Top Tweets for #Pscsupport
The liver is the ultimate multi-tasker, managing hundreds of essential functions every single day, from filtering toxins to processing nutrients. Understanding what the liver does makes it easier to understand what PSC patients go through.
#PSCSupport #LiverDisease #LiverHealth
The ballot results are OUT! If you were lucky enough to score a place in the 2027 London Marathon: CONGRATULATIONS! π We'd love for you to bring your ballot place to #TeamPSCSupport! Join the team today!
π https://t.co/jxPvvy3XLv
#LondonMarathon #PSCSupport #BallotPlace
These early safety results open the door for a much larger clinical trial. Read the full update here: https://t.co/WHlqAPTTBF π #PSCSupport #PSCResearch #RareDisease (2/2)
Let's replace myths with facts. Learn more: https://t.co/1zoGI3CAW6 π
#PSCSupport #PrimarySclerosingCholangitis #MythsVsFacts #RareDisease #LetsBeatPSC
Small seed grants lead to massive discoveries! Dr Sun used preliminary data from a study funded by #PSCSupport to secure a prestigious MRC Clinical Research Training Fellowship. Heβs now diving deep into genetic drivers of primary sclerosing cholangitis. https://t.co/YJhPqL4Ii0
Thank you to Lorraine, one of our incredible Facebook moderators! π
For nearly 14 years, Lorraine has been a reassuring voice in our community, helping our online support group grow from just 200 members to over 5,000. #LetsBeatPSC #VolunteersWeek #PSCSupport #ThankYou
GOOD LUCK to Becky at the #GreatBirminghamRun next month! π Taking on a her 4th half marathon is no small feat, but she's doing it for a very special reason - supporting her partner, Kaine and raising much-needed funds for #PSCSupport. https://t.co/ahNBWW9MY4 #LetsBeatPSC
AMAZING NEWS! Following Dr Joshi's video last week, the Loizias Foundation has generously offered to MATCH every donation up to his Β£5,000 target! π€©
That means Β£1 becomes Β£2! A huge thank you to the foundation.
Donate here: https://t.co/JpjksCWpxg #LetsBeatPSC #PSCSupport
She did it!
After only managing limoted training due to injury,and living with a chronic illness (PSC), Amy completed the Brighton Marathon.
Thank you to all who donated to her fundraising page, I know this helped her in moments of doubt!
She has raised Β£3147.00!
#PSCSupport
Good luck to our incredible #TeamPSCSupport taking on @ParisMarathon today! We're so proud to have you represent #PSCSupport in Paris. Join us in wishing them good luck!
If you've ever considered running for us, check this out:
π https://t.co/yvUHoyms11 #LetsBeatPSC
Living with PSC can feel like learning a second language. Itβs okay to feel overwhelmed by what youβre told in the clinic room. Our specialist Helpline Nurse, Loren, is here for you.π Book a slot: https://t.co/buxH0Y3i8I
#PSCSupport #RareDisease #LetsBeatPSC @HelplinesUK
Huge thank you to Jenny, Sophie and their entire community for raising awareness of PSC and vital funds for the PSC community.
#PSCSupport #LetsBeatPSC #RareDiseaseAwareness #CommunityChampion #PrimarySclerosingCholangitis #RareDiseaseDayEveryDay
Join us in wishing Dylan the very best of luck this Sunday as he takes on the Bath Half Marathon to support his brother Alex, who was diagnosed with PSC in 2021.
https://t.co/yqBqRtcpB4
#LetsBeatPSC #BathHalf #PSCSupport #FundraisingHero #GoodLuckDylan
15 years into her journey, Parastoo shares what it means to be a mother, professional, and #AutoimmuneWarrior while living with a #RareDisease.
Read her story for #RareDiseaseDay: https://t.co/muZlJ031s1
#PSCSupport #ChronicIllness #PSC #LetsBeatPSC @rarediseaseday
Last week in Prague, Martine Walmsley and Dr. Nora Cazzagon presented the ERN RARE-LIVER PSC Working Groupβs achievements and 2026 strategy. π¨πΏ
Read the full report:
π https://t.co/2wg7Aw8zjc
#PSCSupport #ERNRareLiver #RareDisease #PatientAdvocacy #LetsBeatPSC
π£ Martine Walmsley & Mark Chatterley are now leading #PSCSupport. Together, they're turning ambition into action, focusing on world-class research & providing fact-checked, quality-assured information our community relies on.
Full update: https://t.co/TNL1AGGZ7S #LetsBeatPSC
Help improve psychological support for liver transplant patients & families. @UKODTRN wants to hear from you. Your anonymous responses will directly shape future support services. Closes: 22 Feb. π https://t.co/AhThdghzIz
#LiverTransplant #PSCSupport #PatientVoice #UKODTRN
Myth: Only older people get PSC. Fact: PSC can affect anyone at any age, even children.
Itβs time to stop misconceptions. Letβs replace myths with facts to ensure no one faces this #RareDisease alone.
Learn more: https://t.co/IhyxLYbLBf
#PSCSupport #LetsBeatPSC #LiverDisease
New #PSCSupport research finds high ALP associated with decreased protective genes in the small intestine in #PSC. This suggests the small intestine could be a key target for future treatments, perhaps via the #gutmicrobiome.
Full details: https://t.co/drpDgQ9gg8
#Mission2030
Why does PSC research matter? π¬
Because Stewart matters. You matter. The PSC community matters.
Help us support more people like Stewart by becoming a monthly donor. Read his story and support our work today: https://t.co/Up89eKepjj
#PSCSupport #OrganDonation #letsbeatpsc
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