Top Tweets for #SCDadvocate
Beautiful piece from @imperialcollege Magazine interviewing our Linda and Louisa. They share how the #InvisibleWarrior project started, and what it means to be a #SCDwarrior and #SCDadvocate. #sickle
Honoured to be featured in the @imperial Magazine #56
https://t.co/OMhN7mhmiN to talk about the @InvisWarriorSCD project and why it is so important to spread awareness of #SickleCell.
#SickleCellAwarenessMonth #MentalHealthMatters
This here is my happy place.
where i get to make the world a better place one tree at a time, one child at a time.
Thanks @rctkampalaeast , @RoofingsGroupUG for the opportunity to serve.
Sat 25th 2023
Wakiso school for the deaf
#treeplanting
#scdadvocate #CharityTuesday
Prof. @juliemakani is a passionate #SCDAdvocate and renowned researcher.
Prof. Makani established the Sickle Africa Data Coordinating Center (SADACC), which collects and analyzes data on SCD across Africa. View below as @theafricaiknow_ profiles her #sicklecell work in Africa.
Discover the brilliance of Prof. Julie Makani, a renowned researcher and advocate for combatting sickle cell disease in Africa! Learn about her groundbreaking work and her tireless efforts in improving healthcare and empowering communities are truly inspiring.
#TAIKinspires
Do you know?
Our little effort can affect a whole lot positively, in limiting the spread of Sickle Cell Disease in our society.
#BetterLifeWithSCD #TogetherAgainstSCD #SCDCommunity #SCDAdvocate
Even though last year was my FIRST year, I am STILL so very nervous about this next week! And I have a LOT of meetings scheduled!๐ฒ๐ฌ I'm not a talker...but will do what I need to do for #scdadvocacy.
#sicklecell
#scdolicyforum
#scdadvocate
#sicklecellpolicy
#sickcellsambassador
OFFICE HOURS! Hosted by Sick Cells, @SCDAAorg and @SCCConsortium, these will be available on evenings & weekends to help advocates prepare for the National SCD Policy Forum. Come ask any Qs and walk through talking points for your Hill meetings. ๐: https://t.co/39Bgkh91vc
Yet Another great @SickCells Blog! This one is about #ChelationTherapy, featuring my dear friend and #SickleCellWarrior/#SCDAdvocate, Eric Kirkwood! I highly recommend reading it!๐๐ฟโค๏ธ๐ค
#sicklecell
#SickCells
#Chelation
#IronOverload
#SickCellsBlog
Sick Cells sat down with Eric Kirkwood, #sicklecell warrior and advocate, to discuss his experience with #chelation therapy and why itโs so important for those in the SCD community. Read it now: https://t.co/SoVKhORbNx
Tuesday morning I had a really sweet, uplifting email from a fellow board mbr/#SCDAdvocate! Then a truly motivating, empowering ๐ฑ w/a fellow #SCDAdvocate!๐ The funny thing is-they're Both named Shawna & Shauna!๐It's a gift to be told you're worthy!โค๏ธ๐ค๐
#SickleCellLifeOfMemej
A1: Hey y'all. I'm Jemela, I'm a #SickleCellWarrior, #SCDAdvocate, Pain Advocate & I'm just trying to stay warm, protect my peace & keep up with my constant fatigue struggle right now!๐๐ฟ๐ค#SpoonieChat
Q1: Please introduce yourself in a way you're comfortable with. Or tell us something that's happening in your world.
Disclosure of diagnosis or specific circumstances is NEVER required here at #SpoonieChat.
Proud to say our CBO President, #SCDAdvocate, #SCWarrior and @SickCells Ambassador Kevin Wake, is currently attending the @IAmBiotech BIO Patient & Health Advocacy Summit in DC! We see you Emma & Kevin!๐
#SickleCellMidwest
#PatientAdvocacy
#SickleCellAdvocacy
#BIOPatientSummit22
Emma Andelson of @SickCells tells us she is looking forward to networking and learning at #BIOPatientSummit22!
Please don't be discouraged if you contact an #Advocate & don't get an answer immediately! If they're Both, #SCWarrior & a #SCDAdvocate, understand that they/we are not always @ our best & need #selfcare. But we'll try our best to help when we can๐๐ฟ๐ค
#SCD
#Advocacy
#MentalHealth
Mr Swapnil Sontakke is an active campaigner for sickle cell patient rights and disease awareness in the society. He is involved in different initiatives to bring about positive changes in the society. #Sicklecelldisease #sicklecelldiseasemanagement #Mysicklecare #livebetter
The #UgandaSickleCell Convention begins next week, June 23-24! Join #SCDAdvocate, Caregiver & President of @sicklecellca, @biba_tinga, as she discusses the emotional & socioeconomic impact on the life of a #sicklecellwarrior. Follow @RaisingHopeInt2 & register for the #RHIFSCC22
Introducing one of our Speakers for the Uganda SCD Convention from Canada. Learn more about Life of a warrior and their emotional and socialeconomic impact at the 1st Convention on Unifying Support for SCD. @GlobalGenes
https://t.co/5saLHXKAOO
#SCDC2022
#UnifyingSupport4SCD
Have you ever wanted to become an advocate, but you aren't sure how to get started?
My newest article about being a #sicklecell caregiver and advocacy is now live. Please leave a comment and let me know what you think.
https://t.co/yED3z71NKg
#sicklecelldisease #scdadvocate
Want to tell your story and impact policy? Join our 140 other Ambassadors and to access learning opportunities, advocacy tips, and connect with others in the SCD community. Learn more: https://t.co/zarfn00g4w
#bethechange #policy #advocacy #sicklecelldisease #SCDAdvocate
THX to @InvisWarriorSCD for the 'Being A #SCDAdvocate' workshop Monday! I'd hoped 2 be more vocal, esp since #mentalhealth is a big part of my platform. But being a part of the chat was great! Such good shares from #SCWarriors, I hope 2 attend again!๐๐๐ฟ
#SickleCellLifeOfMemej
Hey! @SickleCellAF_Ph profiled me for this week's #WarriorCrushWednesday on their Instagram page! Go check it out! Follow @SickleCellAF_Ph here & on IG while you're there!
#SCDAdvocate
#SickleCellAwareness
#SickleCellLifeOfMemej
#WarriorCrushWednesday
https://t.co/pGsPwb2bDw
@bluebirdbio
highlights the story of #SickleCellWarrior & #SCDAdvocate Kevin Wake. Kevin is the President of @sicklecellmw & lives with #SickleCellBetaThalassemia & is one of the faces of the #BeTheSpark campaign. Read his story below.
#SickleCellMidwest
#SickleCellAwareness365
Iโm so glad @bluebirdbio is highlighting my story and sharing the many challenges that SCD pts face. #sicklecellmidwest #sicklecellawareness
What a tremendous loss for the world of #SickleCell For all those who loved him and cared for him, my sincerest condolences. He was an #scdadvocate in every way. May he #RIP and his life's work be remembered.
Kevin Wake lives with #SCBetaThalassemia & is a true model of a #Resilient #SickleCellWarrior! Heโs a vocal #SCDAdvocate, currently sits on several advocacy committees & is the President of @sicklecellmw.
#SickleCellMatters2021
#SickleCellAwarenessMonth
https://t.co/tWvgg5c99d
Don't miss Project SCoviD on IG and their #Covid19VaccineStory on #SickleCellWarrior Kevin Wake, #SCDAdvocate, #SickleCellMidwest President & much more!! Follow Project SCoviD on Instagram, learn more about Kevin below & stay tuned for his story!
https://t.co/NifzmLiUPb
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