Top Tweets for #allinforCF
Brilliant video from Marc πππWe are all urgently waiting for *THE* call - The day a new life begins for those with #cysticfibrosis. @VertexPharma @MattHancock @blakeydark @NHSEngland * Every Day Matters * pls work together to #LetThemLive #Trikafta4CF #TrikaftaNow #AllInForCF
Thousand Years #TrikaftaNow #Trikafta #CF #CysticFibrosis @cftrust #CFyelfie
https://t.co/jMPpbkJ9UX
@CFCanada Brilliant news @CFCanada - keep going!πππ Lives are precious, are matter most. #CFCantWait #cysticfibrosis #AllInForCF
HUGE thanks to @Vertex for supporting EENY: LIVE! as an Amethyst corporate sponsor! Vertex is a long-time, cherished supporter of EE, demonstrating the depth and authenticity of their commitment to 100% of the CF community. #AllInForCF #ThankYou #Vertex #EENYLIVE
@VertexPharma Brilliant to see this.... desperately waiting for #Trikafta4CF for 90% and the current #covid19 situation highlights the urgency. Please reduce the clock stops & act with utmost urgency. #ChangeTheWorld #LetThemLive #AllInForCF
@CFAdvocacynow @strawfie @VertexPharma Be bold, work together, innovate, succeed and save thousands of lives. #LetThemLive #cysticfibrosis #InThisTogether #AllInForCF #DoTheRightThing #CFCantWait
@VertexPharma ...and life saving medicine for vulnerable patients as interim/expedited deals? #KeepYourCustomersAlive #DoTheRightThing #LetThemLive #Trikafta #AllInForCF #CFCantWait
Absolutely- when medicines exist (a few tablets each day) itβs in humane to keep them on the shelf. Letβs #DoTheRightThing & get everyone on to managed access for #Trikafta4CF. @VertexPharma @MattHancock - show us you are #AllInForCF #Covid19 #LetThemLive
People with cystic fibrosis are going to need every possible bit of help to get through the #Coronavirus epidemic.
@VertexPharma: please make #Trikafta available today to all who would benefit, worldwide
.@VertexPharma @Parexel_London @MattHancock Please make this the first thing you do tomorrow Monday morning. #MondayMotivation Darren needs access urgently. $vtrx - are you #AllInForCF? Please #PutPatientsFirst #DoTheRightThing Help Darren
Still waiting on @VertexPharma to decide my fate. My life is in their hands, if they could only permit me to have #trikafta on compassionate grounds it will give me a second chance at life. Time is not on my side #DarrenCantWaite @JaneWaite19 @SimonBamber1 @ChrisMRiches
Could you breathe with this in your lungs? @MattHancock @blakeydark @VertexPharma Will you leave thousands of #CysticFibrosis patients to suffer until end of next year before you start negotiations? Or will you #PutPatientsFirst & #Lead? They need #Trikafta4CF #AllInForCF $vtrx
.@MattHancock @VertexPharma @NICEComms @NHSEngland @ChrisMRiches Cmon on now grown ups - Act responsibly, proactively, humanly. #DontMakeThemSuffer #DoTheRightThing #Trikafta4CF #AllInForCF $vtrx #SucceedTogether
@VertexPharma please help Darren then get yr butts into gear & get #Trikafta thru as a matter of urgency for ALL who'll benefit. TOO MANY SENSELESS DEATHS ALREADY #CysticFibrosis
What do @VertexPharma have to say? Will they engage with meaningful negotiations immediately? Submit to @NICEComms & letβs #PutPatientsFirst. You can save thousands of others from declining. $vtrx Is it #AllInForCF to make them wait? π€·ββοΈ #Trikafta @MattHancock @blakeydark
.@vertexpharma the sooner you submit #Trikafta for evaluation the sooner everyone can get on with their lives & you can start saving lives. Youβre holding the process up until u submit it, even if its licensed by #EMA UK wonβt get it & so the blame is with u #SubmitTrikaftaToday
Keeping everything crossed for you both π€π€π€Hoping @VertexPharma $vtrx want to help. #AllInForCF ππ#TeamCF
Bad couple of days for @MichelleBamber. Fever and general struggle which does nothing for her fighting spirit. How different things might look next week if @vertexpharma approve our Trikafta application. 'In Vertex we trust' @ChrisMRiches @strawfie
@Alidilly @Daily_Express @ChrisMRiches @VertexPharma That hard part is done, please letβs work together to #PutPatientsFirst. 90% of #CysticFibrosis patients need #Trikafta &Aydens need is *URGENT* Please #SaveAyden Do all that you can. Cystic Fibrosis doesnβt wait. Patients need access now-Donβt make them suffer. $vtrx #AllInForCF
@cflounge @MattHancock @NHS @NICEComms @VertexPharma I hope this time, each party, can see the urgent need to #PutPatientsFirst. The medicine exists, so letβs continue to build a better CF community & #LetThemLive. #BeTheHero #TeamCF #CysticFibrosis #AllInForCF
@cflounge @TBaillie2 @ChrisMRiches @Daily_Express @VertexPharma @MotherhoodvsCF @JoshLJ24 Are @VertexPharma comfortable leaving 9000 patients without access for 2yrs? Is that part of #AllInForCF? Is it proactive? Isnt that 18mnts lost revenue?Wonβt their patients be in worse state in 2yrs time?Shouldnt they keep their customers alive? (&buying for longer)Ethics? $vtrx
@_MissMoo_ @jodavidson65 @MattHancock @NICEComms @BorisJohnson @NHSEngland @VertexPharma The turn around is amazing ππβ₯οΈ and a tribute to the power of #Trikafta. So glad it got to Nicole in time & hoping that all parties can meet to agree a solution for the thousands of patients who can benefit. #LetThemLive #TeamCF #AllInForCF
@ssnjimb @VertexPharma This is very much the problem, & something Iβm sure @VertexPharma donβt want either. The medicines exist, letβs be human together and get it done better this time. It makes sense to keep your customers alive! One community, a better future. #TeamCF #AllInForCF $vtrx #LetThemLive
Absolutely agree @JoshLJ24 -all parties need to be proactive & work together to #DoTheRightThing! Adults like Josh, & Nicole have fought so very hard for too long. Letβs work together to make a better TODAY for all with #CysticFibrosis #LetThemLive! #TeamCF #AllInForCf? $vtrx
Itβs so important action is taken now. Not just on compassionate grounds. We were incredibly lucky not to lose Nicole. No one should have to be on their deathbed in order to receive life saving/changing drugs! Come on @VertexPharma @BorisJohnson @MattHancock
Will @VertexPharma make it their #NewYearsResolution to be proactive and get a deal done for #Trikafta for #CysticFibrosis patients in the worlds 2nd largest patient group? #LetThemLive #AllInForCF $vtrx
This is brilliant news and so thankful that the daily express fighting with Nicole β€οΈ @MattHancock @NICEcomms @BorisJohnson @NHSEngland #trikafta really is a game changer and @VertexPharma r evidencing what this drug can do to the most vulnerable β€οΈ
Will @VertexPharma #BeTheHero and get this medicine out to patients urgently? Paperwork should not be the obstacle here -please commit to submitting #Trikafta to @NICE for tech appraisal so that the negotiations can proceed. Please #PutPatientsFirst #AllInForCF #LetThemLive $vtrx
I share Nicole's outrage that she had to get so ill before #Trikafta was given to her on compassionate grounds.
She could easily have died.
@VertexPharma have a moral obligation to get this drug to those who can benefit AND THEN they can sort out the money. #cfcantwait #cfaware
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