clinical trials teams'.
Our Director @RoisinMConnolly representing 🇮🇪, @UCC @UCCMedHealth @UCCCancerTrials in San Antonio today 💪 #SABCS22
@CancerTrialCork @CUH_Cork #clinicaltrials #translationalresearch #patientfocusedresearch
#SABCS
@RoisinMConnolly discusses updates in HER2+ breast ca
-Imaging biomarkers of response promising & non-invasive
-Carefully designed clinical trials & biomarker development can change practice
-great progress being made to optimise tx decisions for pts @UCCCancerTrials
Fab graphic harvest of Session I at our recent Retreat! Thx to Helen O'Keeffe @MTU_Crawford for capturing the main themes and ideas 🖌️ #clinicaltrials #patientfocusedresearch @CancerTrialCork @CancerTrialsUHW @BonsCancerCork @Dcollinsflynn @lraigal @RoisinMConnolly @conlethmurphy
Fantastic news from our Waterford Team!!
#clinicaltrials #cancerresearch #patientfocusedresearch
@UHW_Waterford @CanResUCC @hrbireland @CancerTrialCork @CRF_CORK @BonsCancerCork @RoisinMConnolly
Delighted to announce that the SGNTV-003/ENGOT Cx12 study is now open for recruitment at UHW! We are the only centre in the country in a position to offer this study to suitable cervical cancer patients-many thanks to all involved in getting this up and running! @UCCCancerTrials
We're so excited about this project, launching on Friday at our Annual Retreat with collaborators @MTU_Crawford! Art4Knowledge will allow sharing of experiences and perceptions, improving patient/caregiver relations. Read more 👉 https://t.co/q7UoDd4yOC #patientfocusedresearch
Thrilled @RoisinMConnolly is among @UCC researchers awarded @hrbireland Knowledge Translation Award! Her Art4Knowledge project offers an Art Therapy intervention to patients, their families AND @UCCCancerTrials teams, exploring perceptions, addressing fears around #clinicaltrials
Dr Brendan Noonan highlights the #LiamMcTrial @CancerTrialCork @CUH_Cork in Nov's @HospitalProNews. The @IrishCancerSoc-funded trial, led by Dr Noonan @uccnursmid and Dr Richard Bambury @CanResUCC addresses unmet needs of male cancer survivors. #MensHealth #patientfocusedresearch
It's MBC Awareness Day. We have been lucky to have @Sonyaly08539163 working with us as a patient advocate on many projects, including on the Scientific Advisory Board of @UCCCancerTrials, helping us to understand the patient perspective. #PPI #patientfocusedresearch
"It is not enough for us to just target the cancer. Supports need to become available for all that is going on in the background."
On Metastatic Breast Cancer Awareness Day, we are grateful to have patient Sonya Lynch share her own written work with us: https://t.co/yqr7xeOF9b
Wishing could have been there today to honour Gerry O’Sullivan. Ongoing collaboration & forging new connections will no doubt continue his amazing legacy in translational cancer research. @CanResUCC @UCCCancerTrials @CancerTrialCork #PatientFocusedResearch
Lovely occasion the opening 9f the Gerry O'Sullivan Memorial Park in Caheragh WestCork today, with many wonderful speakers inc Prof Luke O' Neill & @orlabdolan Great to meet up with @DeclanSoden @SLMcKennaLab @TraceyODonovan5 Orla Barry @BreakthroCancer @CanResUCC
Thank you to the @CVRIDublin research team for decorating my office space in celebration of completing patient recruitment 🎉 feels good to reach this milestone in my PhD journey..thanks for all the support @SWaTRCSI @materprivate #patientfocusedresearch #phdjourney
Looking forward to this @cancertrials_ie event and chairing on disease-specific group function/goals. How can we improve our clinical trial portfolio, communication, support home-grown academic trials? @Dcollinsflynn @DrJNaidoo @dgpower @aduffy74 et al #PatientFocusedResearch
Registration is now open for 🇮🇪’s inaugural Cancer Retreat, w/ opening address from An Taoiseach @MichealMartinTD
🖊️Sign up here: https://t.co/ogKu3mohoh
Registration page includes agenda, rationale and more.
#CancerRetreat2021
@Seamusoreilly18 @RoisinMConnolly
An initiative worth modelling for charities thinking about #PPI work #HealthResearchMatters #PatientFocusedResearch #Collaboration #ImprovingOutcomes @HRCIreland
Anne Marie O'Dowd of HRCI member @CystinosisIrl tells the briefing they have set up a Global Community Advisory Board for Cystinosis (mentored by @eurordis) which has had real impact in engaging with industry #HealthResearchMatters
Again this month, Allison Moore with #Vitaccess at a conference spreading the word on the importance of #RealWorldData for the #CMT patient community. #charcotmarietooth #patientfocusedresearch #pharnext #HNF #ISPOR @vitaccess @Pharnext
Carly we are honored to have you represent the #PatientVoice for @LADAOrg at #Lupus2018! #LupusChat #PatientFocusedResearch @Lupus_Chat
🔊 Advocacy Alert: Here at the #Lupus 21st Century 2018 Conference with @LADAOrg! Excited for all the new data I get to soak in, this weekend!! Stay tuned for updates throughout the next few days. #LupusChat
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