Top Tweets for #cfparent
#CFRIConference: JULY 28–30!
Our 2023 Conference is a hybrid event held in-person (Redwood City, CA) and via live, online interactive platform.
Enjoy presentations on #Phage and #mRNA therapies, #StemCellResearch, #CFparent-hood + more!
https://t.co/kXRAkWF5VW
#cysticfibrosis
#CFMasterClass is NOW AVAILABLE!
One #CFparent you'll hear from is Sharon Tischio, an expert in getting things done in the form of advocacy.
Hear her story by subscribing for FREE at https://t.co/cixTsWBG4X!
This series was made possible with support from the @CF_Foundation.
Another #CFparent you'll hear from in our #CFMasterClass series is The Bonnell Foundation's own @LauraTbonnell!
Daughters Molly (27) and Emily (25) have #cysticfibrosis. Laura speaks on the importance of advocating and how to keep your CF kids mentally strong.
#cfcommunity
In our upcoming #CFMasterClass series, you'll hear from incredible #CFDad Joel Hersch.
Joel is raising three kids; his 21-year-old daughter, Shayna, has #cysticfibrosis. He speaks on his journey as a #CFparent, including raising his kids as a single dad.
#cfcommunity
Dena Johnson is another incredible #CFMom you'll meet in our #CFMasterClass series!
Dena is a mom of 2 kids, and her 9-year-old son Zachary has #cysticfibrosis. You'll hear about what she's learned during her journey so far as a #CFparent.
CF Master Class is coming next month!
Watching other #cf families and people with #cysticfibrosis take care of themselves in these #nacfc2022 videos is surprisingly therapeutic. Makes my family’s life feel very normal. 🙌🏼 #nacfc #cfparent
Blue Caboose stands with those who are inspired by children with CF
#cf #bluecaboose4cf #bc4cf #cfparent #cfmom #cfdad #cysticfibrosisawareness #cfsupport
Cant wait for this movie. I hope it raises some good awareness for Cystic Fibrosis.
I also really hope my son doesn’t fall in love with a CF girl, lol. But we’ve got a lot of time until that becomes an issue.
#CysticFibrosis #Fivefeetapart #cfparent
When life keeps you apart, fight for every inch. The new #FiveFeetApart trailer is finally here! Tag someone that you ❤️
Round 6. I'd be lying if I said I was ok right now. I'm strugling. Things are not going well. He is not going well. #fucf #cfparent #cysticfibrosis #fuckcf #OrkambiNow
@GeneKennedyNews you are wayyyy more than a #CFparent Gene, you are an amazing parent, a multimedia pro, and a man many are lucky to know and call friend. Our friends at @PURELL would be wise to make sure you never run out! #ThursdayThoughts
You know you’re a #CFparent when you appreciate hand sanitizer in a vending machine! 😂 #cysticfibrosis #cysticfibrosisawareness #CF
@JoshLJ24 @scottmatthews_ @24hrs4cf @CFwarriorsUK ❤️ being a positive CF parent is all I hope to be! #cfparent
Feeling so defeated lately. Tired, broke and overwhelmed. He needs #OrkambiNOW nearly 4 weeks into this admission. Hopefully only a week to go. #cfsucks #cysticfibrosis #cfparent #FUCKCF #fucf
@aaronabymma Congrats on your win at #ACB54 What you're doing for the #CF community #Fightingforlife is #Awesome. #Respect from a #CfParent
U know your'e a #cfparent when you get cystic fibrosis related named @MagicRockBrewCo beers for a Xmas pressie!would def recommend @cftrust
Our children deserve a life #YesOrkambi #cftrust #cfparent #cysticfibrosisawareness #cysticfibrosiswarrior #ddf508 #df508 #Genetics #family
#YesOrkambi #Orkambi #cftrust #cysticfibrosisawareness the benefits will from outlay the cost. Our children's lives are worth that #cfparent https://t.co/BzObXo7lcJ
2 weeks of 2016 where Joe hasn't been Ill are officially over- was good while it lasted! #cysticfibrosis #cfproblems #cfparent
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