Top Tweets for #YPwithME
We need support to get the right support to those #YPwithME and #LongCovidKids I will not let another lose their lives because of the misinformation and status quo #ExposeBACMENow
Thank you @TinaRodwell1 for your work on BACME.
So everyone, please sign the open letter ASAP!
https://t.co/mqHtI2tLjo
Please reach out to @SabineHermisson if you can help supporting those parents thrown into the abyss of #LongCovidKids and #YPwithME
We need a support network globally and we need medical support #UniteToFight
@TheChronicColab @CBMEgroup @cfs_jo @envirobite @KatyBruce108 @KirstieSivaP @LCMEBillboards @MEFoggyDog @long_covid @RachelCDailey @sunsopeningband @GeorgeMonbiot @JanetDafoe @BBCWomansHour @nikkijfox @StaceyPooleITV @ShaunLintern @SarahOC_MECFS @MEAssociation @MEActNOW @davidtuller1 @Channel4News So letโs look at symptoms now if a psychiatrist came marching in and told you to get up and out would we think they were inhumane and out if their minds?
If yes why the hell do we let them do it to our #YPwithME DO UOU SEE HOW STUPID THIS IS? @gmcuk DO YOUR JOB!
5 years ago and still no care for those #YPwithME
@CBMEgroup @arisonsned @SockFoam Please @NikJohnsonCA can we have your support for children and #YPwithME are badly treated and little understood could you help the Dean get training for staff at Addenbrooks @DoctorsWithME can help @PhysiosForME
@MsuSuresh We tried to get people to recognise #YPwithME decades ago but were laughed at. During covid we explained what would happen and perhaps you should lead with that because the research shows the pattern
This is how I feel as a carer with a son with sever ME. Nothing in the medical world makes sense to what I witness as his mother or as an advocate for other #YPwithME trust lost over decades of misinformation from those we should trust.
I asked 3 questions back in 2017 that still needs to be asked of the clinics that treat #YPwithME a sad reflection #meawarenesshour
@MalnutritionME @HealthcareMDPI_ There have been reported incidents of #YPwithME refused any support or help. cfs centres around the UK should be ashamed and re-educated with this and many more physical and biomedical issues
When you are wrongly accused of perpetuation you #YPwithME and it is on your records and NO ONE WILL TAKE IT OFF why would you ever trust the health system
Give me 1 good reason why I would trust a GP when you have a #YPwithME
@ABrokenBattery @TomKindlon @xandvt Are these useful though @xandvt because as I pointed out to you years ago #YPwithME life experiences of ME equates to end of life care of AIDS patients and still @RCPCHPresident refuses to accept ME is physical and we are fighting to have @LongCovidKids recognised
@ABrokenBattery @TomKindlon @xandvt Are these useful though @xandvt because as I pointed out to you years ago #YPwithME life experiences of ME equates to end of life care of AIDS patients and still @RCPCHPresident refuses to accept ME is physical and we are fighting to have @LongCovidKids recognised
@Andy_Bilson Have reserved a place and anyone who follows me I hope you do the same ๐ our children need support understanding sadly missing for so many as in my community of #YPwithME shows how lack of understanding harms familyโs #MEawsrrnessHour please join in ๐๐
And here is the results. We could have avoided this if @NHSEngland not employed tactics to hide the reality of #YPwithME silenced their parents with FII accusations and allowed professionals to bully them. The only research they allowed was psychological.
Hidden thoughts of the Post Viral Community #ypwithME #pwME #LongCovidKids #LongCovid we need respect not bullying into an unforgivable mental health crisis made for profit. we need research We need Drs to treat with knowledge and understanding the biomedical science
When you look into the eyes of suffering do you really know what it takes to live a little? #YPwithME #MEawarenesshour ๐๐
When just a bit of fun knocks you out #YPwithME #MEAwarenesshour leaving me heartbroken knowing there is no need for it to be this way STAND UP SCIENCE be loud for my boy and thousands like him
Instead of living the life he had he looks on through a window. On a world that has forgotten to care #MEawarenessHour #YPwithME
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