#YPwCFS - Twitter Hashtag

Tom Kindlon @TomKindlon

over 1 year ago

3/ Parent: "I'm realizing that my child is ten and she's lost her childhood." #YPwME #YPwCFS

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Tom Kindlon @TomKindlon

over 3 years ago

"Support Experiences of Children and Youth with #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome and Epilepsy in New Zealand Schools: A Parental Perspective" Master's thesis: https://t.co/KoFZSsvyBv #YPwME #YPwMEs #YPwCFS

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Tom Kindlon @TomKindlon

over 3 years ago

From: "What Chronically Ill Students Need From Their Schools (2021)" Only abstract open access: https://t.co/L9RA2xcYQO Image also gives ideas of some accommodations students/families could look for #chronicillness #spoonie #YPwME #MEcfs #CFS #YPwCFS

TomKindlon's tweet photo. From:
"What Chronically Ill Students Need From Their Schools (2021)"

Only abstract open access:
https://t.co/L9RA2xcYQO

Image also gives ideas of some accommodations students/families could look for

#chronicillness #spoonie #YPwME #MEcfs #CFS #YPwCFS https://t.co/oRY7BOjnMx

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Irish ME/CFS Association @IrishMECFSAssoc

almost 4 years ago

This is also open to parents/caregivers of children and young people with #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome #MEcfs #CFS #PwME #YPwC #YPwCFS #YPwCs #YPwME #YPwMEs

Long Covid Kids Rep.of Ireland 🇮🇪 @LCKIreland

almost 4 years ago

Mon 10thOct 8pm, we, at LCĶ Ireland are hosting informal zoom meet up Aimed at parents/caregivers of kids/young ppl w #LongCovid who are #Irish/living in #Ireland. There is an urgent need amongst some families for information & peer support. DM for details #LongCovidKids Pls RT

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Tom Kindlon @TomKindlon

almost 4 years ago

Less than one week left if people want to reply to this consultation #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #CFSME #YPwME #YPwC #YPwCFS

Tom Kindlon @TomKindlon

about 4 years ago

🧵 USA: CDC: School-Based Active Surveillance (SBAS) of ME/CFS Among Schoolchildren, comments invited until 20th Sept 2022 https://t.co/VnmXkmvo8W #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #CFIDS #PwME #YPwME #YPwMEs #YPwC #YPwCs #CFSME Looks promising 1/

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Tom Kindlon @TomKindlon

almost 4 years ago

2/ Conclusion from: "When a 17-Year-Old Girl Is Diagnosed with #MyalgicEncephalomyelitis: A Case Study from the Swedish Health Care System—A Parent Perspective" #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #ME #MyE #MEeps #CFSME #CFIDS #SEID #NeuroME #YPwME #YPwC #YPwCFS

TomKindlon's tweet photo. 2/
Conclusion from:
"When a 17-Year-Old Girl Is Diagnosed with #MyalgicEncephalomyelitis: A Case Study from the Swedish Health Care System—A Parent Perspective"

#ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #ME #MyE #MEeps #CFSME #CFIDS #SEID #NeuroME #YPwME #YPwC #YPwCFS https://t.co/pfqQwoK8LF

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