Top Tweets for #VASCERNapp
VASCERN is present at the annual @FAVAMulti day!😊Our new Project Manager Julie Hallac gives overview of #French #resources available + collaboration w/ the French #network! Plus update of the #VASCERNapp: download it now: https://t.co/rL1A0L1zG7 #ERNeu @JondeauG @DupuisSophie2
New publication in @ojrarediseases on the #VASCERN #eHealth Working Group's efforts and #eHealth tools developped for #patients with #rarediseases: #VASCERNapp #mobileapp #pillsofknowledge #educational videos +more! 👏👏 Find the full article here: https://t.co/zFgTeCEh28 #ERNeu
Où trouver un centre de traitement du #lymphoedèmeprimaire en Europe ? Voici l’application #VASCERNapp v2 #lymphedemaprimary @vascern
Have you got #VASCERNapp v2 yet? This #free, #MobileApp helps #patients with rare #vascular diseases find their closest #healthcare providers and patient associations in #Europe! Available in various EU languages- #download now! https://t.co/uxnUJVoPqp #eHealth #ERNeu @EU_Health
The #European #Patient #Advocacy group #ePAG is now presenting their ongoing #projects and new developments at #VASCERNDays2020!😍 #ERNeu #PatientInvolvement #VASCERNapp #translation #communication #COVID19 @eurordis @HevasNederland @bindweefsel @assomarfans @HHTOnlus @LymphaThe
Catch up on all the #news in the latest #VASCERN #newsletter! #VASCERNapp version 2 ready for #download, #VASCERNSpotlights success of #E3Summit20, our #Registries Project poster, #CPMS news + more! #ehealth #research #ERNeu https://t.co/2EUJCfKB6W @MarfanFdn @EU_Health
We invite our #EuropeanReferenceNetworks friends 2 check out #VASCERNapp v2! @media4health can create a similar #mobileapp for your #ERNeu to help more #RareDisease #patients! ➡ https://t.co/uxnUJVoPqp @ern_reconnet @Metab_ERN @ERN_RND @ERNEuroBloodNet @EpiCARE_ERN @ErnEyeEU
Téléchargez la #VascernApp pour savoir où se trouve le centre expert de votre pathologie le plus proche de votre localisation !
Have you got #VASCERNapp v2 yet? This #free, #MobileApp helps #patients with rare #vascular diseases find their closest #healthcare providers and patient associations in #Europe! Available in various EU languages- #download now! https://t.co/uxnUJVoPqp #eHealth #ERNeu @EU_Health
Have you got #VASCERNapp v2 yet? This #free, #MobileApp helps #patients with rare #vascular diseases find their closest #healthcare providers and patient associations in #Europe! Available in various EU languages- #download now! https://t.co/uxnUJVoPqp #eHealth #ERNeu @EU_Health
The Medium-Sized #Arteries #MSA WG just completed their #online F2F meeting!😊 Discussions included @MarfanFdn E3 summit presentation topics, #consensus #statement on #monitoring of #vEDS patients, very rare #EDS subtypes w/vascular complications, #IVF, #VASCERNapp + more! #ERNeu
The #Pediatric and #PrimaryLymphedema WG have started their 2-day online meeting! On today's agenda: creation of #PillsofKnowledge #videos that will feature PPL #ePAG #patient #advocates, #VASCERNapp, #Registry + #CPMS #case discussions! More to come tomorrow!🙌#ERNeu #lymphedema
New #VASCERNSpotlights article now online! Read interview with our #eHealth Chair, Dr. Alessandro Pini who talks about his greatest hopes for VASCERN, his decision to specialize in #MarfanSyndrome and #HTAD, #VASCERNApp + more: https://t.co/lG1WmmWFor #ERNeu @MarfanClinic
#VASCERNApp is mentioned in the latest #Orphanews! Thanks @Orphanet Read here and don't forget to #download: https://t.co/RBfLCUcFd9 #eHealth #RareDiseases #MobileApp #VascularDiseases #HHT #MarfanSyndrome #PPL #vEDS
New edition of the #VASCERN #newsletter now available! In this issue: the #VASCERNApp #MobileApp, #VASCERNSpotlights with @liseurordis, #research news, video on our #ERN, #events in 2019 and more: https://t.co/MzxKOT5mbr #ERNeu @EU_Health #eHealth #RareDiseases
#VASCERNApp launched!📲Free #MobileApp, #iOS #Android, helps #patients find #VASCERN HCPs and #patientorganisations in #EU! Info here: https://t.co/pXIXOyqXri #crossborder #health #ERNeu @EU_health @NLNetwerk @HevasNederland @bindweefsel @marfanbe @HHTOnlus @RaffaellaGaeta2
Nice article about our #VASCERNApp (#comingsoon) and the #PatientInvolvement in this project! @HHTOnlus #eHealth #MobileApp #VascularDiseases #RareDiseases
Let’s talk about #vascernapp trial version (Available in 2019) with the eHealth Chair Alessandro Pini
#vascerndays2018 @vascern
For more info:
https://t.co/H6slNxUZip
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