Top Tweets for #alswidow
@KP_MD2018 @CatherineEPDoc @WestJet I know firsthand that a neurologist is waaay more than a doctor, same training, additional training to specialize. #ALSwidow
Widow Truth: Gonna have a win today. I am meeting with the Central TX VA Leadership to have what I am calling an exit interview. Discussing how to find a path foward for equality in care for ALS veterans they serve. @AlSvets #ALSveterans #Tomstroops #ALSwidow
Widow Truth: Another slow morning b/c I was up most of the night. Upsetting memories from Tom's care show themselves most nights. Complicated grief and reliving trauma is what is left after years of caregiving to my #ASvet. #ALSwidow #Tomstroops
Oh @UHC & @askUHC this is rich! You're going to deny an #ALSWidow with #BreastCancer medication to help boost her immune system using #medicallynecessay excuse? Must be your go to response these days since you also used it to deny my #ALS meds!
My friend & teacher @nicolecimbura is battling #breastcancer
@UHC & @askUHC
Why are you denying #Neulasta to #ALS widow undergoing #chemo when her Doctor prescribed it as medically necessary?
#singlemom #cancermoonshot
@SusanGKomen @SusanGKomenPR @KomenColorado @WeAreTeachers
Widow Truth: Getting out to have lunch with Tom's mini-me and enjoying the pretty day....and feeling guilty because I am enjoying the day. This is widow life. #ALSwidow #ALSvet #missingmyhusband #caregivertosurvivor
@tomstroops I'm so sorry. Hope your weekend is filled with beautiful memories of your love.
#ALSwidow #ALSvets
An endurance #bicyclist before #ALS
A modified bike during ALS
#NurOwn helped him regain function in P2, but Mike #DiedWaiting for #DrugsInBodies
Now Nicole is an #ALSWidow
@FDA #everypointmatters
@bikemag @CitiBikeNYC @bikeradar
Dear @FDA when you decided to delay the @AmylyxPharma decision did you consider #everypointmatters?Going from being able to ride a traditional bike to riding a modified bike to being a passenger is what happens when you delay. What does a pt a pt mean to you @GaryGodfrey25?
In @JAMANeuro OpEd, Dr. Jonathan Glass opines that a 2.5 pt improvement isn't "clinically significant" in #ALS.
Responsive Comment:
A Different View of the ‘Clinically Meaningful’ Effect
~ #ALSwidow @nicolecimbura of @iamalsorg
#EveryPointMatters #MND
https://t.co/vbJqGFNYEH
Even after five years of travelin’ alone, it is the times of quiet reflection that are tinctures for soul.
#Meditation #alswidow #Sunday #MentalHealthMatters
@kandysimons @GlennonDoyle @AbbyWambach @BridgetRebecca3 @lorihermstad @LorriCav @emmccormick2005 #ALSWidow @nicolecimbura who is staying in this battle against #ALS after losing her husband Mike. She watched Mike improve on a therapy that no one else can get so she's staying in the fight so no one else becomes a widow. #HardThings #Cheetah #WeCanDoHardThings
An #ALSWidow, @nicolecimbura, is fiercely fighting so other families don't suffer the loss she did.
@Biogen will you disclose the bioethicists who gave you the opinions? how much have you paid them? how much have you donated to the #ALS Assn?
Are those the opinions you sought?
. @Chance4Lisa @Biogen responded to my letter pleading for #tofresen through #expandedaccess. I spoke #truth to #power. July is too late. More Excuses. We need action. #nomoredead #drugsinbodies @FDA #Redtape #nomoreALSWidows
@johnpavlovitz Thx! People w #ALS need to access promising drugs in clinical trials. Anything you can share on social media or w Congress will help. We lose 6k people/yr & 90% caused by enviro exposures. OpEd by #ALSWidow tells story of #DyingWaiting. Their lives matter
https://t.co/NZHxVQvlU2
Thx @WSJopinion for sharing the story of #ALSWidow
@nicolecimbura
How many lives will be sacrificed in the name of science bc the #FDA refuses to honor its promise to "Exercise Regulatory Flexibility" for #ALS, a 100% fatal disease?
#DyingWaiting #NoMoreALSWidows
@WSJhealth
My husband and I fought for continued access to treatment and to improve an archaic regulatory pathway. He died waiting for change, writes Nicole Cimbura https://t.co/w1lklYHptl
@michaelfranti When you coming back to UK Michael? Have 2 bring my girls to see you #Healer #Prophet #Poet #ALSWidow #MyGirlsMissTheir Daddy
My new anthem after a really tough week. Thankyou @michaelfranti #Pray #Want2RunAway #CantGoOnToday #IWillFindMyWay #Eric's1stAnn #ALSWidow https://t.co/x1eV6EAhGD
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