Top Tweets for #thisisnih
@JKBurmeister Dr Walitt and Dr. Nath defended their unsupported “effort preference” theory to other attendees at the 2024 Invest in ME #IIME24 conference in London, saying that #pwME misunderstand and need to get over it.
They believe their understanding of M.E. is superior. #ThisIsNIH
NIH quotes from NIH ME/CFS Advocacy Call: Nov. 02, 2016 htps://www.nih.gov/nih-me/cfs-advocacy-call-0
7+ years ago: "Vicky Whittemore, PhD: We hope that one day we will be able to encourage and support clinical trials for ME/CFS" 1/n #MyalgicEncephalomyelitis #pwME #ThisIsNIH
I was interviewed to possibly be in a RECOVER study and the interviewer had *not heard of ME/CFS.*
Why use an objective 2-day CPET to confirm PEM when you can muddy the waters with interviews instead?
You’ll take what we give you and you’ll be grateful. 👇🏼👇🏼👇🏼
#AviNath #ThisIsNIH #MyalgicEncephalomyelitis
#EvenIfNIHIgnoresPEM
#WhileNIHpsychologizesPhsiologicalDisease
Nath is telling ME "community" they need to stop criticizing NIH, instead pwME need to THANK NIH, because gov took on this research over and above whatever else they were doing.
When will NIH stop seeing ME as a poor stepchild and treat it like the a major disease it is?
@dysclinic - yet potential #MyalgicEncephalomyelitis M.E. investigators still encounter the same narrow-minded and unproductive thinking. (https://t.co/fpkyH50yHU) #ThisIsNIH #MEcfs 2/2
@NINDSdirector Walter Koroshetz, your leadership of #NINDS and the Trans-NIH ME/CFS Working Group has utterly failed millions of Americans with #MyalgicEncephalomyelitis.
#ThisIsNIH 💔😭
Today is a reminder of how far behind we are in providing treatments that work for ME. People with ME may be faced with the choice of little effective medical assistance to live but very effective medical assistance to die. The fact this is a decision at all should be shameful.
View “Data Quality and Hidden Influencers in Electronic Medical Record Data” presented by Michael Kahn, MD, PhD #EHR
View here https://t.co/aDzsDYHc1b
@MR3Network
@busph
@brown_sph
@PittPubHealth
@PittSHRS
@NICHD_NIH
@Brownltcqi
@reprorehab
#ThisIsNIH
@the_BMC
@ahcancal
Listen to this podcast featuring Laura Damschroder , MS, MPH. Her presentation is titled, "Learning from the dynamic role of context”
Listen Now > https://t.co/sEwF8RWHt3
@MR3Network @BrownLTCQI #ThisIsNIH
In one week, LeaRRn Pilot Studies Program applications are due!
Submit your Letter of Intent by Jan. 23rd today at https://t.co/pUozSJOlWU
@MR3Network
@busph
@brown_sph
@PittPubHealth
@PittSHRS
@NICHD_NIH
@Brownltcqi
@reprorehab
#ThisIsNIH
We are now accepting applications for our Workshop in Implementation Science and Health Services. Applications are due January 16, 2023. Learn more https://t.co/WyW8ANEBPL
@AOTFoundation
@CoHSTAR_PT
@BUSPH
@NICHD_NIH
#ThisisNIH
LHS Scholar RFA’s are due on November 14th!
If you are interested in becoming a #LearningHealthSystem scholar, please review the application instructions on our website at https://t.co/zhV2m1ez6R
#ThisIsNiH '
@the_BMC @busph @brown_sph @PittPubHealth @PittSHRS @BrownLTCQI
Introducing #PNL2022 Keynote Speaker Shannon N. Zenk, PhD, MS '99, MPH, RN, FAAN, Director, National Institute of Nursing Research (@NINR) #nursingresearch #ThisIsNIH
@loscharlos @doctorasadkhan @microbeminded2 @HarryLeeming @clarejdaly @resiapretorius @TakeWeightOffMD @dbkell @bcdelaney1 @elisaperego78 @fearnley_k @LongCovidAdvoc @LongCovidSOS @long_covid @ahandvanish @smithsj @zalaly @danaparish @WesElyMD @MVGutierrezMD We still have not heard back about our protocol sent to NIH in Dec…
Ron Davis (@JanetDafoe), speaking about his friend Ron Tompkins: "He often said that the biggest problem is not the complexity of the disease but to get some government agency to take it seriously and adequately fund it."
@NIHDirector @genome_gov In April of 2019 Dr. Francis Collins told people living w/ #MyalgicEncephalomyelitis, “No action, no hope.”
In FY 2020, @NIH spending on #MEcfs was <$13 million. That’s not “action”. Please.
NIH can’t solve a complex disease by spending pennies.
#ThisIsNIH #WeDeserveBetter
Video of @NIH doing its *best work* to help people living with #MyalgicEncephalomyelitis.
@NINDSdirector Walter Koroshetz & @NIHDirector Collins were allegedly spotted driving two of the three trams w/ CDC driving the 3rd.
#ThisIsNIH #NIHTrainWreck #WeNeedQualifiedLeaders #MEcfs
This is a photo of @NIH doing its best work to help people living with #MyalgicEncephalomyelitis #MEcfs. #ThisIsNIH
@winstoncb @NINDSdirector @NIHDirector The lies are outrageous. It’s inhumane and barbaric.
#ThisIsNIH 💔
@DoubleChinner @edyong209 @DemFromCT In 1978 I developed #MyalgicEncephalomyelitis after a mononucleosis infection (caused by the EBV virus).
It took 37 years to be correctly diagnosed: 37 years of gaslighting, being told to exercise, harrowing medical errors, and medical abuse.
#MEcfs #ThisIsNIH
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