Top Tweets for #nihchat
The latest Behavioral Neuroscience Daily! https://t.co/CXbRORaFkl Thanks to @NatureNeuro @314159K @imperative_the #neuroscience #nihchat
Just finished the #NIHChat on #RareDiseases. HUGE 🙏to all of the participants! And thank you to our fellow @NIH tweeters: @nih_nhlbi @TheBethesdaLabs @NINDSdirector @AllofUsCEO @NIHClinicalCntr @NIHBrainTumor @NCI_CCR_PedOnc and the @ncats_nih_gov staff @ORDR.
Thank you for participating in #nihchat! Visit us at https://t.co/jm8xM4taDb to learn more about the Rare Diseases Clinical Research Network
Rare diseases can be conquered and suffering can be alleviated when innovators are emboldened with resources to do their jobs. Don’t let anyone take the petal off the innovation metal. #NIHchat #RareDisease
Q6: What advances or breakthroughs in rare diseases research do you hope to see in the next decade? Share a recent advance that makes you excited about the future. #NIHchat
Thanks to everyone who participated in today’s #NIHchat on rare diseases! Please tune in to #RareDiseaseDay at #NIH on 2/28 for panel discussions, rare disease stories, virtual exhibits & scientific posters. More info: https://t.co/4UvwSAaGwC
That ends our #NIHchat for today! Thank you to everyone who answered questions and participated in this important discussion. We hope to see you at #RareDiseaseDay at @NIH on Monday, Feb. 28: https://t.co/vAZFAMdJwt #RDDNIH
Registries for all. Nonprofit, Facebook group, N-of-1? We have a free system for you to engage your community, safely and securely gather data, conduct studies, and keep control. Oh, did I say free? YES! #NIHChat @GeneticAlliance @LunaDNA_
Approximately 95% of all lab animals are rodents that are bred specifically for research. Genetically modified rodent models of rare diseases help medical scientists better understand paths forward for treating such conditions. https://t.co/a565HvTbdE #NIHchat
I am signing off of the #RDD #NIHchat. Hope to see many of you at the #NIH Rare Disease Day event next week #RareDisease #RareDiseaseDay Feb. 28th, virtual and free to register.
A6: You can subscribe for updates from the @GlobalGenes #RareDaily for the latest news, advancements, and updates across the industry https://t.co/NuoyVx7fsK #NIHchat
A6: Registration will open soon for the RARE Drug Development Symposium taking place June 8-10 in Philadelphia, PA with @ODC_UPenn. We'll be focusing on advancements in drug dev...in a format that you haven't seen before! We're excited to spill the beans soon! #NIHchat
A6: Our #Porphyrias Consortium has made steady progress advancing understanding of and care for these potentially severe and debilitating disorders. In recent years, progress has led to new treatments: https://t.co/bZqS674Gna #NIHchat
And, common conditions are also rare when stratified by genomics/genetics. We are all in the same boat. Now grab the oars and let's row together! #NIHchat
@ncats_nih_gov We are not as “rare” as we may seem. Every step towards research and breakthrough is a step forward in saving a life ! The need is greater than ever now to be the change #NIHchat @GlobalGenes
The type of advice we would give people is dependent on whether they are parents/guardians, the patient, a care partner or a sibling. Advice is also dependent on if the disease symptomatic and if they want to explore #rareAdvocacy or #rareActivism... #NIHchat
Q4: What advice or resources would you give people beginning their rare disease journey? #NIHchat
A1: #RareDiseases are a pressing public health crisis. To change the rare diseases landscape forever and bring more treatments for rare diseases more quickly, we must all pull in the same direction. https://t.co/ypBMgQlFzw #NIHchat
Q6: What advances or breakthroughs in rare diseases research do you hope to see in the next decade? Share a recent advance that makes you excited about the future. #NIHchat
A6: Our #BrittleBone Disorders Consortium just published research on a potential treatment for Osteogenesis Imperfecta that targets #TGFβ. Read about it here: https://t.co/a7bTPrIgJU #NIHchat
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