Top Tweets for #fHbp
1) "... the medical aspects of the illness are on the whole better understood by sick people than by their doctors..."
In this new paper, philosopher Chloé De Canson details how the ME/CFS community shares and produces scientific knowledge.
Our poster from the ISLC-PAIS conference:
PEM is characteristic of and unique to ME, and is equivalent to PENE as defined by the ICC. Required to be prolonged, disproportionate, systemic, may be delayed, can cause lasting functional decline 🧵
https://t.co/EnjWRIv0jb
“This is certainly the most extraordinary royal honour I’ve presented in all those years. So I’m quite moved by it. I found it quite shocking.”
Amsterdam mayor Femke Halsema after honouring Severe ME patient and advocate @AnilvanderZee as a Knight in the Order of Orange-Nassau.
Telehealth works, but Australia’s policies aren’t keeping up https://t.co/sk66HVy2FV #FHBP
🌟 The preliminary program is now live.
��� We hope you can join us.
🙏 Register to receive Zoom link.
💙We look forward to connecting with you.
https://t.co/DDIWM544MS
#SevereME #VerySevereME #FHBP #Healthcare #NDIS #HealthLiteracy #OccupationalTherapy #MEGAdream
#FHBP Frail Homebound Bedridden People
Australian registry reports poor health and wellbeing in people living with ME/CFS by @NEatonfitch & @SonyaGradisnik of @NCNEDResearch
https://t.co/B5icurpq8t
HRQoL = Health-Related Quality of Life
Screenshot from latest Science for ME weekly update
#MEcfs #PwME
The Disability Royal Commission has acknowledged the systemic issues experienced by #FHBP, which can help prompt action to educate all health professionals and service providers about FHBP; educate Centrelink, NDIS, and government services @mecfs_aust_sa @MEGroupAust
@FionaPWME @Mark_Butler_MP @Mon4Kooyong @SenatorJordon Lib Health Minister Greg Hunt provided $3M for #MECFS research in 2019
This @AlboMP government?
Virtually zero $ in 4 years‼️
#MyalgicEncephalomyelitis has one of the worst qualities of life of any chronic disease.
75% of us can’t work full time @Mark_Butler_MP @bec_white #MRFF
2/3. This figure shows the results from each study that compared muscle strength in individuals living with ME/CFS to control participants. Black circles to the left of the dotted vertical line indicate reduced muscle strength in ME/CFS.
Evidence + lived experience in Parliament = impact. Proud to join Parliamentary Friends of ME/CFS (10 Mar 2026), supported by ME/CFS Australia after ~7 years working with the #FHBP community. #MEcfs #Telehealth #HealthEquity @Flinders
@FionaPWME @TomKindlon I still see many tweets from #PwME on x. I think using hashtags helps. I tend to use #MillionsMissing #PwME #GreatestMEdicalScandal #MECFS #ELCI #FHBP and #JohnVsJonVsME.
@RennickGBR I have mecfs....have had it since '94. I need social media. I had long enough being isolated
It’s this evening! Bring your questions to presenters.
Catch up with speciality knowledge on #SpeechPathology #ConsumerInvolvedResearch #FHBP #LivedExperience #carer #Nursing #SevereME #MyalgicEncephalomyelitis
#MEGAdream #HealthLiteracy
‼️Severe ME Month 2025 Webinar – Starts Tomorrow!
How to Care for Severe ME — happening Tue, 26 Aug @ 6:00 PM (Qld time). See you there! 💙
https://t.co/azNXtMvl6N
#SevereME #MyalgicEncephalomyelitis #MEcfs #LongCovid #FHBP #Nurse #SpeechPathology #Research #MEGAdream
‼️Severe ME Month 2025 Webinar – Starts Tomorrow!
How to Care for Severe ME — happening Tue, 26 Aug @ 6:00 PM (Qld time). See you there! 💙
https://t.co/azNXtMvl6N
#SevereME #MyalgicEncephalomyelitis #MEcfs #LongCovid #FHBP #Nurse #SpeechPathology #Research #MEGAdream
Please join #SevereMEMonth 2025 Webinars!
📅Tue, 26 Aug at 6:00 PM (Qld time)
📅 Sat, 30 Aug at 3:00 PM (Qld time)
WIP - stay tuned!
#MyalgicEncephalomyelitis #SevereME #MEcfs #LongCovid #FHBP #LivedExperience #MEGAdream #SevereMEDay
https://t.co/azNXtMvl6N
📢📻 Just hours after our research went live, I spoke on ABC Radio Riverland about the urgent need to improve primary care access via telehealth for frail, homebound, and bedridden people (#FHBP).
🎙️ Tune in Friday after 7:50am SA time
🌐 https://t.co/7J2iWOd7op
Last Seen Hashtags on Sotwe
Trends for you
Most Popular Users
Elon Musk 
@elonmusk
241.7M followers
Barack Obama
@barackobama
118.9M followers
Cristiano Ronaldo
@cristiano
114.6M followers
Donald J. Trump
@realdonaldtrump
111.9M followers
Narendra Modi
@narendramodi
107.2M followers
Rihanna
@rihanna
98.7M followers
NASA
@nasa
92.4M followers
Justin Bieber
@justinbieber
91.8M followers
KATY PERRY
@katyperry
90.1M followers
Taylor Swift
@taylorswift13
84M followers
Lady Gaga
@ladygaga
75.5M followers
Virat Kohli
@imvkohli
73.5M followers
Kim Kardashian
@kimkardashian
70.9M followers
YouTube
@youtube
68.8M followers
Neymar Jr
@neymarjr
66.5M followers
Bill Gates
@billgates
65.3M followers
Selena Gomez
@selenagomez
63.1M followers
The Ellen Show
@theellenshow
62.3M followers
CNN
@cnn
61.8M followers
X
@x
60.7M followers