#theGFPD - Twitter Hashtag

Samantha @JolicoeurFamily

almost 3 years ago

#PauseforPBD #TheGFPD #PeroxisomalDisorder #hope We pause for Gideon!!

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Esther Nübel @EstherNubel

over 4 years ago

My passion succeeded my own ‘rare’ allowing me to build the #nuebel_lab at #NoordaCOM and we #careaboutrare! The students who joined me are exceptional! Thank you to all my wonderful collaborators! #theGFPD #rarediseaseday #NoordaCOMStandsWithYou

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GFPD @thegfpd

almost 5 years ago

The GFPD was chosen as a grant recipient from @czi! We were one of 20 organizations to receive $50,000 as part of CZI's most recent Rare As One grant cycle. Thank you CZI for your support of the rare disease community. https://t.co/3BFSIL2Vhw #RareAsOne #TheGFPD #RareDisease

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GFPD @thegfpd

almost 5 years ago

“Palliative care has been--and continues to be--the glue that holds everything together for our family.” - Chris Ostertag, father of Hans a #GFPDWarrior https://t.co/xG7lOQ796B #Hospicecare #hospicenurse #palliative #palliativecare #TheGFPD #raredisease

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Esther Nübel @EstherNubel

almost 7 years ago

Thank you for your support! Best wishes to #theGFPD and #wynnemateffy! I am so honored to be part of the peroxisomal community!

GFPD @thegfpd

almost 7 years ago

Esther Nuebel accepted an award on behalf of Dr. Jared Rutter, Howard Hughes Medical Investigator, @uutah, for work on exploiting mitochondrial quality control to find therapeutics to lower symptom burden in Peroxisomal disorders.

thegfpd's tweet photo. Esther Nuebel accepted an award on behalf of Dr. Jared Rutter, Howard Hughes Medical Investigator, @uutah, for work on exploiting mitochondrial quality control to find therapeutics to lower symptom burden in Peroxisomal disorders. https://t.co/rfBjQSz5P7

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Esther Nübel @EstherNubel

over 7 years ago

How impressive when you see golf cart after golf cart lining up to play in support of Max Chapman, one of the #PBD warriors and #theGFPD. Care about #raredisease. Thank you for having me with you at ‘Tee it up’.