Top Tweets for #pIBD
What does "normal" bowel wall thickness look like in kids with IBD in deep remission?
New data helps define it—supporting better use of intestinal ultrasound for monitoring and healing assessment.
🔗 Full study: https://t.co/3VydVCYtmI
#PIBD #GIResearch #ESPGHAN #JPGN
Mental health screening in #PIBD is essential—but long, frequent forms are a barrier.
This study shows routine screening is feasible if it’s designed with patient needs in mind.
🔗 Read the study: https://t.co/wn7g7LsiwG
#MentalHealth #ESPGHAN #JPGN
A relatively small N but this study highlights the challenges associated with EEN. I have to wonder if some of these challenges could be mitigated by ongoing parental & patient peer support? #CoProduction #pIBD @ImproveCareNow
In a recent article for @JPGNReports, Sandrine et al. evaluate the short-term acceptability and long-term tolerance of exclusive enteral nutrition in children with mild to moderate #Crohnsdisease.
Learn more: https://t.co/Ru7Cpnwg3I
So true!! I’ve seen this first hand - Kids have so much to teach us!❤️#pIBD
You might be surprised, and even a bit humbled, to see how brave and coping kids can be in the face of chronic and complex illness. Key ingredients to their resilience? Hope and love. #pediatrics #graphicmedicine
Okay #pIBD community - It’s time to educate & activate. Let your representatives know the drug choice and treatments should be left to your child’s doctor 🚫 PBMs or insurance companies! @ImproveCareNow @NASPGHAN
@senwarren @SenMarkey @RepAuchincloss Say NO to the #Biosimilar Red Tape Elimination Act which does not protect pediatric patients. I'm a physician & should have final say on Rx treatment, not insurers & PBMs. @RepJeffries @SpeakerJohnson @HouseCommerce @EnergyCommerce
@ESPGHANSociety Great delegate-faculty interactions and discussions throughout the #ESPGHAN #PIBD Masterclass in Dublin. Safe home, build your career, smash glass ceilings, connect, network, join the ESPGHAN IBD Special Interest Group, value colleagues, mind yourselves, enjoy!
@ESPGHANSociety @IBDireland @CHFIreland @CHI_Ireland Prof Richard Russell leading the #PIBD Masterclass in #Dublin on scoring systems in #IBD
@DCharabaty @my_ueg @rafeeq_rm @DrRosenIBD @pedsIBDdoc @JKurowskiMD @sabpeds @dziring @JeremyAdlerMD @drjshapiro @SCKimIBDMD @pricetedwards #pIBD pts. are not little adults. They face unique challenges - Not the least of which is limited medication options (only 2 w/FDA approval for pIBD), 🚫Long term PK, PD, or safety registries. We need to do better for kids /IBD. @NASPGHAN @ImproveCareNow
An incredibly important initiative- Thank you for your advocacy @NASPGHAN!! #pIBD @ImproveCareNow #PFAC @ICNPatients
Multi-society letter to @DrCaliff_FDA on draft guidance for developing Rx for IBD requests new study paradigm for creating more pediatric IBD treatment options. Read the letter. https://t.co/5nbcD9nQ39
Amazing progress by Paediatric team! MiniMUSIC https://t.co/flMCP4dZBq >50% (34/60) target of newly diagnosed Crohn's disease achieved way ahead of schedule! V positive response from young patients + families across Scotland #crohns @CrohnsColitisR @echcharity #pibd @UofGlasgow
FC levels show varying correlations with inflammation depending on the specific bowel segment that is affected
Patients with #CD assessed by VCE
Very useful to have these cutoffs
✅ proximal SB FC>=77
✅distal SB FC >= 123
✅ colonic FC>=291
Congratulations, this is a very nice study!
It’s not too early to be thinking about school accommodations for kids who have IBD. It’s not “special treatment”, it’s leveling the playing field. Think of it as an insurance policy that helps ensure your child has what they need to succeed!! @ImproveCareNow #pIBD
📚✨ Check out our blog on navigating accommodations, including 504 plans and IEPs for students with IBD. 👨🏫 Read it now! https://t.co/AFRzsvKw35 #IBD #SchoolSupport
Fascinating study on the impact of EEN on the microbiome and immune system. More studies are needed to fully understand the impact but interesting glimpse into how it can contribute to remission for CD pts. @@ImproveCareNow @NASPGHAN #pIBD
What if the benefits of exclusive enteral nutrition for #Crohnsdisease are related to its impact on immune cells?
🆕 findings from @Bernie1234White, @PaedsRH, @KGerasimidis, @s_milling & colleagues 👇
📌 8 weeks of formula-based diet (no solid foods) impacts host immune cell profile in 9 children with #Crohnsdisease
These changes:
🔸were conserved in patients who achieved remission
🔸persisted in children who achieved remission and followed the nutrition formula consistently
💡What is new?
1⃣ EEN led to:
🔸⬇ TEMRA T cells and natural killer cells (associated with chronic inflammatory conditions)
🔸⬆ Central and effector memory CD8+ T cells (confer protection or further amplify the response at inflamed tissues)
2⃣ The impact of EEN on immune cells was independent of concomitant medication use (Azathioprine, Mesalamine, Budesonide, Prednisolone)
3⃣ Enteral nutrition led to changes in immune cells that persisted in children who achieved clinical remission or followed the nutrition formula correctly and consistently
🧑🔬 The authors hypothesized:
These findings are a consequence of the action of nutrition formula in decreasing the diversity of gut microbiota ➡ ⬇ recruitment of immune cells from the blood into the intestine.
🎯Now we are closer to understanding that the benefits of replacing all food and drinks with specialized liquid nutrition formulas for inducing Crohn's disease remission in children is partially related to changes in the immune system.
We look forward to upcoming research looking at the role of counterintuitive effects of EEN on gut microbiota in decreasing the activated immune response seen in Crohn's disease.
More contributions from @DOCHAS_ @NCRCIre @CHI_Ireland presented at #ESPGHAN2024 on #PIBD treatment outcomes and #TDM monitoring of #infliximab - starting 10mg/kg/dose was a more effective dose-to-target strategy.
Delighted to see some of our #PIBD contributions from @DOCHAS_ @NCRCIre @CHFIreland @CHI_Ireland at #ESPGHAN2024 meeting in #Milano.
Community Proposed Breakouts are when we #AllTeach #AllLearn about topics of interest to our #pIBD community 💚💙 Share your observations + 🗝️ takeaways
#ICNCC24S #TogetherWeCan #ImproveCareNow #Clinical #Data #Technology #Psychosocial #IBD #Transition #SupportGroup
Last Seen Hashtags on Sotwe
Transwoman
Seen from Indonesia
NOlimit filter:videos
Seen from Germany
bleachededit
Seen from Turkey
chakalesmexicanos
Seen from Colombia
momson() filter:media
Seen from Ukraine
minatorie
抖音风剪辑
Seen from Malaysia
TPMSpooky
Seen from United States
momson or #exny or #momson or #nolimit() +filter:native_video()()
Seen from Turkey
drunk #straight
Seen from Korea
Most Popular Users
Elon Musk 
@elonmusk
241.1M followers
Barack Obama
@barackobama
119.1M followers
Cristiano Ronaldo
@cristiano
112.4M followers
Donald J. Trump
@realdonaldtrump
111.8M followers
Narendra Modi
@narendramodi
107.1M followers
Rihanna
@rihanna
98.1M followers
NASA
@nasa
92.2M followers
Justin Bieber
@justinbieber
91.3M followers
KATY PERRY
@katyperry
88.7M followers
Taylor Swift
@taylorswift13
82.6M followers
Lady Gaga
@ladygaga
74.1M followers
Virat Kohli
@imvkohli
71.5M followers
Kim Kardashian
@kimkardashian
70.3M followers
YouTube
@youtube
68.7M followers
Bill Gates
@billgates
64.4M followers
Neymar Jr
@neymarjr
64.3M followers
The Ellen Show
@theellenshow
62.4M followers
CNN
@cnn
61.8M followers
Selena Gomez
@selenagomez
61.7M followers
X
@x
60.8M followers