Top Tweets for #chasingOURcures
It's been great to be back on the road spreading the word about #ChasingMyCure and its
lessons of hope and working on a new initiative that we're launching this Fall! More to come…
#CastlemanFlex #WarriorFlex
#ChasingOurCures #DrugRepurposing
#ExponentialCures #UnmatchedCures
So thankful for the important work that @CuresWReach does to advance #drugrepurposing and honored to be given this award. I’ve got the most incredible team in the world @Penn #chasingmycure & #chasingourcures for #castleman disease and beyond!
Thrilled to announce our 2022 awards: our Patient Impact Research Awardee is @DavidFajgenbaum of @Penn and @CureCastleman, and our Patient Impact Industry Awardee is @Incyte. Read about their inspiring impact on patients by testing approved therapies at https://t.co/JpZuWDo54z.
Was great to share my journey #ChasingMyCure for #Castleman disease and #ChasingOurCures for #COVID and beyond yesterday! Thanks for the kind words, my friend, @DrAjlanAlZaki!
Thank you @DavidFajgenbaum for giving an outstanding grand rounds @MDAndersonNews. Proud and honored to call you a friend. It’s incredible to see how far you have come and how much you have accomplished. Chasing your cure has inspired many of us to chase our dreams to #endcancer
@AdamicShanna Thank you so much for your words of support & encouragement. I’m so thankful for the many people who have been #ChasingOurCures together & the important work that you & your colleagues do.
Im so sorry to hear about your personal battle but inspired by how it has driven your work!
@DavidFajgenbaum @ChanZuckerberg @CureCastleman @CPathInstitute @US_FDA @ncats_nih_gov #ChasingOurCures, YES, for sure, and grateful for the generosity of @DavidFajgenbaum @CureCastlemen @ChanZuckerberg @KariRosbeck @NICHQ and so many more @PSCPartners #RareDiseaseDay2021
Thanks @BettinaRyll! Love this tweet. So thankful for our amazing team @CureCastleman and all of the patients who contributed their ideas, their samples, and their data to this #Castleman research! #ChasingMyCure #ChasingOurCures
@DavidFajgenbaum just found this:https://t.co/tCakqxkPBl and thought GREAT- know someone who's going to love this!! Turns out it's obviously yours, so CONGRATULATIONS 🎉🎉🎉!!
@livinlavidalopo @KyleABryant @CureCastleman I agree! We need to study the genetic association between having #FA & being inspirational/amazing! You all inspire me so much! I feel honored to fight alongside you #ChasingMyCure & #ChasingOurCures
@SeanBaumstark
@2DDPodcast
@TheAtaxian
@rideATAXIA
@CureFA_org
@ron_bartek
So inspired to read this @nytimes article about #raredisease families chasing after their own cures! #DiseaseHunters #ChasingMyCure #ChasingOurCures https://t.co/vvIeBcSZaU @ginakolata @cureffi @NeenaNizar @gracescience @mattrwilsey
Thank you so much for this & for hope #ChasingOurCures!
To the group of remarkable patient-oncologist-scientists. You bring in a perspective that's unique & benefits us all, you have the ability to be the bridges connecting us all..@marklewismd @DocDustyD #ASCO20 @TotalHealthConf
Was such an honor to deliver the @ASCO Opening Address. I shared some thoughts about my talk and 5 key messages while receiving my monthly infusion. It felt like a fitting time to share about being a patient-physician-researcher-caregiver-advocate #ASCO20 #ChasingMyCure
No one can fight a war alone. We should have changed the title of #ChasingMyCure to #ChasingOURCures because it has involved so many amazing people from @Penn, @CureCastleman, and beyond, working together to make the progress we have! With #COVID19, we need to fight together...
...This is why I’ve fought so hard #ChasingMyCure for #Castleman disease and will keep fighting with everything that I’ve got to keep #ChasingOurCures for many more. So I—and others patients—can sit in the fridge with those we love. https://t.co/GyNso1IFb2
@coffeemommy It was so great to meet you! I was so impressed with your presentation and the great work you are doing! I was definitely fanboying! I love the #Castleman #WarriorFlex and that you’ve enjoyed reading #chasingmycure! Here is to #chasingOURcures !
Being at #hdpalooza #NHPC20 has really left me feeling inspired to reignite my patient blog. Data are so important but STORIES are even MORE important. 👩🏼💻 #patientsincluded #belikelight #NHPC20 #hdpalooza #patientsfirst #chasingourcures #healthdata #patientadvocacy #empowerment
Thrilled to be partnering with @ChanZuckerberg to advance & expand the CDCN's approach to research/drug repurposing to other #RareDiseases! Can't wait to connect with these groups about accelerating our races for cures. #ChasingMyCure #ChasingOurCures https://t.co/Mx8F2UHDKE
Was so excited to see Steve, @ron_bartek, AND @meganloboyle! I love that we can teach and learn from one another on our journeys #ChasingMyCure and #ChasingOurCures! #repurpose #hopeintoaction
3 of my mentors in rare disease research and patient-centered drug development! Stephen Groft, @ron_bartek and @DavidFajgenbaum . Their smiles are indicative of the HOPE they provide to the rare disease community! Today can't get any better!
@KimSteeleMD @US_FDA @LGDAlliance @RareDiseases This is such an exciting step forward for those of us with #rarediseases that are #chasingourcures! So thankful for the amazing leadership at FDA working with patients as partners. #hopeintoaction #chasingmycure #overtime
This by @EricTopol is timely 4 #xMed! ⤵️ #RareDisease #patients become not only fierce advocates, but #medical researchers.
All the faculty & attendees @ExponentialMed received @DavidFajgenbaum’s book “Chasing My Cure”👏
Both Eric and David are Exponential Medicine 2019 faculty
Honored to be listed alongside these incredible rare disease warriors! I’m hopeful that #ChasingMyCure will help us to get closer to @CureCastleman and that it will be a useful blueprint for others #ChasingOurCures!
"Their lives in their hands"
The increasing trend of people affected by #RareDisease to become scientists by @malorye_a
https://t.co/U5jAgyP2WA @NatureBiotech w/ @KathyGiusti @corrie_painter
@Count_Me_In @sharonfterry @theFourier2k @TracyDixonSalaz @DavidFajgenbaum @cureffi
++
@NTConnell I’m so glad you enjoyed reading #ChasingMyCure! I’d be honored to sign a copy at ASH! I hope that it will help to advance #Castleman research further and be inspirational to help with #ChasingOurCures for many more diseases! https://t.co/Y2vysjheAD #overtime
@KristinSmedley @GlobalGenes Thanks so much, @KristinSmedley! I feel lucky to be on the same #RareDisease army as you as we are #ChasingOurCures! @CureCastleman #ChasingMyCure #ThrivingBlind
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