Top Tweets for #SecondaryUse
Elena Drakvik @SitraFund closing her opening intervention with an introduction on the @tehdas 2, follow up to the first #TEHDAS, recently started and instrumental to the upcoming implementation of the #EHDS #secondaryuse of #healthdata.
Looking forward to engage @EUREGHA !

Bridging the gap between clinical research and registry studies, the MedEngine research team utilised register data available through Findata to validate a mathematical model for cancer treatments.
Read more ⬇️https://t.co/5NuwgQV0XZ
#SecondaryUse #HealthData #research
Failure to record death in EHRs can cause problems
This issue always makes me think of a presentation I saw by a data warehouse manager at @duke entitled "I See Dead People."
https://t.co/GjKIlptc6q
HT @AMIAinformatics
@puhfu and @MdDeepti
#EHR #secondaryuse #dataquality
We are reaching the end of @iHD_HealthData on "Building trust in health data". @DipakKalra presents a proposal for a Societal Compact for the #secondaryuse of #healthdata.

As the adoption of #digitalhealth technologies becomes broader, the positive impact on #healthcare innovation grows due to the increasing amount of health data generated.
📄 Read Kimberly Sterling's views on #secondaryuse of health data in the #EHDS https://t.co/7kjNck1Gfz

We had an excellent exchange on health information and digital transformation on behalf of @PHIRI4EU with @davidnovillo Head of Data and #DigitalHealth at @WHO_Europe
Looking forward to his keynote at @dHealthAustria today 5 pm
#dhealth2023 #publichealth #EHDS #data #secondaryuse

WP Lead Martin of @rki_de proudly presented that already 13 countries use the @PHIRI4EU #docker App to exchange #data for #secondaryuse in a #GDPR compliance way.
@wcph_official @REA_research #EHDS #publichealth #populationhealth @EU_Health

😀Happy faces of the #Facilitate Project's partners at @EURAC face-to-face meeting in Bolzano to discuss the two ethical frameworks that the project is developing for the return of #clinicalstudy data and for #secondaryuse of data! #patients
👉https://t.co/lFMpBperFq
@IHIEurope

Our coordinator @markuskalliola highlighting the key deliverables of @tehdas Joint Action, the barriers to #healthdata sharing for #secondaryuse and recommendations that are now in the #EHDS legislative proposal. https://t.co/CPGLQlYzgU
🗣️"The current situation is a nightmare"

FACILITATE today in #SouthAfrica @ICHG2023 discussing some of our proposals on #clinicaltrialdata #returnofresults #secondaryuse. Lots of feedback to digest and a report to follow! https://t.co/GD4Ju5iSYe

Interesting reference by Nick Schneider @BMG_Bund about some of the ongoing pilots to test #secondaryuse of health data enabled by #EHDS: https://t.co/EbEnuFvFoO
An inspiring #allfemale panel discussing the future for #EHDS, a leading #flagship proposal of the @EU_Commission which will grant #Europe a competitive advantage in terms of #health #data #interoperability and #secondaryuse @EPHconference @EUPHActs @PHMRsection @tehdas #eph2022

Today at @tehdas workshop on #secondaryuse of #healthdata we stressed the need for transparency in #digitalhealth: civil society and #patients associations should be part if the #EHDS governance structures.
#EFAPatientsDigital #BREATHEVision

📢Call for Papers! Special issue on clinical natural language processing for secondary use applications - Guest editors: Drs. Meliha Yetisgen, @ozlem_uzuner_gm, Yanjun Gao, @diwakarmahajan
https://t.co/eywsJyANDH
#nlp #EHR #secondaryuse
@MII_Germany working group developed a #GDPR compliant broad consent standard + guidance on good governance for #SecondaryUse of #HealthData. See English language template in our publication. Many university medical centres work on implementation
https://t.co/Ssp3ZbE5QD
Familiar with #SPESiOR? Read our press release to learn more.
#DataSecurity #operatingenvironment #SPE #secureprocessingenvironment #secondaryuse #data #healthdata #RWD #effectiveness #research @erkki_soini @esior_oy
https://t.co/Haw7yffYG7
🗣️Today we completed our country visit in 🇵🇹 Impressive progress on the technical infrastructure to support #healthdata exchange for #secondaryuse and now onto the legislative framework! #EHDS2 @EU_HIS_Unit @EU_Health @tehdas

So honoured and grateful to be part of the @CiTiP_KULeuven panel on #SecondaryUse of personal data for biomedical research at @CPDPconferences w/ wonderful @GrietVerh @VeroCimina @tamasbereczky & Marina Markatou
#CPDP2022

Hmm. Why talk about the £200M for “healthcare data #research” but not mention the Prior Information Notice @NHSEngland has put out for its £240M (or will it be £360M?) ‘#FederatedDataPlatform’?
https://t.co/aNgDicOVbe
#Planning is still #SecondaryUse, not #DirectCare...

Help us promote the patient-centred perspective on the reuse of health data – vote in a public consultation! Thx @EuropeanLung and @tehdas #rehdas #secondaryuse #data #healthdata https://t.co/mACSNx5hgn
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