Top Tweets for #missingmoreGET
@CMonaghanSNP @MEAssociation My son was seriously harmed by GET, even after he lost the ability to walk, becoming wheelchair bound, & having a fit in the therapy pool caused by high pain levels caused by the exercise, he was still given GET. We needed a charity to intervene & stop the harm
#tedxbristol #daretodisrupt #esthercrawley #stopget #harmedbyGET #EnergyMetabolismME read patients experience of harm here #missingmoreGET https://t.co/TXVorei1ev
@rmounce Over 100 scientists & patient organisations send letter 2 PM. Working 2gether. Teamwork. Seeing eye 2 eye just fine
https://t.co/yjecF4QIeD
Our last #MissingMoreGET post for #MEAwarenessmonth and #MillionsMissing
#NICEguidelines… https://t.co/dc4kuR6o77
Have you read our #MEawarenessmonth series of #MissingMoreGET personal stories about #patientexperience of exercise with ME? #stopGET #pwme https://t.co/VsT4KQrRZM
#FINEtrial #harmedbyGET #missingmoreGET #stopGET #kidswithME #pwme #energymetabolismME https://t.co/tngrcPZsxC
She writes in BMJ 2010 FINE on primary outcome 70 weeks showed no benefit on all measures. - how can she lecture on the success of the model
#harmedbyGET #missingmoreGET #stopget #AHRQdowngradedCBTandGET #IOMreportME #kidswithME #pwme https://t.co/vqffbVsQoX
Wearden states that her FINE trial treatment was "somewhat effective" - sorry Prof Wearden, it showed the opposite, it's not effective!
#MEcharities #esthercrawley #kidswithME #pwme #fitnet #stopget #stopMagenta #landmarkchangetoUKlawonconsent #haremdbyGET #missingmoreGET https://t.co/0BhTgwOXGb
@johnthejack @ClrBlwrs @emmajoy6 @consent_patient Thanks John. Deeply worrying - Crawley now knows she can continue to publicly misrepresent and vilify patients - with AfME's support.
Today's #MissingMoreGET story
#MillionsMissing #stopGET #pwme #MyalgicE #healthcare #patientvoice #NICEguidelines #MEawarenessmonth #spoonie https://t.co/ZJsFSFRBIi
Missing More: improve first then do more https://t.co/ffiWtuvjZx
#MissingMoreGET: graded exercise made my world smaller
Some of the #MillionsMissing are… https://t.co/QHxYODf0n8
Relapse after following advice to increase exercise during a research trial. #MissingMoreGET #MillionsMissing #MUS #stopGET #pwme #health https://t.co/maNzZkKQFW
Missing More: after research trial. Rosa's harrowing tale of… https://t.co/1aBKh2DYd8
#adaywiththemuppets #gettingotwrongonCFS #haremdbyGET #missingmoreGET #stopget #kidswithME #pwme https://t.co/tqFan1MQjH
@CGATist @MECFSquestions @profvrr Academics and scientists around the world now know that Dr. Crawley and the PACE team are the "anti-science" crowd. No debate on that one.
Today's #MissingMoreGET post. #stopGET #MillionsMissing #healthcare #pwme #occupationalhealth #MEawarenessmonth #patientempowerment #spoonie https://t.co/uqxn0uWSDK
Brett's story of having to comply with harmful exercise regimen to keep his job… https://t.co/tmUXrdEMGc
See the #MissingMoreGET #stopGET #patientvoice stories here https://t.co/uqVBnvgpIC
@stopGETteam could do with 3 more stories email us #pwme
Jaime's story of her reaction to home graded exercise therapy
https://t.co/GtqHkeUrjf
#MillionsMissing #MissingMoreGET #stopGET #health
#stopGET #MissingMoreGET #MillionsMissing #NursesWeek2017 #MEAwaranessDay #May12BlogBomb https://t.co/ZU8BjbrPfJ
Missing More: the exercise broke me STOP G.E.T. https://t.co/aIjvlybyYt via @stopGETteam
#harmedbyGET #missingmoreGET #MEguidlines #IOMreport #energymetabolismME #multisystemicME #NursesDay2017 #MEAwarenessDay https://t.co/UueHG2ajtA
#NursesDay2017 #harmedbyGET #missingmoreGET #kidswithme #pwme #millionsmissing #stopget clock on the Hashtags for more info #MEAwarenessDay https://t.co/sZUXWEM4Ya
"IF IT WEREN'T FOR ALL THESE PEOPLE I'D PROBABLY BE BETTER BY NOW" #MillionsMissing poster by @tymestrust member Katie &dad #MEAwarenessDay
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