#Lifesavingdrugs4cf #Kaftrio

We Need Everyone's Help
In Our Campaign For Access To ALL Precision Medicines For People With CF In The UK. Please join our FB group.
👇🏾

[Vertex Save Us @VertexSaveUs]

Loz's time is short. #trikafta can save her. If Loz lived where @VertexPharma saw a mkt, she'd have 'compassionate' access. Loz lives in #SouthAfrica where life expectancy w #cysticfibrosis is 21 & there's not enough profit. But she CANNOT just be left to die. That's why today..

[Chris Riches @ChrisMRiches]

Heartbreaking. We all @Daily_Express are praying Ben travels to Geneva soon and gets his lifesaving double lung transplant. He should be able to get it here on #NHS. @cftrust @MattHancock @blakeydark @BorisJohnson @RBandH #dailyexpresscrusade4cf @nhsuk https://t.co/oAQqRQsp7d

[#UK CF campaigner Sharon @CFno1LeftBehind]

@ChrisMRiches @Daily_Express This couldn’t have happened without your amazing campaign which helped us win our fight for this miraculous drug
#Kaftrio will give @jess_cranfield hope for a longer healthier life

What more could I ever give her
I love you Jessica So happy for you🥰

[Emma Corr @EmmaKCorr]

Six months apart. Three kgs heavier, 6cm taller and no longer poorly every few weeks 💕 thank you @VertexPharma @MattHancock @NHSEnglandMedia Orkambi has changed our lives! Can’t wait for #Kaftrio 🙌🏻 #cysticfibrosis

[Jillian McNulty @jilli09]

5 weeks ago I was on oxygen 24/7 in a wheelchair barely able to walk, I had abdo surgery just 12 days ago, 4 weeks ago came #mymiracle #trikafta Today I climbed #sligos highest mountain #knocknarea with my brother. If this doesn’t prove how powerful trikafta is then I don’t know!

[#UK CF campaigner Sharon @CFno1LeftBehind]

#16 days or less till we get #kaftrio

I can’t bear the wait anymore

After nearly 20 years of waiting for this day, when #Cysticfibrosis can be a disease you live with, not die from, .@hah_insights🚚📦 from .@VertexPharma .@KingsCollegeNHS
🙏🏻hope your all ready with our #kaftrio

[Chris Riches @ChrisMRiches]

https://t.co/T1EBIwlnLw @Daily_Express delighted to report this story after 18 months of writing about Kaftrio’s existence & dreaming of a deal - it’s finally here, on the @NHSuk & will now start to be rolled out!! Amazing!! #dailyexpresscrusade4cf @MotherhoodvsCF @cftrust

[Ali Dillon 💙 NHS @Alidilly]

2day I hv another success story @MattHancock @blakeydark Joe Barnes 17, had years of declining health. He was too ill to be listed 4 transplant & spiralling downhill. Now he’s looking 4ward to going back 2 school he’s putting on weight & according to mum back to his cheeky self!

[#UK CF campaigner Sharon @CFno1LeftBehind]

To all who don’t/won’t wear a mask, look at this young lad, Kaden Barton, He has cystic fibrosis

He said “I’ve been wearing masks like this one every day
Surprisingly it does not impact my oxygen levels! Wear a mask.”

Be like people with #cysticfibrosis
#WearAMask
@cftrust💛

[NHS England Media @NHSEnglandMedia]

BREAKING: NHS patients with cystic fibrosis will be among the first in Europe to benefit from the new triple therapy, NHS chief executive Sir Simon Stevens has announced

[Strawfie Challenge @strawfie]

Thinking too of all the wonderful people who did not live to see this amazing day. Our thoughts are with you all and also your families and friends. Such a bittersweet day. #cysticfibrosis

[Jillian McNulty @jilli09]

#lungfunction test update! It’s been 1 week on #trikafta #Kaftrio This drug is truly a #miracle Thank you @VertexPharma #cysticfibrosis #lifechanging #newzealand #canada #scotland #wales please make this drug available https://t.co/YQxN4RUBCh

[David Turner @GreatStrides65]

Wow. Just wow 🙏 @MattHancock @blakeydark https://t.co/T0ZDTvd9Qt

[Quest For A Cure @CFQuestForCure]

This. This is why we have to carry on the campaign for #trikaftaNext. It is a miracle #NextGeneration drug that is desperately needed for those with #cysticfibrosis

[Cystic Fibrosis Trust @cftrust]

"Balance for me with CF is about remembering that CF is a condition that I have and not who I am. But also remembering that looking after that condition allows me to be who I want to be" Ed finds motivation in the CF community, where do you find yours? #BalancingCF #CFWeek

[Chris Riches @ChrisMRiches]

So pleased and proud as a journalist that after an 18 month campaign in @Daily_Express with 189 articles on CF and telling the stories of 105 different #cysticfibrosis sufferers we can see this day. #dailyexpresscrusade4cf has been best thing I’ve ever been involved in. #kaftrio

[#UK CF campaigner Sharon @CFno1LeftBehind]

.@MattHancock Thanks You told me you’d help & you did
You’ve given my daughter @jess_cranfield the chance to have a normal life where she can live with CF not die of CF @VertexPharma your amazing medecines will change lives forever #Kaftrio is a miracle @CrispinBlunt @scullyp💛

[Oli Dillon @OliDillon]

Today was most amazing day @NHSuk announced people with CF will receive #Kaftrio the game changing medicine that’s closest thing to a cure we can hv! Thank you @blakeydark @MattHancock my mum @alidilly @nhsCFwarriormum @ChrisMRiches & all who campaigned! I’m off to plan my life!

[#Lifesavingdrugs4cf #Kaftrio @sade_39]

@IcelandFoods
I Can't order from Iceland
Despite being emailed to say i have priority slot available. Please @IcelandFoods can you assist in sorting this out
Had to tweet bc no phone help..no email responce.
Thanks.