Top Tweets for #symveki
Sending a thank you to my former MP @spellar! We got a deal!! Thanks for all of your support. #Orkambi #symveki #lifesavingdrugs4cf
@NormalLife7 @jodavidson65 When your fabulous bundle of joy comes along and quickly becomes a toddler, you can kiss goodbye to your own private room! Make hay while the sun shines!! 😊
#Orkambi #symveki #cysticfibrosis
@MattHancock @PHE_uk Is this a sick joke?! I’ve spent nearly 4 years fighting for #Orkambi #symveki and a #pipelinedeal between you and @VertexPharma!
You’ve got a few weeks off work now @MattHancock. Use the time productivity, meet #jeffleiden, do the deal and save lives.
@Anna_L_B @JustTreatment @VertexPharma A solution for those who can afford it for now!
@MattHancock needs to either do a deal with @VertexPharma or, if #jefflieden refuses to reach a deal, @NHSEngland must put everyone eligible for #Orkambi and #symveki on a clinical trial for the generic.
#lifesavingCFdrugsnow
Children all over the 🇬🇧 have written begging letters pleading 4 their lives to @theresa_may @10DowningStreet @MattHancock they are #DyingWaiting 4 #Orkambi #Symveki @10DowningStreet @NHSEngland have ignored them, #ThisIsUK2019 #Unethical
This #ChildrensMentalHealthWeek, we urge the Government to place children and young people’s well-being at the heart of their policy.
Read about our joint report with @CommonsEd here: https://t.co/h3zOZMmrUR
Our Children with #CF would have that bright future if @NHSEngland @DHSCgovuk @theresa_may stopped this cruelty & gave access to #Orkambi #Symveki #PrecisionMeds4CF to ALL children they are STILL #DyingWaiting #Unethical
Today is #CarersRightsDay and we are supporting @CarersUK
This year's theme is 'Caring for your Future'.
Further info: https://t.co/qIlqPnjvyK
#CarersRightsDay2018
So you’ll be Funding #Orkambi #Symveki #PipelineMeds4CF for ALL children to keep them out of hospital & end this shambles @theresa_may @DHSCgovuk
NEWS: We’re giving vital community & primary care services £3.5bn to cut needless hospital admissions & help patients return home sooner
https://t.co/YluSQTliAM
Prevention indeed @MattHancock what about the thousands of #cysticfibrosis children who are desperate to prevent their decline with #Precisionmeds #Orkambi #Symveki that all of the EU have access to #unethical #dyingwaiting 4 @NHSEngland
Health secretary @MattHancock urges the chronically ill not to hoard or stockpile personal supplies of medicine against risk of no-deal Brexit - insists government is making proper contingency plans
Indeed the right concept which is why #Orkambi #Symveki #pipelinedrugs are crucial to #stoptheclock for our #CF children, who can then lead normal lives & contribute to society #DyingForADecision
My interview in the @Telegraph today on how we’re putting prevention at the heart of our health and social care system to improve the health of the nation for the long term
ICYMI: Fantastic to be at @ExpoNHS yesterday & speak about how we’re going to bring the best technology in the world to the NHS. My full #Expo2018NHS speech: https://t.co/odrhaUu6W5
Please @MattHancock @theresa_may @GavinBarwell @NHSEngland #SimonStevens @VertexPharma #JefferyLeiden don’t let our Children suffer anymore Give them the lifeline they deserve #orkambinow #symveki #Pipelinedeal
⚡️ “UK fight for life-saving cystic fibrosis drug Orkambi”
https://t.co/n1JYOSZ5nB
But WHAT ABOUT US ? The Children & their loved ones who Wrote to you ??? Begging for their lives @theresa_may ‘Speedy Resolution ‘ when ? is this good enough ? While We Loose 3 young lives a wk in UK #Inhumane #ukneedsorkambinow #Symveki #Pipelinedesl
As we negotiate a bold new partnership with the European Union, we will continue vital work at home to build an economy that works for everyone. https://t.co/zIHGZNvDq9
Indeed that us EXACTLY what we @fight4orkambi @sade_39 need, Our children are Dying Matt but #Orkambi #Symveki #TripleCombo will give them a future like your children & save the @NHSEngland in the long run #nobrainer Please be the hero here
.@MattHancock #OrkambiNow is the only available treatment to tackle the cause of deadly disease #CysticFibrosis - reducing 1.symptoms daily, 2.need for medical help, 3. lung decline (by42%) 4. hospital admissions (by 61%) 5. mental health issues for patients & family -UK needs it
A huge thank you @thismorning @EamonnHolmes @RuthieeL for covering brave Luis’s desperate plight to get @VertexPharma & @NHSEngland @theresa_may to give him a brighter future with #Orkambi #Symveki & pipeline drugs, these drugs are available in 🇮🇪
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