Top Tweets for #pfwarrior
The paper has been submitted for #PeerReview, but knowing how long it takes to get a paper out, we decoded to share it early, to inform & inspire others, the #PFWarrior and #CurePF4All communities
We hope, with review it gets better
#PreprintsMatter https://t.co/yyX28bn7D2
What a powerful way to start Monday at #ATS2025.
Theresa Genovese didnโt just share her PF journey: she stood alongside world-class researchers and reminded everyone why the science matters.
Not just biomarkers. Lives.
@PFWarrior
#PFWarrior #PulmonaryFibrosis
We are excited to kick off Monday with this #ATS2025 #ScientificSymposium featuring our PF Warrior Theresa Genoveses!
"BIOMARKERS IN PULMONARY FIBROSIS: GLEANING THROUGH AN OMICS LENS:
Session Chairs: @ILDIPFDoc_NI , @AnnaPodolanczuk , and @aravindamenon
Happy Independence Day! ๐บ๐ธ Today, we celebrate the values of freedom, independence, and a brighter future. We also salute the incredible resilience and strength of our PF Warrior community. #4thofJuly #PFWarrior #curepf
#HappyFriday to the #PFWarrior community - the MOST UPDATED guidelines for Idiopathic Pulmonary Fibrosis + Progressive Pulmonary Fibrosis are out! Read super๐งตfrom @drdayjee & paper. https://t.co/BvrooOx3G3
kudos @KevinCWilsonMD1 & team
@atscommunity @EuroRespSoc @ALATorax #JRS
๐ฅFinally out online: the latest multisocietal guidance defining progression in fibrotic lung disease๐ซ has arrived!
These long-awaited guidelines help better clarify disease definition and guide treatment
https://t.co/LVuoVdZRj2
What does this mean? Hang on to your hats! ๐งต1/n
To all our respiratory patients (especially #PFWarrior), families & caregivers. If your doctor , dentist, nurse or tech isnโt wearing a good mask (N95) mask, you need to ask them why. Make sure to have one for yourself. h/t @tmprowell #StaySafe #MaskUp
#MedTwitter Pro-tip: If your doctor or dentist isnโt wearing an N95/KN95/KF94 mask in a medical setting, you need to ask them why & then get yourself a new one. For real.
If you have experience of #ntm lung disease please fill out this survey to help us map the patient journey! https://t.co/luebRCRKrf #cysticfibrosis #cfwarrior #pulmonaryfibrosis #asthma #pfwarrior #lungdisease #copd #bronchiectasis
๐ฃ Shout Out to Kevin Olso, our Pulmonary Fibrosis News columnist ๐ฃ
In his column, he aims to awareness for those traveling on their PF journey.
๐ He also provides awareness through his local Pulmonary Fibrosis Foundation
https://t.co/2MkomuUbix
#PFwarrior #PFadvocate
Understanding the patient experience in non-tuberculous mycobacteria lung disease. Pls fill out this survey if this is you! Thank you!
https://t.co/6CbJZXPToi
#cysticfibrosis #cfwarrior #pulmonaryfibrosis #pfwarrior #asthma #copd #pcd #Bronchiectasis #lungs #cfpatients
Columnist Charlene Marshall examines the highs and lows of life with Pulmonary Fibrosis. Do you relate? Let us know in the comments below. Read Charlene's column here: https://t.co/NbdlzNkHcS
#PFnews #PulmonaryFibrosis #PFwarrior #lifewithPH #PFlife
losing a parent sucks. tomorrow is a year & a half since my dad has been gone and still most days I struggle bad. miss u daddy-o. @PFFORG #pfwarrior #breathe ezyโฅ๏ธ
. @PFFORG #pulmonaryfibrosis is a scary, sad, deadly disease with no cure. It causes patients to suffocate and the only โcureโ is a lung transplant. My dad was a #pfwarrior and lost his battle in 2019 #bachelorette #BacheloretteABC #TheBachelorette https://t.co/0aSACnSFEO
The #bachelorette just brought awareness to #pulmonaryfibrosis thru Ivanโs family. My heart breaks for his Dad. My Dad lost his battle in 2019 @PFFORG #pfwarrior #SpreadTheWord
Use of the patientMpower App With Home-Based Spirometry to monitor the Symptoms and Impact of Fibrotic Lung Conditions #IPF #PFWarrior #CureILD โข Background: Daily home-based spirometry in idiopathic pulmonary fibrosis (IPF) has been shown to be feasible.
Are you living with #PF? โ๏ธ
3๏ธ top tips:
โ๏ธSeek out psychological & physical help.
โ๏ธEat a balanced diet and take regular exercise.
โ๏ธ Join a support or association group.
www.eu-ipff
#MyIPFstory #spoonie #idiopathicpulmonaryfibrosis #PFwarrior #CureIPF
Liquid Oxygen Recommended for Mobile Patients With Lung Disease #CureILD #PFWarrior https://t.co/f9XEuH5reQ
Are you living with a form #PF? โ๏ธ
Remember that you are not alone! ๐งโ๐คโ๐ง
Attend a patient support group โ connect and share your story with others.
https://t.co/QC7pKP2KsQ
#MyIPFstory #spoonie #idiopathicpulmonaryfibrosis #PFwarrior #CureIPF https://t.co/Vr8jhixWvR
Over 300,000 Europeans are forced to live with #PF. ๐ช๐บ
You are NOT ALONE ๐ง๐ปโ๐คโ๐ง๐ป Reach out, join a support group and share your experience. ๐
#respiratoryhealth #RareDiseases #PFwarrior #makeeverybreathcount #HealthForAll
https://t.co/HIucDlZ0K4
Calling all #PF patients ๐ข
Empower yourself and others by creating & sharing a video of your #PF story today ๐น
Share your experience and tag #MyPFstory and #MyIPFstory. ๐ช๐บ
https://t.co/WNa2RaPG5w
#MyPFstory #spoonie #idiopathicpulmonaryfibrosis #PFwarrior #CureIPF
Israeli COVID-19 treatment shows 100% survival rate - preliminary data #CureCOVID19 #PFWarrior https://t.co/3PUYD2BteW
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