Top Tweets for #SaveSightNow
This isn’t right!! #RightToTry @DrMakaryFDA @DrOz @VPrasadMDMPH @SecKennedy @DrJBhattacharya
Patients desperately need access to sight saving treatments should not have to go to #GoFundMe
😍 #MakeAmericaSeeAgain 😍 @FightBlindness #SaveSightNow
https://t.co/cffkFhr5g2 #MAHA
We are presenting the Foundation in Spain next November 7th!!! #ushersyndrome #retinitispigmentosa #ush1B #nonprofit #becauseofyou #savesightnow #savesightnoweurope
Together, Justin and Arnau are representing our community and doing their part to advance research to save their daughter’s vision and all those with USH1B. At @FightBlindness Investing in Cures Summit #shannonboye #jeanbennett #savesightnow
Very proud to be teaming up with @savesightnoweurope in their race against time to cure childhood blindness @courseescalade this weekend in Geneva.
#coursedelescalade #savesightnoweurope #savesightnow
Find out more: https://t.co/VQ1QcXNyVd
Thank you @GlobalGenes for featuring co-founder, Justin Porcano as a Rare Leader and helping us raise awareness for #UsherSyndrome by sharing the work we are doing with #SaveSightNow and the Foundation @fightblindness
https://t.co/jkCiVXQWEU
Thank you @bobigelow and your team for organizing #DISORDER Rare Film Festival and thank you for giving us the opportunity to speak about #SaveSightNow and #UsherSyndromeType1B
Rosalyn and Justin Porcano talking about their race against time to save their daughter’s eyesight. #SaveSightNow #UsherSyndrome #Ush1B #DISORDER @savesightnow
Rosalyn and Justin Porcano talking about their race against time to save their daughter’s eyesight. #SaveSightNow #UsherSyndrome #Ush1B #DISORDER @savesightnow
Anna Chambers of @Sistersforsight summons @ladygaga to raise awareness for #UsherSyndromeType1B - a rare disease that results in deafness and childhood blindness. We at #SaveSightNow are working tirelessly to raise money to fund promising research. https://t.co/JNSDHOKtmH
We are all one united #ushfamily working/fighting/& hoping for a solution to vision loss - once an Ushermom, always an usher mom -even when one’s “kid” is a legal adult. @Usher1F @usher_2020 @UsherCoalition #savesightnow @fightblindness https://t.co/ZA8ImV1fPj
Thank you @medel for the story about our #ushersyndrome journey and our mission to find a treatment for #retinitispigmentosa due to Usher Syndrome. Visit #savesightnow to learn more...#CochlearImplants #RareDisease ...Fighting Usher Syndrome: Lia’s Story https://t.co/BbLEShkspg
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