Top Tweets for #RareNotAlone
Muchas gracias por contar con nosotros y también por todo el trabajo que hacéis y la visibilidad que dais a estas enfermedades 👏👏👏
#RareNotAlone
Hoy se celebra el Día Mundial de las Enfermedades Raras.
Con este video queremos reivindicar más investigación, equidad en el diagnóstico y tratamiento, un cribado neonatal ampliado e igualitario, inclusión y la creación de la especialidad de Genética!
https://t.co/Ix3OfJRq6f
Millions in India endure challenging #RareDiseases, battling not just medical issues but also stigma and discrimination. On #RareDiseaseDay, let's unite, break the stigma, and raise awareness for a more compassionate world.
#RareNotAlone
Financial burdens, lack of awareness, and geographic isolation shouldn't dictate access to care.
With each hand we join, we bridge the gap towards an equitable care for people with rare diseases.
#RareNotAlone #RareDiseaseDay #CareHealthInsurance #HealthInsurancePolicies
72% Rare diseases are rooted in DNA whilst other may be the result of hidden risk factors, allergies or environmental causes.
This #RareDiseasesDay, let’s come together to spread awareness about these hidden conditions.
#RarenotAlone #Rarediseaseday #carehealthinsurance
Every child deserves a chance at a healthy life. Be their voice, spread awareness against Rare Diseases. #RareNotAlone
#RareNotAlone #RareDiseaseDay #CareHealthInsurance #HealthInsurancePolicies #FamilyHealthInsurance #AffordableHealthInsurance #Health #Care
#GivingTuesday and Every. Darn. Day. @MegsMiracles gives us inspiration in the quest to find better treatments and a cure for #StiffPersonSyndrome. Join the mission at https://t.co/y9WLTOWGzG #RareAsOne #RareNotAlone #kickingSPS
This #GivingTuesday we're giving ❤️ to doctor, healer, educator @MaggieYuMD for inviting Tara to discuss #SPS. Support the quest for better treatments & a cure for #StiffPersonSyndrome at https://t.co/y9WLTOWGzG #RareAsOne #RareNotAlone #GivingIsTrending
Giving thanks this #GivingTuesday to my alma mater @VCUdentistry for helping raise awareness of #SPS #RareDisease 😊 Support the quest for better treatments & a cure for #StiffPersonSyndrome at https://t.co/y9WLTOWGzG #RareAsOne #RareNotAlone #GivingIsTrending
We are on a mission to find better treatments and a cure for #StiffPersonSyndrome; join us at https://t.co/RFb2Nf3HmE #GivingIsTrending #RareAsOne #RareNotAlone #sps #GivingTuesday
💚CDG:A Community of HOPE!💚
Bélen Pérez is an amazing 👩🔬#CDGResearcher dedicated to developing innovative therapies 4 CDG 💊🧬#PharmacologicalChaperones
More at https://t.co/rPjA30fXPS
She gives us HOPE!💚
#CDGCommunity #RareNotAlone
https://t.co/3ajSKyh4OJ
#VideoAbstract for the new paper about immunological involvement in CDG!
Read the paper here: https://t.co/JXf8rAQuHM
#rarenotalone #CDGResearch #CDGcommunity #CDGawareness
@CarlotaPascoal @worldCDG @FCTNOVA @UCIBIO_Research @Metab_ERN #CEDOC
https://t.co/dqIqAbqTcj
💚CDG:A Community of HOPE!💚
Merell Liddle👩🦰has don it ALL: 👩🔬research partner;👩🏫conference speaker; 🗣communication expert;👊empowering advocate & loving Mom!
She gives us HOPE!💚
#CDGCommunity #RareNotAlone
https://t.co/B9Ipyrpmbx
💚CDG:A Community of HOPE!💚
Starring today in our #CDGAwareness campaign is Barbara Vulso 👩🎤:
-> CDG Mom + fierce advocate 👊<-
She gives us HOPE!💚
#CDGCommunity #CDGDiversity #RareNotAlone
https://t.co/9PAFF8g3uh
@CDG_MDPhD @UK_CDG @CDGCAREorg @cdgsindrome @AmourFund @VJsapps
💚CDG: A Community of HOPE!💚
We are 🔙 w/ an outstanding #CDGProfessional:
👨⚕️ Dr Andrew Edmondson who is full-heartedly committed to his #CDG patients + 🌍 #CDGCommunity
He gives us HOPE!💚
#CDGCommunity #CDGDiversity #RareNotAlone
@UK_CDG @CDGCAREorg @cdgcanada @VJsapps
💚CDG:A Community of HOPE!💚
👱♀️Holly Carmichael is a CDG Mom+Advocate searching 4 Maggie's Cure.Through her personal journey she is helping the #CDGCommunity 👨🔬👨👩👧👩⚕️
She gives us HOPE!💚
#RareNotAlone @CDG_MDPhD @PerlaraPBC @CDGCAREorg @R_altassan @VJsapps
https://t.co/99du5ctPhT
🆕CDG:a Community of HOPE💚
⏰Starting 25 March⏰
This is us❗️The CDG Community:
📍Made of daring families,courageous patients,committed professionals https://t.co/MLVc68EPcE
#RareNotAlone #CDGCommunity
@CDG_MDPhD @UK_CDG @cdgsindrome @R_altassan @VJsapps @AmourFund @Metab_ERN
Have you added your star? https://t.co/MuHmdO9ycR @rarediseaseuk #CureMSD #RareDiseases #rarediseaseweek #Rarenotalone
Living without hope isn't an option for our children and their families. #CureMSD #RareDisease #rarenotalone
Are you planning to donate to the United MSD Foundation on November 27? Join us today for a FB Live at 11:30 a.m. CT to learn how you can maximize your donation. #CureMSD #GivingTuesday #raredisease #rarenotalone
This would be a great story for @TODAYshow @MissMeghanMack - it has had a wide reach via social media and rings true for the millions of #rare caregivers in the US today! #rarenotalone
Our story is now told - this is just about one mom or one disease but the millions facing #raredisease. Please stand with us to declare #rarenotalone and help us #curemsd! https://t.co/aYCnEsjTap
Last Seen Hashtags on Sotwe
momson #nolimits() +filter:native_video
Seen from Chile
vamosalco
Seen from Kenya
डूंगर_बरंडा_स्टेशन_नामकरण_हो
Seen from Saudi Arabia
teenage #nolimit
Seen from United States
AllNatural
Seen from Germany
monkeyapp
Seen from Canada
somno
Seen from United States
AlvaroBarreroBuitrago
Seen from Kenya
avnexpo2026
nolimit t.co filter:native_video
Seen from United States
Most Popular Users
Elon Musk 
@elonmusk
240.8M followers
Barack Obama
@barackobama
119.2M followers
Donald J. Trump
@realdonaldtrump
111.7M followers
Cristiano Ronaldo
@cristiano
111.1M followers
Narendra Modi
@narendramodi
107M followers
Rihanna
@rihanna
97.8M followers
NASA
@nasa
92.2M followers
Justin Bieber
@justinbieber
91M followers
KATY PERRY
@katyperry
87.9M followers
Taylor Swift
@taylorswift13
81.7M followers
Lady Gaga
@ladygaga
73.3M followers
Virat Kohli
@imvkohli
70.3M followers
Kim Kardashian
@kimkardashian
69.9M followers
YouTube
@youtube
68.7M followers
Bill Gates
@billgates
64M followers
Neymar Jr
@neymarjr
63.1M followers
The Ellen Show
@theellenshow
62.4M followers
CNN
@cnn
61.9M followers
Selena Gomez
@selenagomez
61M followers
X
@x
60.8M followers