Top Tweets for #RareConversations
Great morning talking about the policy change we need to support family caregivers of people living with rare diseases! From strengthening #Medicaid to #PaidleaveForAll there’s so much more we need to do to value family caregivers! #RareConversations
“There’s a critical need for Medicaid to step up to center the needs of family caregivers.” Our President & CEO @jason_r_DC at #RareConversations alongside leaders from @EveryLifeOrg @alliancerm & @AlexionPharma
“There’s a critical need for Medicaid to step up to center the needs of family caregivers.” Our President & CEO @jason_r_DC at #RareConversations alongside leaders from @EveryLifeOrg @alliancerm & @AlexionPharma
What 3 words come to mind when you think of cell & #genetherapy? Hearing more from patient community leaders from @EveryLifeOrg @alliancerm @NA4Caregiving on policy opportunities and challenges at today’s #RareConversations.
Congresswoman @cathymcmorris shares how her role as a mother and family caregiver for her son has shaped her work in Congress. #RareConversations
Great to hear from @HouseCommerce Chair @cathymcmorris at @NECouncil member @AlexionPharmaUS’ #RareConversations event in DC this morning.
#RareConversations is next week! Join us for a half-day policy forum with members from across the #RareDisease ecosystem as we discuss how to foster more rapid, patient-centered development and access to innovative treatments. Register now: https://t.co/J4jWC8oB9N
I worked with @heatherwhiteofc in @russfeingold’s office where she was a force OF and FOR nature. Can’t wait to talk to her for #RareConversations! Please join us.
Join us on September 14 for a Rare Conversation with @heatherwhiteofc, author of @onegreenthing, and Rare's @zlowe.
They'll discuss how individual #ClimateAction fits into the climate solutions puzzle and how it can also help counter #ClimateAnxiety.
⏪On 13 OCT 2022, @AlexionPharma held a high-level conference, as part of its #RareConversations event series, offering an insightful look into the possibilities for the future of the #raredisease ecosystem.
Our Recap➡️ https://t.co/3HrjAT5re6
Together4RD was delighted to support #RareConversations yesterday, and engage with & support other initiatives working to drive innovation in #rarediseases
“We can not afford to go below our initial ambitions.” EUCOPE’s Vittoria Carraro discusses the need a predictable and attractive regulatory framework to drive innovation and better patient access for #rarediseases. #RareConversations @AlexionPharma @LucyintheskyLu
Broad consensus on need for more ambition #EUPharmaStrategy?
See @EPHA_EU Natsis in 2021 stressing EU's dependence on "the other side of the Atlantic"
#RareConversations w/ @yann_eurordis @TomislavSokol @AlexionPharma @EUCOPE @EFPIA
“We can not afford to go below our initial ambitions.” EUCOPE’s Vittoria Carraro discusses the need a predictable and attractive regulatory framework to drive innovation and better patient access for #rarediseases. #RareConversations @AlexionPharma @LucyintheskyLu
@yann_eurordis point abt EU lagging behind and call for more ambition echoes Yannis Natsis' concern abt EU's "dependence to US the heart of pharma R&D" at @EPHA_EU #A2M event in June 2021:
👉📺https://t.co/efiHLQPalH
#RareConversations .@odexpertgroup .@EUCOPE .@EFPIA
"We want Europe to be attractive. Not that (medical) science comes from here, goes to the US to be developed, then comes back to us as a product" - @yann_eurordis @ #RareConversations - hear, hear, Yann! 👏 @odexpertgroup
Thanks to Julia Wahl for presenting our proposal at the #RareConversations Conference! It is a pleasure to present to you the results of our work and to contribute to the discussions on the upcoming revision of the #OMP regulation.
"We want Europe to be attractive. Not that (medical) science comes from here, goes to the US to be developed, then comes back to us as a product" - @yann_eurordis @ #RareConversations - hear, hear, Yann! 👏 @odexpertgroup
At the #RareConversations Conference this afternoon, @yann_eurordis will be discussing the revision of OMP Regulation, and how the rare disease ecosystem can achieve sustainable improvement on key issues, including access to treatment.
✍ Register now 👉 https://t.co/3xcX9jnCR7
⏰ 1 week left!⏰
On 13 October, @yann_eurordis will join the #RareConversations Conference 2022. Register now to discover which future rare disease policies can pioneer the way towards a resilient ecosystem.
📍 Brussels and online
🔗 Register here: https://t.co/7kh3zFkJnB
💡On 13 October, we will join the #RareConversations Conference 2022, in the splendid setting of Bibliothèque Solvay (Brussels). We will discuss which future rare disease policies can pioneer the way towards a resilient ecosystem.
🔗 Register here: https://t.co/Hy0OWxucYW
💡On 13 October, we will join the #RareConversations Conference 2022, in the splendid setting of Bibliothèque Solvay (#Brussels). We will discuss which future #raredisease policies can pioneer the way towards a resilient ecosystem.
🔗 Register: https://t.co/9h4u4izgF1
💡On 13 October, the #RareConversations Conference 2022 will discuss which future #raredisease policies can pioneer the way towards a resilient ecosystem.
🔗 Register: https://t.co/9h4u4iQRwz
Our very own @whitworth_group @RhonaMacLeod4 at the launch of @_i_MRare So incredibly proud and privileged to be part of this rare community #MRCC #ManchesterRareConditionsCentre #RareDisease #RareConversations #RareFrequencies
Last Seen Hashtags on Sotwe
awekpadu
Seen from Malaysia
Bennybbc
Seen from Chile
미발이_주의
Seen from United States
byStealth
Seen from United States
anxiouspanda
Seen from Netherlands
ritmocadênciaetradição
Seen from United States
FODショート
Seen from United States
desiaunty
Seen from United States
packniña
Seen from Chile
kayserigay
Seen from Turkey
Trends for you
Most Popular Users
Elon Musk 
@elonmusk
241.5M followers
Barack Obama
@barackobama
118.9M followers
Cristiano Ronaldo
@cristiano
114.6M followers
Donald J. Trump
@realdonaldtrump
111.8M followers
Narendra Modi
@narendramodi
107.1M followers
Rihanna
@rihanna
98.7M followers
NASA
@nasa
92.3M followers
Justin Bieber
@justinbieber
91.8M followers
KATY PERRY
@katyperry
90M followers
Taylor Swift
@taylorswift13
84M followers
Lady Gaga
@ladygaga
75.5M followers
Virat Kohli
@imvkohli
73.5M followers
Kim Kardashian
@kimkardashian
70.9M followers
YouTube
@youtube
68.8M followers
Neymar Jr
@neymarjr
66.5M followers
Bill Gates
@billgates
65.2M followers
Selena Gomez
@selenagomez
63.1M followers
The Ellen Show
@theellenshow
62.2M followers
CNN
@cnn
61.8M followers
X
@x
60.7M followers