Top Tweets for #raredc2016
#ThrowbackThursday to #RareDC2016 when I got to meet with @CongressmanGT and discuss issues facing the #RareDisease Community #HoFH
Stay tuned to our facebook page to see Jill speaking at the Rare Disease Caucus. About 20 minutes from now! #RareDC2016
Our 2016 Rare Artist contest is closed but you can still vote for your favorites. Check out the amazing entries at https://t.co/nUaj8KVU2T
@kimberlyratliff PPT from breakout session led by @taylorstale at #raredc2016 on state #raredisease council online: https://t.co/JAspflOySk
New #raredisease resource! Videos & presentations from Legislative Conference during #RareDC2016 available at https://t.co/BHGkWmN8Cm
Check out videos & PPTs of speakers at Legislative Conference during #RareDC2016 (inc @US_FDA & @NIH) at https://t.co/vzmVAf0V62
ICYMI: Video of Dr. Califf of #FDA, @RepFredUpton & @RepGusBilirakis addressing #raredisease advocates https://t.co/ceYFI94Gog #RareDC2016
ICYMI: Great blogpost on #RareDC2016 by @CureHHT https://t.co/QNv5bRvGIi We agree one #raredisease advocate can make a difference!
ICYMI: video of #RareDisease Congressional Caucus Briefing during #RareDC2016 https://t.co/XqETo12PWP Hear why we need OPEN ACT & #CuresNOW
Thanks to @CureHHT for the great blog on how #raredisease advocates made a difference at #RareDC2016! https://t.co/kixDN05K61
Thanks to co-chairs of #RareDisease Congressional Caucus for participating in briefing during #rareDC2016! Video at https://t.co/ShQd6nwbgH
Thanks to Rob Whan of @CalebsCrusade for his recap of #RareDC2016. We are glad you joined us! https://t.co/6GKlRjbHT5
Thanks to Dr. Califf, @RepFredUpton & @RepGusBilirakis for speaking w/ #raredisease advocates at #RareDC2016 https://t.co/3nOKPR68cI
Thanks to Dr. Califf, @RepFredUpton & @RepGusBilirakis for speaking w/ #raredisease advocates at #RareDC2016! Video: https://t.co/OvmzOrZ0mw
#RareDisease Congressional Caucus Briefing during #RareDC2016 video is online https://t.co/BQUNL89vZN Hear why we need #CuresNOW & OPEN ACT!
Thoughtful reflections on #RareDC2016 from @MarcYale & @healourskin team https://t.co/9Rw3fKgSId We hope you will all join us next year!
Our March newsletter provides updates on #newbornscreening, #RareDisease Caucus, #RareDC2016, @Campaign4Cures & more https://t.co/rlG59uWBOK
Our March newsletter provides updates on #newbornscreening, #RareDisease Caucus, #RareDC2016, @Campaign4Cures & more https://t.co/rlG59uWBOK
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