Teresa #kaftrio

campaigning 4 ALL fighting this hideous disease #CF 2 have the best Precision meds #LifeSavingDrugs4ALL on the NHS #STOPTHECLOCK #WeHaveKaftrio #Now4thelast10%

[#UK CF campaigner Sharon @CFno1LeftBehind]

Love this💛

#cysticfibrosis
@VertexPharma @blakeydark @DavidRamCFT @cftrust

Thanks @ChrisMRiches & @Daily_Express for all you continue to do for the CF community

Your commitment is unquestionable & we are lucky we had you help in the fight for #lifesaving #kaftrio on the #NHS

[#UK CF campaigner Sharon @CFno1LeftBehind]

Great news #Australia🇦🇺

@VertexPharma #kaftrio #trikafta really is the game changer we all hoped for

Great to see another country funding this #lifesaving #cysticfibrosis #precisionmedecine
It’s the future but 10% of pwCF are waiting for their turn
#loveScience #cf @cftrust

[Liam Mc Hugh @liammchugh1961]

Today I reached a major milestone of raising £300,000.00 for @cftrust on my 60th Birthday. So looking forward to running another @LondonMarathon this Sunday People living with CF have got such a bright future ahead because of life saving drugs. Thank you everyone for your support

[Emma Ward @emmagadie2009]

https://t.co/yaiBLhb485

Wow!!!! 👀 #cysticfibrosis

[Teresa #kaftrio @CFinit4ALLuk]

@fatallyfibrosed Congrats you should be very proud 🤗

[Teresa #kaftrio @CFinit4ALLuk]

@fatallyfibrosed Congrats you should be very proud 🤗

[Ali Dillon 💙 NHS @Alidilly]

Come on @LloydsPharmacy I can’t believe this is still happening! We’ve had people in our community having to miss days of their #Kaftrio having fought for years for it it’s not fair for them to hv to stop it coz u can’t deliver it in time!

[#UK CF campaigner Sharon @CFno1LeftBehind]

#HappyBirthday @ChrisMRiches 😂

[#UK CF campaigner Sharon @CFno1LeftBehind]

@Alidilly @Matthew_Wright @GratefulDead We will continue to be extra careful

We have to wear the better quality 😷 so we can be safe from the #COVIDIOTS who don’t care about those in our communities that are more vulnerable

Cheers…not Boris🙄

Got my new #cysticfibrosis #65roses mask
Love it

@CambridgeMaskCo

[Emma Corr @EmmaKCorr]

👏🏻👏🏻👏🏻

[Teresa #kaftrio @CFinit4ALLuk]

@jilli09 Shocking

[Ali Dillon 💙 NHS @Alidilly]

#cf is a degenerative disease there’ll always be need 4 best drug. In Devolved nations NO criteria except having the correct genes, in Eng a case has to be made for each person! They hv CF there’s yr reason! Simon Stevens said rest Uk cld tag on our deal.. they hv better deal!

[#UK CF campaigner Sharon @CFno1LeftBehind]

Thanks @Daily_Express @ChrisMRiches

But why did Hayden have to deteriorate to access #kaftrio when we’re told off label for some CF🧬CAN happen if there’s clinical need

Isn’t there always “Clinical Need” for a superior drug? Like in Scotland😡

@cftrust @NHSEngland😡

[Strawfie Challenge @strawfie]

Pls RT for the 10% who still need their breakthrough - and of course to help find a cure for all, because modulators are amazing but they are not a cure. #cysticfibrosis

#Liam300K #GoLiam #CFTrust #Health #charityUK #charity #CFAwareness @liammchugh1961

https://t.co/9DYQOR2UhU

[Ali Dillon 💙 NHS @Alidilly]

Simon Stevens was clear in his statement re following FDA 4 Kaftrio. Rest of UK has, but England hasn’t. NHSE now saying u need to show decline is NOT Equality. Everyone who is not receiving Kaftrio (triple therapy) will be declining or hv the potential to rapidly decline.

[Ali Dillon 💙 NHS @Alidilly]

Congratulations to our friends in #PKU community wonderful news for under 18’s, shocked to hear over 18’s hv been denied. The CF community are behind you and ready to help however we can, you have @ChrisMRiches & @Daily_Express on the case though and we know they won’t give up!

[Jillian McNulty @jilli09]

I just can’t think about needing to stay alive with dialysis for years so I really need your help. I’d love a new lease of life I’m so excited about the future on #kaftrio.I desperately need a kidney. Please like & share💞#cysticfibrosis #altruism #kidney #transplant #obloodtype

[#UK CF campaigner Sharon @CFno1LeftBehind]

@Alidilly @cftrust @NHSEngland Exactly this .@matthancock

This isn’t what you would have wanted I’m sure
These finer details do matter
Please intervene
Thanks
#Kaftrio
@ChrisMRiches @Jeremy_Hunt @CommonsHealth @cftrust @DavidRamCFT @MrslloydDenise @Marion_Super @CFQuestForCure @mc_maggs @blakeydark @pmrleahy

[Ali Dillon 💙 NHS @Alidilly]

@cftrust Nothing new here though we know this. I only have one question. If @NHSEngland got such a great deal, WHY don’t English Patients have Same access as Scotland, NI and Wales already? Thank you.