#ebhero - Twitter Hashtag

almost 5 years ago

BUDE DOKUMENT 🙏🤍🦋 Moc děkujeme Petře za otevřenost a ochotu sdílet svou každodennost s nemocí motýlích křídel a @CzechTV za zachycení jedinečnosti všedních dní s handicapem a přesto s úsměvem #EBhero #nemocmotylichkridel #epidermolysisbullosa

cr_debra's tweet photo. BUDE DOKUMENT 🙏🤍🦋
Moc děkujeme Petře za otevřenost a ochotu sdílet svou každodennost s nemocí motýlích křídel a @CzechTV za zachycení jedinečnosti všedních dní s handicapem a přesto s úsměvem
#EBhero
#nemocmotylichkridel
#epidermolysisbullosa https://t.co/xM8ozk9nwH

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Debra - The Butterfly Skin Charity @debraireland

about 5 years ago

This is just incredible! Malin2Mizen for DEBRA🚶‍♀️ Thank you so much to this power duo, Sinéad and mum Margaret O'Donovan, who ran and walked an incredible 600km and raised an amazing €3,820 for our EB families🦋 This means so much to our families 💙 #ThankYou #CureEB #EBHero

debraireland's tweet photo. This is just incredible!

Malin2Mizen for DEBRA🚶‍♀️

Thank you so much to this power duo, Sinéad and mum Margaret O'Donovan, who ran and walked an incredible 600km and raised an amazing €3,820 for our EB families🦋 This means so much to our families 💙

#ThankYou #CureEB #EBHero https://t.co/heVVEu6aRx

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Debra - The Butterfly Skin Charity @debraireland

over 6 years ago

Her smile says it all. After months of waiting & trying on bow after bow, Casey finally got to see her idol @itsjojosiwa at her Dublin gig @3ArenaDublin. Casey said it still feels like a dream. Thrilled you had such a great night-you deserve it Casey!💙 #itsjojosiwa #EBhero

debraireland's tweet photo. Her smile says it all. After months of waiting & trying on bow after bow, Casey finally got to see her idol @itsjojosiwa at her Dublin gig @3ArenaDublin. Casey said it still feels like a dream. Thrilled you had such a great night-you deserve it Casey!💙 #itsjojosiwa #EBhero https://t.co/x9guysLPu2

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Debra - The Butterfly Skin Charity @debraireland

almost 7 years ago

@PearlJamOnLine @PearlJam @WEMovement @EBResearch Thank you #eddievedder for raising this much-needed awareness of #EB. Eli, you are a real #EBHero and we hope lots of peole have started to #comesayhi to you - a simple gesture but makes such a difference. Best of luck with the campaign. Love from your friends here in Ireland xx

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Debra - The Butterfly Skin Charity @debraireland

almost 7 years ago

Climbing Africa's highest point for our EB families. Thank you so much to PA Kelly (blue jacket) for taking on #Kilimanjaro and raising over €2,000 😍🦋🏔️ #EBHero #CureEB #charitychallenge

debraireland's tweet photo. Climbing Africa's highest point for our EB families. Thank you so much to PA Kelly (blue jacket) for taking on #Kilimanjaro and raising over €2,000 😍🦋🏔️ #EBHero #CureEB #charitychallenge https://t.co/caVzSQFG9Q

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Debra - The Butterfly Skin Charity @debraireland

about 7 years ago

"I know I might have all this stuff on me, but I’m still a normal kid." 💙 #SeeMeNotEB #EBHero https://t.co/U4uXQN0ZAP

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Debra - The Butterfly Skin Charity @debraireland

about 7 years ago

Our #KerryChallenge is an incredible weekend & one @emma_p_fogarty never misses. Sadly Emma is back in hospital only days after returning from this year's event. This is the reality of EB. Emma, we're thinking of you & wishing you a speedy recovery 💙 #EBHero

debraireland's tweet photo. Our #KerryChallenge is an incredible weekend & one @emma_p_fogarty never misses. Sadly Emma is back in hospital only days after returning from this year's event. This is the reality of EB. Emma, we're thinking of you & wishing you a speedy recovery 💙 #EBHero https://t.co/lApNAYBove

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Debra - The Butterfly Skin Charity @debraireland

about 7 years ago

Meet Claudia (15). She lives with EB. On 2 June she'll be doing her first @VhiWMM. It won't be easy. She'll be doing it in full bandages and in a wheelchair. Join #TeamDEBRA and help get her across the finish. https://t.co/U1hZXWgC8E #VHIWMM #EBhero #CureEB

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Debra - The Butterfly Skin Charity @debraireland

almost 8 years ago

We had a very special visitor pop into our offices. Julia Kerin drives from Tipperary every year with her mum to donate her birthday money to us. She's done this since she was 4! Best of luck in your first year at secondary school, and THANK YOU for being an #ebhero #backtoschool

debraireland's tweet photo. We had a very special visitor pop into our offices. Julia Kerin drives from Tipperary every year with her mum to donate her birthday money to us. She's done this since she was 4! Best of luck in your first year at secondary school, and THANK YOU for being an #ebhero #backtoschool https://t.co/qkApuW588f

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Debra - The Butterfly Skin Charity @debraireland

almost 8 years ago

Huge thanks to @JBoylan99 for organising a Fight Night for DEBRA and raising almost €5,000! Thanks also to @whitecollar_ie & @ClubOfLove #club92 for their support and to all those who supported the event. #EBhero #CureEB

debraireland's tweet photo. Huge thanks to @JBoylan99 for organising a Fight Night for DEBRA and raising almost €5,000! Thanks also to @whitecollar_ie & @ClubOfLove #club92 for their support and to all those who supported the event. #EBhero #CureEB https://t.co/Dbp6CgHnSc

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Debra - The Butterfly Skin Charity @debraireland

about 8 years ago

Make sure you hear EB hero Claudia and her mum Liz chatting to @AnnODeaSR at 2pm today @InspirefestHQ. It will be the most inspiring thing you will ever hear! #InspireFest18 #ebaware #ebhero.

debraireland's tweet photo. Make sure you hear EB hero Claudia and her mum Liz chatting to @AnnODeaSR at 2pm today @InspirefestHQ. It will be the most inspiring thing you will ever hear! #InspireFest18 #ebaware #ebhero. https://t.co/m9Op6q7vhB

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Debra - The Butterfly Skin Charity @debraireland

over 8 years ago

Was that the best drop goal ever?! The entire team played an outstanding match against France but the final 10 seconds just made our day. Go on Johnny!!! #IREvFRA #EBHero