Top Tweets for #hdwarrior
Okay, this is my motivational song to myself today. It's absolutely on repeat! I so wish I could meet @kellyclarkson . She's always been an inspiration to me. πͺπ #raredisease #DyingToLive #HDWarrior #huntingtonsdisease #empoweringmusic #brokenandbeautiful
https://t.co/TCNlTWvsrU
Find an upcoming HDSA event in your area during HD Awareness Month!
To learn more and register, visit: https://t.co/IFHrUniFVO
#HDAwareness #HDAwarenessMonth #LetsTalkAboutHD #HDWarrior #HDFamily #FamilyIsEverything
Find an upcoming HDSA event in your area during HD Awareness Month!
To learn more and register, visit: https://t.co/IFHrUniFVO
#HDAwareness #HDAwarenessMonth #LetsTalkAboutHD #HDWarrior #HDFamily #FamilyIsEverything
#LetstalkaboutHD and #HDAwarenessMonth with ONNJ, and the HDSA New Jersey Chapter.
Visit: https://t.co/gcd9Oo0IjU and: https://t.co/4xfdNendao
#HDAwareness #HDSA #HDWarrior #HDFamily #FamilyIsEverything
#LetstalkaboutHD and #HDAwarenessMonth with Medical News Today.
Check out this great article highlighting HD Awareness Month, and all the ways you can get involved this May!
Visit: https://t.co/ReJF6ywtM8
#HDAwareness #HDSA #HDWarrior #HDFamily #FamilyIsEverything
The before & after of #BrainDonation! Listen on #Help4HDTV as special guest Brittany McGraw details what was needed to make her loved one's request a reality! #HuntingtonsDisease #HDWarrior #HDresearch
https://t.co/PW3s37HD4q
As #HDWarrior, Todd Knaack, battles #HD, he shares with Leah some of the emotional changes he has faced. Listen on #Help4HDTV TOMORROW at 9am PST to hear this perspective! #HuntingtonsDisease #mentalhealth
Listen: https://t.co/PW3s37HD4q
Have you seen the most recent press release by UniQure? Great news that they have a type A meeting scheduled with the FDA! @Help4HDI #huntingtonsdisease #raredisease #uniqure #AMT130 #genetherapy
#StandUpSpeakUp4HD #hdwarrior #voice4hd
An FDA Type A meeting is "a high-priority, formal discussion for stalled drug/biologic development programs or to resolve important safety issues, designed to get programs moving again by addressing roadblocks like clinical holds, disputes, or post-action issues (e.g., refuse-to-file letters) quickly. These meetings are crucial for resolving urgent roadblocks to ensure product development can proceed without significant delays, with the FDA aiming to grant the meeting and provide a date quickly (within 30 days of request)."
Did you catch yesterday's @Help4HDI Live episode? It was #hduncut on FB and I shared different resources and things we can do while we wait to act in the 1st quarter of 2026. #HuntingtonsDisease #raredisease #Voice4HD #HDWarrior #StandUpSpeakUp4HD
https://t.co/OJQFyE7Eyw
@DesertDweller93 @SenRubenGallego @SenMarkKelly @DanCrenshawTX @BeckyQuick @adamfeuerstein @SenGillibrand @mcuban Hey that's me! βΊοΈ Thanks for sharing! #StrongerTogether #HDPatient #HDWarrior #StandUpSpeakUp4HD
Stand Up. Speak Up. Huntington's can't wait.
Join us. Send your letter to the FDA. Sign the petition. Share this video.
Huntingtonβs families deserve hope NOW.
#standupspeakup4hd
#warpaintchallenge4hd
#hdwarrior #voice4hd #huntingtonsdisease https://t.co/VNS2MJXFeE
@hawkking1515 This is on the FDA, and they are messing with our lives. I don't have the time for that. So we as a community will stand up and speak up. #StandUpSpeakUp4HD #HDWarrior
Make sure to tune in TOMORROW at 4 pm EST to hear Katie Jackson and I talk about the recent UniQure update, what we as a community can do, and the upcoming @Help4HDI HIPE event. #HuntingtonsDisease #raredisease #Voice4HD #DyingToLive #HDWarrior #patientadvocate #careaboutrare
Unsure about the potential of non-drug therapies? Many say they help ease symptoms and offer an enhanced quality of life. Explore options that might do the same for you: https://t.co/PRI9QxO8Ds
#HuntingtonsDisease #HDResearch #LivingWithHD #HDWarrior
I recently got to sit down with Thom Hart of the Critical Path Institute to discuss mental health, advocacy and self-care. You can read the post Thom did here: https://t.co/kTHJpzwzGX
#huntingtonsdisease #raredisease #hdwarrior #patientadvocate #mentalhealth #advocacy #selfcare
Today, fellow @HDYOFeed Ambassador Hannah joined me to talk about being a #youngcaregiver for her mom with #HuntingtonsDisease and how she's become a strong voice for the community. Take a listen here: https://t.co/7N7FKutIjy
#raredisease #HDWarrior #hdyo #help4hdlive @Help4HDI
I got an incredibly important email this morning, guys. This is from @uniQure_NV.
THIS is HUGE for us! ππͺπ #HuntingtonsDisease #raredisease #DyingToLive #AtWarWithHD #Voice4HD #hdresearch #HDWarrior
Here's the link:
https://t.co/5OqdJiAW0G
I'm heading to Washington D.C. for the PFDD meeting with the FDA. As my son likes to say, "Let's Goooooo!!!" #huntingtonsdisease #RareDisease #DyingToLive #letsgetloudabouthd #hdwarrior #patientadvocate #Voice4HD #TimeToSpeakUp #AtWarWithHD
#TikTok https://t.co/xzsuW5lA0v
@TaraBull808 Honestly, it has been a long struggle with my wife's Huntington's Disease, and she is my #HDWarrior and HERO!!!
What an incredible video of Katie Jackson and her daughter Madison. β€οΈ This is absolutely worth the watch. Huge thanks to Sage Therapeutics for making it happen! @Help4HDI #therealhd #HuntingtonsDisease #raredisease #HDWarrior
https://t.co/Glt0qjhJw8
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