#PheFree - Twitter Hashtag

almost 4 years ago

Quirks of #PKU: Tomatos are #PheFree so we can eat those without counting. Same with the expensive slow-roasted or sun-blush tomatos. But sun-dried tomatos (fast roasted & drier) are higher in phe and must be counted. Confused? Grab the PKU Bite app from @NSPKU. #LivingWithPKU

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Kevin Whelan @ProfWhelan

about 4 years ago

People with #Phenylketonuria should restrict dietary protein to avoid #phenylalanine then supplement with #PheFree protein What is the the impact on protein status in #PKU? Our scoping review of 70 studies by @SarahFirmanRD @OllyWitard @MajellaOKeeffe 👉🏽https://t.co/NTNUmegEXH

ProfWhelan's tweet photo. People with #Phenylketonuria should restrict dietary protein to avoid #phenylalanine then supplement with #PheFree protein

What is the the impact on protein status in #PKU?

Our scoping review of 70 studies by @SarahFirmanRD @OllyWitard @MajellaOKeeffe
👉🏽https://t.co/NTNUmegEXH https://t.co/V5j5kqImyR

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Pauline O'Connor @poconnor

almost 5 years ago

A blast from the PigPen past this week: As the new routine of school and work settle in, here are four tasty dinner ideas for the busy PKU folks out there. #PKU #PheFree #LowPhe https://t.co/HlOGKDhamA

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Akshay Singh @asingh88

about 5 years ago

School Snacks Mevalia Bread Sticks Herb Butter Unsalted Grass Fed Butter Parsley Mint Tarragon Corriander Salt Pepper #lowprotein #phenylketonuriafood #phefree #homemade #pkuandproud ⁦@macdonj⁩ ⁦@NSPKU⁩ ⁦@mevalia_uk⁩ ⁦@VitafloRDs⁩

asingh88's tweet photo. School Snacks
Mevalia Bread Sticks

Herb Butter
Unsalted Grass Fed Butter
Parsley
Mint
Tarragon
Corriander
Salt
Pepper

#lowprotein #phenylketonuriafood #phefree #homemade #pkuandproud ⁦@macdonj⁩ ⁦@NSPKU⁩ ⁦@mevalia_uk⁩ ⁦@VitafloRDs⁩ https://t.co/gaDY42n5oE

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Akshay Singh @asingh88

over 5 years ago

Happy Easter 🐣 Mevalia Low Protein Easter Egg Homemade Icing sugar and design #eastersunday #sundayfunday #bankholidayweekend #hunt #lowprotein #mevalia #inclusive #pkufood #phefree #choco #yum #icing #treat @NSPKU @macdonj

asingh88's tweet photo. Happy Easter 🐣

Mevalia Low Protein Easter Egg
Homemade Icing sugar and design

#eastersunday #sundayfunday #bankholidayweekend #hunt #lowprotein #mevalia #inclusive #pkufood #phefree #choco #yum #icing #treat @NSPKU @macdonj https://t.co/aYhIZhZw5d

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Pauline O'Connor @poconnor

over 5 years ago

To celebrate the new season on the PigPen blog, I've dusted off recipes for quick & easy #Spring lunches at home. A #LowPhe 'waldorf' salad along side a #PheFree Mac & Cheese for one and easy soups for batch cooking. https://t.co/6snh73VBWv

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Pauline O'Connor @poconnor

over 5 years ago

New recipes on the PigPen blog. I love it when someone with #PKU can use a 'normal' recipe. This week I tried out a #PheFree carrot soup, & delicious #LowPhe cookies. The chewy cookies were 0.5 Phe for two, but we all need a bit of a treat right now. https://t.co/XrlR1nEaMK

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PHEFREE Consortium @PHEFREE_Info

almost 6 years ago

The 1st Annual PHEFREE Consortium Scientific Meeting has begun! First up is Dr. Desiree White who will speak about the #Neuropsychology of #Hyperphenylalaninemia. #phefreetogether2020 #phefree #PKU #research

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PHEFREE Consortium @PHEFREE_Info

almost 6 years ago

The PHEFREE Research Fellowship Application is now open for submissions! #phe #research #phefree #pku @rarediseasesnet https://t.co/ESypse1h8p

PHEFREE_Info's tweet photo. The PHEFREE Research Fellowship Application is now open for submissions! #phe #research #phefree #pku @rarediseasesnet https://t.co/ESypse1h8p https://t.co/tQHLvrgplm

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PHEFREE Consortium @PHEFREE_Info

about 6 years ago

Join us this Thursday, July 9th for the @NPKUA_Info virtual research update! PHEFREE’s Dr. Cary Harding will be presenting on Gene Editing Approaches to PKU 😯 Register here: https://t.co/ZSTIk2iqPK @OHSUNews @NPKUA_Info #geneediting #PKU #PKUawareness #PKUinthistogether #PHEFREE

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Stephanie Hicks @HeySHicks

over 7 years ago

#PKU awareness day!!!! Want to know more ? Ask me!!! My 11 year is #pkustrong #PHEFREE #Emmett

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Duncan Noble-Nesbitt @DNobleNesbitt

almost 8 years ago

Been asked what my holiday #pku experiment was. B&B and eating out all other food choosing #phefree from the menus where ever possible, having substitute when hungry or small meal. Took 4 small cartons prozero and substitute only.

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