Top Tweets for #RareLeader
Akpabio represents a rare breed of public servants with both vision and action. #RareLeader
Absolutely agree‼️
@annamalai_k Ji is not just a leader, but a visionary patriot shaping the future of Tamil Nadu and Bharat with courage, clarity & commitment.
Truly a rare gem and a priceless asset to our nation!
🪷🙏🏻🪷
#Annamalai #NationFirst #RareLeader #BJPForTN #ModiGuarantee #VoiceOfTamilNadu #IndiaProud #NaMo2024 #TamizhThee
A rare leader, Dr. Manmohan Singh achieved monumental strides through his actions: Gautam Adani
https://t.co/22ztg3Ld0t
#GautamAdani #ManmohanSingh #Tribute #RareLeader #Legacy #MonumentalAchievements #Respect #IndiaMourns #DrManmohanSingh #Inspiration
#Rarediseaseday as a #raremom, #raredaughter, #rarepatient & #rareleader. I'm blessed with a multidisciplinary team. Not everyone does. #Equity is key for 300M people worldwide affected by #rarediseases. Social opportunity, healthcare & access to diagnosis & therapies is needed.
Whatever the case may be, there's something brave about Dr. John Pombe Magufuli,
President of Chama Cha Mapinduzi.
Call him "Bulldozer" for #GettingThingsDone.
I positive that he has hetched something in books as a #TrueAfrican.
This is something of a #RareLeader!
Are you a #rareLeader in the nonprofit space? If so, we need to hear from you! Contribute to RAMs solution-based approach by sharing your #realworld experiences thru the #CollaborateforRareLives survey. It should only take about 15 mins. https://t.co/LgCT3Rb5R1
Thanks in advance!
Thank you to @GlobalGenes for profiling our Managing Director @jmgraglia as a #RareLeader and helping to raise the profile of #SYNGAP1!
https://t.co/FMr6Yws3tw
We feel fortunate to have @EricsonKatrin leading the charge as our ED. She's spot on regarding why we like working with her. Thank you to @GlobalGenes for recognizing her as a #RareLeader, and spreading the word about RUNX1-FPD. #runx1 #runx1awareness
Community Member Monday: Meet RARE Leader Katrin Ericson, whose chance meeting with a fellow scientist launched her into the world of advocacy and research for rare rare blood disorder #RUNX1. https://t.co/RdjwRj4kzy
This #RareLeader is raising awareness for the #cysticfibrosis community by being transparent about the lives of those living with #CF. #Fight2Breathe
https://t.co/aSYkwYq6rz
Becky Hardiman had no personal connection when she embarked on her PhD in challenging behavioiur in #FragileXSyndrome. Little did Becky know she would end up as CEO of the @fragilexuk
Here Becky shares her experiences as a #RareLeader https://t.co/GAtZEzw9zF
Announcing Caryl Harris, our newest member of RAM! Check out this amazing #rareLeader at https://t.co/Fdps7ZcKIX
#rareadvocacy #rarediseases #patientadvocacy #averyshope
Inspired by her brother and hopeful about what's the come, @LGS_Foundation executive director Christina SanInocencio shares a few guiding principles for the organization and where things are headed. #CareAboutRare #raredisease #RareLeader
https://t.co/XkwF5j4mNP
After her daughter was diagnosed with #STXBP1, Charlene Son Rigby made it her mission to create awareness for the #raredisease. Read how this #RareLeader is working to find a cure. @curestxbp1 #CareAboutRare
https://t.co/SGi6Qi3NRS
"Treat your donors like friends and family. Be persistent. And self-reflect often to learn from your mistakes and adapt." #RareLeader Justin Porcano outlines @savesightnow's future and how he recognizes the people who help him along the way. #raredisease
https://t.co/hkkgh35kOY
After a heart attack, @TheFHFoundation founder Katherine Wilemon became determined to bring awareness to familial hypercholesterolemia, a lifethreatening genentic disease that often goes undiagnosed. #RareLeader
https://t.co/t6yr5cdGdH
"The organization is driven by the frustration that a lot of rare disease families feel."
@CureRareDisease founder Rich Horgan turned his frustration into passion and is bridging the gap between researchers and a cure for #raredisease. #RareLeader
https://t.co/mHmkT7PLxt
"We get it done. We are on a mission to save our children and it shows in the quality of our work."
Kim Tuminello, co-founder @CreatineInfo, is driven by a simple mission. Hear from this #RareLeader on how her organization is working to find treatment.
https://t.co/Ujj8rbGgl5
"Listen to the people who are living this unimaginable life and use your programs to meet their needs."
Patricia Weltin, CEO of @BeyondtheDx, shares how the organization is working to make a difference in #raredisease. #RareLeader
https://t.co/1FWoQeyA1r
Running a #raredisease organization, creating an adaptive clothing line and blogging. Keisha Greaves does a little bit of everything to bring awareness to the rare disease community through her organization @girlschronical1. #RareLeader #CareAboutRare
https://t.co/SMGXapTQVl
"We cannot be afraid to try things. We are going to fail and make mistakes, but we must continue to try new things and implement a better idea next time."
Nathan Peck, founder of Cure VCP, doesn't let setbacks stop him. #RareLeader @LostTexanInGA
https://t.co/noSaY9V82w
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