Top Tweets for #countME
Got #mecfs or #LongCOVID ?
We need YOUโผ๏ธ
๐Pls complete this survey.
๐More respondents means โฌ๏ธ powerful data to show to governments #MyalgicEncephalomyelitis
#CountME
Australiaโs Census helps build a picture of our communities. Many people noticed #MECFS and #longCOVID werenโt specifically captured.
Help ensure our community is seen, understood and counted. Share your experience in our national study: https://t.co/3zVIdVa2j9
#emergeaustralia
Huge thanks to Dr Carina Garland MP for meeting with us and speaking about #CountME in Parliament on August 11! ๐
๐ View the speech here: https://t.co/O7isrCW7Cc
Share and tag your MP. Being counted matters.
#MECFS #LongCOVID #EnergyLimitingConditions # EmergeAustralia
If you live with #MECFS or #longCOVID in Australia, Edith Cowan University and #EmergeAustralia invite you to take part in a confidential online survey. What you share can help improve understanding, care, support and future research. Take part: https://t.co/WVwZbDhRAy #countME
If you live with #MECFS or #longCOVID in Australia, Edith Cowan University and #EmergeAustralia invite you to take part in a confidential online survey. What you share can help improve understanding, care, support and future research. Take part: https://t.co/WVwZbDhRAy #countME
๐๏ธ Ep 5 of the #ImaginePodcast features Stacey Hollings, who shares her experience of #SevereME, #Ehlers-Danlos Syndrome & #POTS, and why belief, compassion and better support matter.
๐ง https://t.co/Jnn03tXBtt
#SevereMEDay #CountME #EmergeAustralia
๐๏ธ Tracey Spicer AM returns to the #ImaginePodcast for a powerful conversation on #SevereME, common misconceptions, lived experience, healthcare, research and hope.
Part of the #CountME campaign ahead of #SevereMEDay on 8 August.
๐ง Listen: https://t.co/h4slNyET6d
๐๏ธ A new season of the #ImaginePodcast is coming for #SevereMEDay.
๐๏ธ 31 July to 8 August, hear powerful stories from people living with #SevereME, carers, clinicians & advocates as part of the #CountME campaign.
๐ง on your favourite podcast platform.
@MECFS_Clinic
๐จโจ Show your support for people with #SevereME with Amanda Franceyโs inspiring artwork. Shop the limited-edition #CureME ๐ or drink bottle from the #EmergeAustralia store. Every purchase helps raise awareness and funds for our work. ๐ https://t.co/EepLKBHiCT
#CountME
If you live with #MECFS or #longCOVID in Australia, #EdithCowanUniversity & #EmergeAustralia invite you to take part in a confidential online survey. What you share can help improve understanding, care, support and future research.ย
Take part: https://t.co/WVwZbDhRAy
#countME
For the 1st time since 2003, #MECFS will be inc as a sep condition in the Aust Burden of Disease Study in Dec 26. Being counted matters, this milestone helps drive recognition, policy, funding & research.
Read our press release: https://t.co/W6dqqTWwLa
#CountME #EmergeAustralia
๐จ Today we launch #CountME, a campaign calling for recognition and support for Australians living with #MECFS, #longCOVID and related energy-limiting conditions. Stay tuned for a major announcement tomorrow.
Learn more: https://t.co/mtIiMaKAcQ
#EmergeAustralia
3 1/2 hours to the kickoff of Giving Hearts Day! If you read this, you have a "Cando Connection"! Please donate to the Impact-Cando Connection Fund at this link: https://t.co/wMt7Cy5XSK
We know #WeCandoIt on #givingheartsday - #countme
Weโve been asking for modernization of #SEER registry at least as long as Iโve been a #metastaticbreastcancer patient #advocate. This photo shows hundreds of people living w/ MBC @LivingBeyondBC at MBC Conference 4/2017. ๐๐ผโโ๏ธin back w/ my #HearMyVoice classmates!
#bcsm
#CountMe
@JaniceTNBCmets We've been talking about this FAR TOO LONG. This pic is from 2017. We need to see some action! #countus
https://t.co/olp7r5BZX4
The numbers have never added up (for me). Everything is just estimates based on new dx (de novo), deaths, & more. The stats for recurrent #MBC are never exact, & we still donโt truly know the real figures. #MetastaticBreastCancer #CountMe #bcsm
Senyum Tour rai pelanggan sempena ulang tahun ke-40 AEON https://t.co/j5BJnYv2PS #Ekonomi #HalalNiaga #AEON #AEONBukitTinggi #CountMe
One week to Giving Hearts Day-2/8/24! Many thanks to R.J. & Katie Miller for placing the GHD signs. They snapped this pic of the GHD sign and a beautiful ND sunset. On 2/8/24 donate to the Impact-Cando Connection Fund at https://t.co/wMt7Cy5q3c #WeCandoIt #GHD2024 #CountMe
UK
Please try to contribute to the @DHSCgovuk Interim Delivery Plan, even if only a few Q's
๐ก
Need National ME Audit (eg diabetes)
Collect data
#CountME
Record harms
Review DP results
FUNDING ringfenced
Research-PEM as definition
Compulsory MedEd eg Autism
#MEAwarenessHour
The @DHSCGovuk Interim Delivery Plan on ME/CFS.
It is important that as many people within the ME/CFS community take part.
Click here to do so:
https://t.co/7VDTC6idHT
Closing Date: 04 October at 11.59pm.
Easy Read available with a closing date 30th October 2023.
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid #PostCovid #DHSCDeliveryPlan #Consultation #DHSC
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