Top Tweets for #ReCONNET
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Don't forget to register for this @ERN_RECONNET Webinar ๐ we will discuss the burden of relapsing #polychondritis in terms of quality of life (QoL) based on the first results of the #ReCONNET RP-QoL study ๐ฅ
๐@ern_reconnet webinar:
"Exploring the Impact of Relapsing Polychondritis on Quality of Life"
๐๏ธOctober 22nd- 6pm
Are you or a loved one affected by Relapsing Polychondritis (RP)?
Join us for a webinar on quality of life in RP.
โ๏ธ Register here: https://t.co/czHgTLI9cu
The future of medicine is already here, to stay. Coming soon to rheumatology? Provocative talk by Prof @r_burmester #ReCONNET congress
Itโs on, the first ReCONNET congress on rare and low-prevalence connective tissue and musculoskeletal diseases! #ERN #ReCONNET #rarediseases #CTDs #RMDs #patientcare
Today is RARE DISEASE DAY!
Since 2017, ERN ReCONNET is committed to raising awareness and generating change for people with rare and complex connective tissue diseases.
#RareDiseaseDay
An overlook on the current #registries for rare and complex connective #tissue #diseases and the future scenario of #TogethERN #ReCONNET
๐คฉ
@SaraTalarico2 @DianaMarinello
@saracannizzo @GagliotiAndrea @DTaruscio @istsupsan #EuropeanReferenceNetworks #RareDisease #research #FAIR
โก๏ธ New article published in @FrontMedicine
"An overlook on the current #registries for rare and complex connective tissue diseases and the future scenario of #TogethERN ReCONNET"
https://t.co/WrpGOxZzP3
#EuropeanReferenceNetworks
ERN ReCONNET. More than a Network.
#ERN #ReCONNET Plenary Meeting : today and tomorrow ! I am glad to be part of this friendly & collaborative community. Working together is really rewarding. More at https://t.co/gVNJsOiLcR
#rarediseases
You can still participate in the #TogethERN #ReCONNET #Survey aimed at Mapping of existing #rCTDs #registries.
You can reply to the survey at the following link: https://t.co/j4Yl41ricE
The Survey will be available until the 31st of August both for #clinicians and #patients
Last week was Science week. We made blood in year 6 and then wrote about what we had learned. Year 4 are seeing what will happen when different substances are added to pond water...... what do you think will happen? #reconnet @GreenwoodAcad #welovescience
@BrianDEvans Making a $100m dollar mistake with my startup in Latin America by @brianrequarth #Latitud #podcast #Startups #LatAM #GoThere #reconnet #inspirationย #startupstory #startups
https://t.co/7yTbHAZL6E
Now available on our YouTube channel the #ERNReCONNET #webinar on "#Pregnancy and rare and complex connective tissue #diseases" https://t.co/PSM8oZKvCm with @sil_aps and Marta Mosca #rCTDs #clinicalmanagement #rheumatology
๐๐ขPump up the volume and listen 13th #webinar on #COVID__19 by the @EU_Health #ReCONNET is the A-Team ๐๐ป
The #CMSS 13th #webinar on "#Covid_19 and #Rare #ConnectiveTissue and Musculoskeletal #diseases and conditions" 15th June 16:30 CET by @iaiaraia #ERNReCONNET #ePAG and prof. Marta Mosca #ERN ReCONNET Coordinator is now available https://t.co/cZl5JQ0GIJ https://t.co/hv1VgyROA6
56 ePAG advocates at the first #EURORDISLeadershipSchool on #Healthcare & #Research face-to-face training in Barcelona: 2 days of training on #leadership, #network #management, healthcare and research. #ERN #ReCONNET? Here!
The first #EURORDISLeadershipSchool on Healthcare & Research face-to-face training launches today in Barcelona! 56 ePAG advocates come together for 2 days of training on leadership, network management, healthcare and research. https://t.co/HTFaxudx05
@SclerodermaRF @ern_reconnet @GILS_ODV @Fscleroderma @Worldsclerofnd @WeAreSRUK @SCLERODERMIE_ Yeahhhhh! #ReCONNET Team is simply amazing ๐
Marta Mosca on #EuropeanReferenceNetworks @ the @SIRreumatologia Course on #RareDiseases in #Rheumatology "Alessandro Lupoli" i#Pisa https://t.co/vKamMT0CQc #ERNReCONNET #ERNeu #ShareCareCure
@ern_reconnet ePAGs made it! Our #EULAR2019 abstract was accepted!!
@iaiaraia @CharissaFrank @jhgrunert @veramfpg @sanderotter #ReCONNET #patientinvolvement #patientsmatter #ERNs #ShareCareCure #StrongerTogether
@ern_reconnet ePAGs made it! Our #EULAR2019 abstract was accepted!!
@iaiaraia @CharissaFrank @jhgrunert @veramfpg @sanderotter #ReCONNET #patientinvolvement #patientsmatter #ERNs #ShareCareCure #StrongerTogether
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