Top Tweets for #TruthInTransplant
I see transplant doctors answering, yes, your transplanted organ typically lasts your whole lifetime, but then no one's asking them if transplanted bodies last a lifetime of immunosuppressants. The stats suggest a revolution in transplant meds is still needed #truthintransplant
The revolution in transplant medicine is needed in multiple areas #truthintransplant
A guy at my hospital has been on and off dialysis since 1977! He's had 4 transplants but is still going strong. He's been really helpful in teaching me how to set everything up, but says he regrets there hasn't been more progress in renal replacement therapy over this period.
Happy Pride to my LGBTQ+ transplant fam and allies! 🏳️🌈🏳️⚧️ Thanks United Network for Organ Sharing for sharing my #TruthInTransplant and how I’m #LivingItForward. #DonateLife #PrideMonth #ShareYourSpare #DocsWithTransplants
“The freedom & flexibility I have been afforded by having a transplant, the good things that have come from it, the insights I have gained from it, outweigh the difficulties,” says Ken (@4_kidney). “I am so grateful & thankful for all the extra time I have had.” #LivingItForward
In this week's blog I discuss the high cost of transplant.
#truthintransplant
#giftoflife
#transplantlife
https://t.co/zqT5UwNKXR
If you have not yet visited my website, please check it out today and subscribe to my blog. I'm doing a series on transplant meds and the next installment will be available soon.
https://t.co/Uze1MOAm1P
#transplantlife
#truthintransplant
New blog post uploaded!
About the history and future of anti-rejection drugs for transplant recipients.
#truthintransplant
https://t.co/QQ8LL2tSa4
Today I am celebrating life, mine which has survived 4 years post heart transplant and that of my donor, to whom I am forever grateful #truthintransplant #hearttransplant #life #heartransplantsurvivor
Amy Silverstein led by example and she told her story in a way that caught the attention of many. We hope that her story inspires many to share their #truthintransplant. We support you!
Thank you @ajsilverstein16. May your memory be eternal! ❤️
How can you impact research funding and meaningful improvements in transplant medicine right now? Start by sharing your #truthintransplant with the largest org of transplant professionals (AST) here: https://t.co/xW2JW1F113
@ISHLT @LouisBLouisIV Here and ready w recipients in @HeartLifeCanada
2x recipient myself.
My Journey -
https://t.co/qSZTPV9phu
#TruthInTransplant #MyBrokenHeartDoc
#ItsAboutLife
We are saddened by the loss of Amy Silverstein, two-time heart recipient and transplant advocate. We will continue her fight for all transplant recipients. #truthintransplant
https://t.co/tEsOi3f479
https://t.co/rk7isgMYW5
We are saddened by the loss of Amy Silverstein, two-time heart recipient and transplant advocate. We will continue her fight for all transplant recipients: https://t.co/GHND9OmHxD #truthintransplant
https://t.co/sjb0lzs1KP
Sad to read that #AmySilverstein has died. Her death was too soon. Her bravery in speaking up about #TruthInTransplant & the need for revolution in #transplant meds remains unmatched. I will forever cherish our correspondence. Determined to step up my patient advocacy for change.
How can you impact research funding and meaningful improvements in transplant medicine right now? Start by sharing your #truthintransplant with the largest org of transplant professionals (AST) here: https://t.co/xW2JW1F113
@SRTRNews Tech to create equity in organ allocation—groundbreaking. Next, let’s revolutionize transplantation so donor organs live on and patients no longer need to swallow essentially the same toxic, faulty immunosuppressive drugs that have been around since the 1980s. #truthintransplant
And this is why spoke up. If we let this silence us, transplant life and survival will continue as it has for decades. I welcome all viewpoints. But I will not be silenced by them. #truthintransplant
@mhm5443 @ajsilverstein16 it does say a lot about you though, that you would come here to call a woman dying of cancer, brave enough to use her remaining time to do this advocacy & speak for thousands of us, “whiny” and “ungrateful”. unbelievable
Ahead of #HeartFailureWeekCan
We are pleased to announce that the unflinching #transplant Doc My Broken Heart is now streaming FREE on our YouTube channel:
https://t.co/7Xu3z1hloY
A @nickzap film + @smfilmfestival 2020
#MyBrokenHeartDoc #TruthInTransplant #CWHHS2023
@AllieWag @4_kidney @gratefull080504 Research funding key. And so long as patients are pressured to be silent (#gratitudeparadox) transplant research will continue to be given scant focus and funding by the NIH and FDA. We patients must be freed to speak #truthintransplant for new meds & regimens to emerge
@gratefull080504 @ajsilverstein16 Powerful piece in the NYT and very impactful video. However, I don’t think it’s fair to say that transplant medicine is not miraculous. As both a transplant patient and doc, it 100% is (and without sugarcoating the significant challenges we continue to face). #TruthInTransplant
Thanku @medpagetoday for featuring my story for #nationaldonatelifemonth Read how #organdonation saved my life & why continued education is vital #donatelife #doctorswithtransplants #truthintransplant @HopkinsKids @HopkinsMedicine https://t.co/aaWzsu1AZf
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