Top Tweets for #ebmrf
Brad Pitt, Courteney Cox and Pink Help Raise $1 Million for EBMRF: Inside the Rock4EB! Benefit
#EBMRF #BradPitt #CourtneyCox #Pink
https://t.co/py25hRkaok via @variety
Bring some holiday cheer and do good with my curated collection of @ONEHOPEWINE to benefit my friends #ebmrf. Together we can help fund a cure for this rare and painful disorder. Let’s raise a glass and raise some money! #eb #onehopewine
Buy here: https://t.co/islQ7fo3br
I’ve teamed up with @ONEHOPEWINE to create a curated pack of wine to support #ebmrf and EB Awareness Week. Your purchase will help children and families living with EB. Pick up your bottle here: https://t.co/JA2zk5BaGB
.@CourteneyCox, @davidschwimmer, Jennifer Aniston, @Matt_LeBlanc, @lisakudrow, and @MatthewPerry announce @FriendsTV merchandise range in partnership with @Represent and The Epidermolysis Bullosa Medical Research Foundation #EBMRF https://t.co/jNMIbra8lO
#WandaMaximoff
⚡️ Longterm supporter of @equalitynow and @Oxfam
⚡️ Refurbished schools and improved latrine systems with @LatitudeProject in #Nicaragua
⚡️ Fundraised with @off_themenu for the Epidermolysis Bullosa Medical Research Foundation #EBMRF
#NationalSuperheroDay
There's still time to shop for #christmas and get some awesome and #inspiring #books for all the #bookworms in your life! *LINK IN BIO* 🎄📚🤗
#WritingCommnunity #writer #ya #dreams #dark #poetic #MentalHealth #love #life #ebmrf #raredisorder #Nonfiction #holidays #art #Amazon
@wwwbigbaldhead 🙌
Want to chat to Norman Reedus?!😍
#EpidermolysisBullosa Medical Research Foundation is auctioning a 15 minute Zoom call with our wonderful Norman for 1-2 people!😃🎉🎉
Bidding ends May 18th!🤸♀️
https://t.co/GrsVdNng4E
#NormanReedus #TWD #TWDFamily #EB #EBMRF #BackstagePass
AVITA medical have announced a preclinical research collaboration to explore further development of a spray-on treatment of genetically modified cells for patients with EB.
Project funded by #CureEB #EBMRF and @EBResearch
https://t.co/09esfN63BT
In a sense it is our parents, doctors, medical facts and statistics that run our lives, resulting in us morphing into the person we think we are supposed to be rather than becoming the person we want to be. Yes, I have EB, but I am Not EB. 💜 #WeFightEB #ebmrf #ebweek
Day two of #EBAwarenessWeek 💜 A few facts about EB 💜 #ebawareness #raredisorder #eb #WeFightEB #ebmrf #EBWeek
Patients like Eli and their families living with #EB are inspiring. Join us during National #EpidermolysisBullosa Awareness Week on October 25-31 to raise awareness and support the EB community #ComeSayHi #HealEB, #EBMRF #WeFightEB
.@Fibrocell proudly supports National #EpidermolysisBullosa Awareness Week, Oct 25-31 to raise awareness, promote the need for a cure, and advocate for those living with EB. #WeFightEB #HealEB, #EBMRF https://t.co/wwVPpEB1KC
Last night @AdamSandler invited his two
young daughters on stage to perform a Taylor Swift song at a benefit concert for Epidermolysis Bullosa. #EB is what my son Ermias was born with some 7 years ago. @EBResearch #ebmrf #ebrun4ermias #rock4eb #healeb https://t.co/59nyH9CPuU
"dezzidooo - the best of the best, supporting such an amazing cause��♥️ incredible night of tears & laughter #ebmrf #rock4eb #malibu #adamsandler #sandlergirlskilledit #juddapatow #eddievedder #pearljam #love #epidermolysisbullosa #butterfly #nobu " https://t.co/I6W3M3ulS1
#repost #ebmrf | Flash Auction! Get Red Carpet ready! Win a pair of tickets to the NYC premiere of Missing Link Sunday, April 7th. Proceeds benefit the EBMRF. #missinglink #eb #ebmrf
https://t.co/ahc8JzAKrz
.@Fibrocell is proud to raise awareness today and every day of rare diseases, like
epidermolysis bullosa #WeFightEB #HealEB, #EBMRF and #scleroderma, and their impact on patients and families. Celebrate #RareDiseaseDay https://t.co/53FCfBmn7X
Patients and families living with a rare disease are inspiring. Join us on Feb 28 #RareDiseaseDay to raise awareness of EB #WeFightEB, #HealEB, #EBMRF and #scleroderma, and other rare diseases https://t.co/53FCfBmn7X
So impressed with Rami Malek’s portrayal of Freddie Mercury in Bohemian Rhapsody & to discover that he supports the Epidermolysis Bullosa Medical Research Foundation #EBMRF @ebmrf @ItsRamiMalek z
Grateful to EB Research Partnership and EB Medical Research Foundation for $900,000 investment to support continued clinical development of @Fibrocell FCX-007 gene therapy candidate for rare skin disease, RDEB. #HealEB @EBPartner #EBMRF Details https://t.co/kNDuD3ynbj
1) Thank you all for supporting this remarkable tribute & #EBMRF ... The Pett-Joesph family is truly inspirational. I am honored to know them & to join Chris’ family, bandmates, & friends as part of this special mission 🙏🏼
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