Top Tweets for #left2rot
@dysclinic @TaylorDoherty8 @Jacobs_Med_UB @Dysautonomia @AANmember Thank you !
The ICC — International Consensus Criteria d 2011
defined M.E. as neuroimmune.
This has largely bn ignored for yrs & decades.
I hope that U are successful 2turn this around as many more ppl are hit w/ these horrid life-robbing conditions … & really just #Left2ROT
@useless_priest Indeed.
After other testings showed✅✅
my GP doc cheerily declared me *healthy.*
Me—I wouldn’t call being mostly housebound
for approx 2 decades as being healthy.
Doc—Uhav2 pick yr battles.
Me—Yes, we R left in the broom closet.
#pwME #MyalgicE #Left2ROT ☠️
#DISgraceful
@linds_longcovid We get no treatment; we are locked into the disease and just #Left2ROT, whereas w cancer there is treatment. Makes a big difference.
@AnneSpaceCoast I remember that well !!
That was 2010 — 2025 we are still #Left2ROT
in the broom closet.
@arianek @CoRESinai @PutrinoLab LuV this … ‘What’s not in it’🧐
*brain retraining* *Central Sensitivity Syndrome*
aka
corralling + warehousing patients into
NOwhereland … aka #Left2ROT
Grateful to have
this utter NONsense and GASlighting approach sidelined.
We the people deserve genuine medical treatment💜
@arianek You are right !
I sooo feel for you, Ariane 🩷💜🤗🤗
What remains as the status quo in medical neglect
is
Utterly INhumane and Absolutely DISgraceful 😤
#SHAMEful
Literally #Left2ROT
#ThePoliticsOfMedicine 🧐🤨🫨 😫
@JKBurmeister @TurnItUp4ME @CDCgov @NIH *Nath…feeling so hard done by to be questioned and exposed w this *Balderdash* PsychoBabble based
M.E. Intramural Study🧐
[ 17 ppl … different criteria 🙄 ]
*Try being a #pwME
as years &decades pass us by
as we are #Left2ROT & sabotaged in our
advocacy efforts.
*#Shameful
@MEFoggyDog We live it.
We know it.
If we stand in the middle of the street
and we see there is a bus coming at us
— we take ourselves out of ‘harm’s way.’
Logical and simple as that.
#pwME
PENE
Post-Exertional Neuroimmune
Exhaustion / Exacerbation
#MyalgicEncephalomyelitis ☠️
#Left2ROT
“…not fatigue.
They are an inability to accommodate
normal daily exertions.
It’s an important distinction.”
And underlying this is a body that feels very ill,
& as if the body is perpetually poisoned ☠️
We are left #Left2ROT years/decades on.
#MyalgicEncephalomyelitis ☠️
#pwME
Media outlets: Thank you for covering ME, Long Covid, chronic Lyme, and related conditions with more depth and including patient/carer voices. Please note these conditions are not fatigue. They are an inability to accommodate normal daily exertions. It’s an important distinction.
@karenphysiocouk @Marielle_Lee Agree x 3 immensely with your points !!
The poison of #MyalgicEncephalomyelitis
is coursing through our bodies 24/7
and we have been given *not* a treatment
to stop this ☠️ years and decades on.
It’s DISgraceful.
#pwME #Left2ROT
#pwME #MyalgicEncephalomyelitis☠️
Exerting effort / doing
Adrenaline kicks in
Done.
Tsunami🌊🌊🌊of M.E. symptoms
comes crrrrashing in.
⤴️⤵️Post-Exertional Neuroimmune Exhaustion … Exacerbation.
We are UNable 2live life.
NO treatments —#Left2ROT
#VerySevereME=a Worse Nightmare☠️
@sibylle_berlin The Powers That Be
do. not. care.
and they rule the roost.
We have more than enough examples of this,
including death of #pwME years & decades.
#Nightmare #Left2ROT #Death
👿👿👿
@SockFoam Yes … in Canada🇨🇦
Convenient/cheap to throw #pwME under the bus w Central Sensitization Syndrome B.S.
Group Therapy sessions.
And why bother to do testing is the premise—can’t do anything about it.
NO help for #MyalgicEncephalomyelitis in Canada 🇨🇦 🚫
#Left2ROT #BETRAYAL
“ENERGY PRODUCTION”
affects the entire body—ALL bodily systems ‼️
#MyalgicEncephalomyelitis
#MyalgicE
#pwME
Why are we #Left2ROT our lives away ⁉️
@PeonyLeaves905 @scott_scientist ONgoing discrimination @NIH
Nath then leaves us #pwME buried in his
#NIH *Effort Preference* Sham Study.
#RetractNathPaper
#SendWalittPacking
Watch out #LongCoVid should #Nath set his pattern of angst+ #Walitt PsychoBaBBle-BaBBle against you.
#MyalgicEncephalomyelitis
#Left2ROT
@JKBurmeister Ohhh, no harm at all … #Walitt.
We are just #Left2ROT for decades,
our lives completely DEStroyed ☠️
No harm ‼️
That is straight up lies🤥🤥, B.S.
and GASlighting.
#RetractNathPaper
#SendWalittPacking
#MyalgicEncephalomyelitis
@carpat21 @TurnItUp4ME @MEActNet @NIH Ditto here ...
Countless lives are on the line over decades‼️
There is NO.vacation.from #MyalgicE.
Not-one-minute ☠️
It is a pure helluvan UNlife for #pwME
#Left2ROT Lives + families DEStroyed
#RetractNathPaper
#SendWalittPacking
#NIH
@KathyCollett7 @JKBurmeister Institutional hatred of #pwME
DIScrimination against a very ill
**ever-growing
patient population,
**cuz @NIH @CDCgov
have done NOthing 2help us
Only harm — in the dustbins of ‘fatigue,’ ‘malaise,’
+ new from thr greatest hits ‘Effort Preference.’
#Left2ROT
Shame.on.them.all‼️
@JKBurmeister They were asked 2donate their time cuz ‘The #NIH Study’
= lowest of low priority.
I mean 17 participants / 8 years
WoW… just WoW on the quotes of
Nath’s poor-me-sob-story above.
Funny…as a #pwME I’m just not feelin’ it.
#Left2ROT
#RetractNathPaper
EffortPreference—>#NathsWrath
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