#cureNF2 - Twitter Hashtag

Cure NF2 Foundation UK & Europe @nf2biosolution1

6 months ago

May is NF Awareness Month. All month long, we’re raising awareness, sharing stories, and advancing research that brings us closer to a cure for NF2. Join us this May. Help raise awareness. Support the mission. Be part of the movement to #CureNF2.

nf2biosolution1's tweet photo. May is NF Awareness Month.
All month long, we’re raising awareness, sharing stories, and advancing research that brings us closer to a cure for NF2.
Join us this May. Help raise awareness. Support the mission. Be part of the movement to #CureNF2. https://t.co/denJ1k2SnV

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Cure NF2 Foundation @NF2BioSolutions

6 months ago

May is NF Awareness Month. All month long, we’re raising awareness, sharing stories, and advancing research that brings us closer to a cure for NF2. Join us this May. Help raise awareness. Support the mission. Be part of the movement to #CureNF2.

NF2BioSolutions's tweet photo. May is NF Awareness Month.
All month long, we’re raising awareness, sharing stories, and advancing research that brings us closer to a cure for NF2.
Join us this May. Help raise awareness. Support the mission. Be part of the movement to #CureNF2. https://t.co/xsFSzzW8dz

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Cure NF2 Foundation UK & Europe @nf2biosolution1

almost 5 years ago

The November Newsletter from #nf2biosolutions is out now, don't miss it. #givingtuesday, research and lab updates, fundraising news and much more https://t.co/l2YMAP9Wvw #NF2 #endNF2 #CureNF2 #raredisease

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Margaret Reynolds @magdelamagpie @margare60211437

about 7 years ago

My answer to your question is a patient database. I know RDMD is working on it. I feel badly that in the U.S. it is patient driven and not doctor driven. Thank you @onnofaber. I have a rare disorder and have given RDMD permission to view all my records. #cureNF2

Nancy Yu @nancyyu25

about 7 years ago

#raredisease isn’t a science problem. The problem is there’s no easy way for researchers to deeply characterize the disease itself (#naturalhistory). How can researchers and FDA design successful trials when this information is trapped in hospitals or just doesn’t exist?

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Margaret Reynolds @magdelamagpie @margare60211437

about 7 years ago

Supporting @NF2BioSolutions to help accelerate a gene therapy cure for the “life spoiling” disorder NF2. Please follow @NF2BioSolutions ! #curenf2 #GeneTherapy #hopeforchildrenbornwithnf2 #UMASS

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Margaret Reynolds @magdelamagpie @margare60211437

about 7 years ago

Recent visit to the Dr. Chris Mueller gene therapy lab at UMASS was fascinating. @NF2BioSolutions presentation to postdocs and Dr. Mueller was spot on. Presentation by Karen Mierjdoonm about their strategy to fix NF2. #curenf2 #NF2Biosoltions #genetherapy #weneedacute

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Chamelæn @derrick_helton

over 7 years ago

survived surgery, now to see if it helped once nerve calms down. Excited been in severe pain jail for 5 years. ready for a midlife boom! #cureNF2 #faith 🙏 #ChronicPain

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