Top Tweets for #ebstories
Parents of children (up to 16) with EB, please consider this online survey. Study will develop a wellbeing toolkit for parents with EB @CharityDEBRA @EBResearch #CureEB #FacesofEB #EBStories #EpidermolysisBullosa
Survey: https://t.co/ah6XagFKwl
Info: https://t.co/vf9t49xaNI
Albi's mum & grandma tell us a bit about him๐๐ฆ
To read more of his story, visit https://t.co/MBtMZX4V5G
#CureEB #ResearchtheCure #FacesofEB #EBStories #EBSmiles #EpidermolysisBullosa #EB #Research
Albi has recessive dystrophic epidermolysis bullosa. His mum, Erin, shares his story. https://t.co/MBtMZX4V5G ๐๐ฆ
#CureEB #ResearchtheCure #FacesofEB #EBStories #EBSmiles #EpidermolysisBullosa #EB #Research
"I have not only survived to the age of 20, but grown into a person who gains confidence from what I endure... brushing the ash off my butterfly wings & continuing to live for as long as I can."
Read Sohana's story: https://t.co/6xKd3FHkzz
#CureEB #FacesofEB #MyEB #EBStories
"I have not only survived to the age of 20, but grown into a person who gains confidence from what I endure... brushing the ash off my butterfly wings & continuing to live for as long as I can."
Read Sohana's story: https://t.co/6xKd3FHkzz
#CureEB #FacesofEB #MyEB #EBStories
Read Poppy's story to understand the reality of living with #RDEB https://t.co/EwANqxFYjt
"After school itโs a full bath and dressing change. Sheโs tired, in pain & very emotional. She begs me to stop."
#CureEB #ResearchtheCure #EBStories #MyEB #EB #Research #StopthePain
Luke would love to play chase with his friends.
EB can take away things that most of us take for granted.
We are working hard to find a cure for EB - https://t.co/yR1zLC8enS
#CureEB #ResearchtheCure #EBAwareness #EBAwarenessWeek #MyEB #EBStories #FightEB #HardtoSayHelltoLiveWith
At the start of #EBAwarenessWeek Sohana tells us a bit about life with Epidermolysis Bullosa
Read more #EBStories https://t.co/lipB17KAyp
๐ฆ
#CureEB #ResearchtheCure #EBAwareness #MyEB #FightEB #HealEB #HardtoSayHelltoLiveWith
"When I was born, not much about EB was known".
Thank you Jennifer for sharing your #myEB story. Visit https://t.co/qSSMCVmfEw to read more of her story or to share your own.
๐ฆ๐ฆ
#EBStories #FacesofEB #CureEB #ResearchtheCure #StopthePain #HealEB #FightEB #EBResearch #EBSimplex
"Living with EB has taught me how to be strong and tolerate severe pain... it will not stop me from chasing my dreams"
๐ฆ๐ Ala'a shares her #EBStory with us: https://t.co/vAedvBnFX9
#myEB #EBStories #FacesofEB #CureEB #ResearchtheCure #StopthePain #HealEB #FightEB #EBResearch
Super leuk om โmijnโ fotograaf @PetraVanVelzen te interviewen bij de #ebstories! Gesproken over eigenheid, ijdelheid en authenticiteit.
@marjolijnvlug een spreker naar je hart: iedere organisatie MOET een hospitality strategie hebben! @ebnetwerk #ebstories
Stof tot nadenkenโฆ wat een mooi vak hebben wij toch #ebstories
Bij #ebstories verrassende verhalen in employer branding: referral recruitment prijzenfestijn, 360graden-blik op diversiteit, escape room ๐
#ebstories Geweldige opkomst weer! https://t.co/9YqoT85tcM
Hoe interesseer je de juiste mensen voor je organisatie als werkgever? Interessante voorbeelden bv NS #ebstories
LIVE op #Periscope: Employer Branding Stories 2015 bij NS is begonnen #ebstories @ebnetwerk https://t.co/l8zIC3IXdM
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