#RareShowcase2020 - Twitter Hashtag

over 5 years ago

We were honoured to have Allison Watson of @Ring20UK & @timbuckinx of @wrepihunter speak at our #RareShowcase2020 back in November. Allison & Tim discussed how they worked together to create a new #Wearable for #Epilepsy patients. They also spoke at👉 https://t.co/yj7ZlJsynA

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

#DidYouKnow our Projects Administrator will support the delivery and administration of our Rare Disease Showcase series? The #RareShowcase2020 was our most successful event to date, so we need you to help us make it bigger & better for 2021! Apply now👉 https://t.co/MdrPc9Naex

RareBeacon's tweet photo. #DidYouKnow our Projects Administrator will support the delivery and administration of our Rare Disease Showcase series?

The #RareShowcase2020 was our most successful event to date, so we need you to help us make it bigger & better for 2021!

Apply now👉 https://t.co/MdrPc9Naex https://t.co/sD0LS1FYN1

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

A big thank you to @DryShockley for the lovely shout out on @CrohnscastO last week! Dan spoke so highly of not only @RDStudentVoice and our #International #RareShowcase2020, but also getting to work with us as a #RareDisease #Advocate Listen now👉 https://t.co/ClyKrFotk8

RareBeacon's tweet photo. A big thank you to @DryShockley for the lovely shout out on @CrohnscastO last week!

Dan spoke so highly of not only @RDStudentVoice and our #International #RareShowcase2020, but also getting to work with us as a #RareDisease #Advocate

Listen now👉 https://t.co/ClyKrFotk8 https://t.co/43KF8K6gUA

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

We learnt so much about #Genomics in #Genomics101 with #GeneticCounsellor Gemma Chandratillake! Learning is best done through #Cats🐈 & Gemma's tortoishell example showed us why female cats can be affected by X-linked diseases too. What did you learn at the #RareShowcase2020?

RareBeacon's tweet photo. We learnt so much about #Genomics in #Genomics101 with #GeneticCounsellor Gemma Chandratillake!

Learning is best done through #Cats🐈 & Gemma's tortoishell example showed us why female cats can be affected by X-linked diseases too.

What did you learn at the #RareShowcase2020? https://t.co/qdpG2YnDkM

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

Did you miss Tarquin's presentation on "How to make the most out of digital networking" at the #RareShowcase2020? Have no fear! You can watch the recording now on our YouTube channel. Watch here👉https://t.co/wgzSWgcpgo

RareBeacon's tweet photo. Did you miss Tarquin's presentation on "How to make the most out of digital networking" at the #RareShowcase2020?

Have no fear! You can watch the recording now on our YouTube channel.

Watch here👉https://t.co/wgzSWgcpgo https://t.co/phiU11MmRi

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

Weren't able to attend one of the main stage sessions during our #RareShowcase2020? No worries! You can watch all six of our main stage sessions on-demand on the Swapcard platform until Friday. Log into Swapcard now to catch up on all the action🥳 👉https://t.co/kMT0prngG1

RareBeacon's tweet photo. Weren't able to attend one of the main stage sessions during our #RareShowcase2020?

No worries! You can watch all six of our main stage sessions on-demand on the Swapcard platform until Friday.

Log into Swapcard now to catch up on all the action🥳

👉https://t.co/kMT0prngG1 https://t.co/gLmRw6wkmz

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

It's the end of the month, which means our #November #Newsletter comes out this week! Catch our review of the #RareShowcase2020 & @RDStudentVoice, plus see what's coming down the pipeline in December. #Subscribe to our #MailingLists now! 👉https://t.co/IHyMYvAzZe

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

Has our #RareShowcase2020 left you wanting to learn more about the role of new technologies & #DigitalEndpoints in improving #ClinicalTrials for #RareDiseases? Attend @healx's webinar TOMORROW with @Tay_Sachs, @aparitohealth, @MDUK_News & Casimir! Book👉https://t.co/OSwW8T5t2y

RareBeacon's tweet photo. Has our #RareShowcase2020 left you wanting to learn more about the role of new technologies & #DigitalEndpoints in improving #ClinicalTrials for #RareDiseases?

Attend @healx's webinar TOMORROW with @Tay_Sachs, @aparitohealth, @MDUK_News & Casimir!

Book👉https://t.co/OSwW8T5t2y https://t.co/Lt3DB0nw4D

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

Good morning!🌞 We're back and feeling refreshed after a weekend of some much needed R&R😴 Were we dreaming or was the #RareShowcase2020 our most successful event yet?! Thank you to everyone who attended and made this showcase one to remember. It was the highlight of our year!

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adam lawrence @munkee74

almost 6 years ago

New blog post - details of my @findacure_fdn #RareShowcase2020 lightning talk https://t.co/V4rbScQIWy including a link to my slides! #RareDisease #HereditarySpasticParaplegia #HSP

munkee74's tweet photo. New blog post - details of my @findacure_fdn #RareShowcase2020 lightning talk https://t.co/V4rbScQIWy including a link to my slides! #RareDisease #HereditarySpasticParaplegia #HSP https://t.co/qxnrtGEGP9

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

350+ rare disease advocates 25+ hours of virtual content 50+ speakers and 20+ sessions all led up to 1 incredible #RareShowcase2020! Thank you to everyone who attended our first-ever Virtual Rare Disease Showcase - we hope you had as much fun as we did! See you next time😄

RareBeacon's tweet photo. 350+ rare disease advocates
25+ hours of virtual content
50+ speakers and
20+ sessions all led up to
1 incredible #RareShowcase2020!

Thank you to everyone who attended our first-ever Virtual Rare Disease Showcase - we hope you had as much fun as we did!

See you next time😄 https://t.co/Psj6ZMyo5u

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Ataxia_aware CIO 1184030 (previously Ataxia_and_me @Ataxia_aware

almost 6 years ago

Thank you team @findacure_fdn #RareShowcase2020

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Ataxia_aware CIO 1184030 (previously Ataxia_and_me @Ataxia_aware

almost 6 years ago

Ashley @HDAssocNI speaks at the lightening talks @findacure_fdn #RareShowcase2020 🛎

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

What's the perfect way to end the #RareShowcase2020? With a few closing words from our Co-Founder & Chair, Dr. Nick Sireau, of course! Hear from Nick on how far Findacure & the rare disease community have come over the past eight years and learn his hopes for the future!🦓

RareBeacon's tweet photo. What's the perfect way to end the #RareShowcase2020?

With a few closing words from our Co-Founder & Chair, Dr. Nick Sireau, of course!

Hear from Nick on how far Findacure & the rare disease community have come over the past eight years and learn his hopes for the future!🦓 https://t.co/nM5yqprFyZ

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Beacon for Rare Diseases @RareBeacon

almost 6 years ago

Can you believe it?! We've reached the FINAL theme of the #RareShowcase2020! We've been welcomed back from lunch with an exciting session entitled, "A new era: re-envisioning the clinical trial landscape" Say hello to our amazing speakers who are presenting LIVE on Swapcard NOW